Guest guest Posted July 11, 2006 Report Share Posted July 11, 2006 Hi Everyone! I had a remicade infusion back on the 12th of June and for the first time in a year and a half of infusions I felt NOTHING! Usually I feel great afterwards, the fatigue is virtually gone, my knuckles instantly go down, it is like I don't have this blasted disease. But not this time. I waited for 3 weeks to see if it would finally kick in, but it never has. So I went back to my rheumy yesterday and he did some extra blood work (which I don't know the results of yet) and said he has had it happen occasionally when someone will have an infusion that doesn't take, but it doesn't necessarily mean it isn't working. So we will go ahead as planned and have my next infusion in August, but if that one doesn't work then we obviously have a problem. He wanted to give me a shot in my knuckles, but gosh that sounds painful and I am barely holding it together as it is! So he gave me a Medrol Dose Pack to take for 6 days and if that doesn't work then I come in for the shot whether I like it or not. My question is has anyone taken this before and/or had this happen with the Remicade? And why am I STARVING? I can't get enough to eat! Is that because of the Medrol stuff or am I just PMSing? LOL!! Love and Peace, Semalee My Blog: http://jellodoesntnail.blogspot.com My webpage: http://360./considerablewellness Words to live by: " A meaningful life will not be found in the next job or the next car. The way you get meaning in your life is to devote yourself to helping others and creating something that gives you purpose. " Morrie Schwartz Quote Link to comment Share on other sites More sharing options...
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