Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Hi everyone! I know I have been awol a long time. It has been a stressful time, getting our daughter moved (she now lives in Georgia with her kids) and dealing with her ex-husband and his attitude. Meanwhile, Ron was accepted as a volunteer in a study group on Parkinson's through St. Hospital in Indy. He is going to have the deep brain stimulation (DBS) surgery sometime in June. Their feeling is that by doing it earlier in the course of the disease, it might actually reverse the brain damage. They've told him he will see at least a 50% return of normal movement, and he is thrilled! I am going to have some minor surgery mid-May to remove some troublesome lipomas (for those of you who don't know me, I have Dercum's Disease) to send to a doctor who is now doing research on Dercum's. The very large ones in my right arm are causing unending problems and seriously interfering with my 2 favorite hobbies--quilting and gardening. The other large tumor above my right knee will come out a week after the arm. Those of us with DD are thrilled that someone is finally doing research! I keep you all in my prayers, knowing that everything we all have to deal with might not be insurmountable challenges, and with appreciation for all the support I have always found here (even though I don't have RA!) Judi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Welcome , I too am amazed at how many of us there are. I hope you will find support here and someone to talk to. Best of luck getting your ra under control. My ra wants to switch from MTX oral to injections, but lack of insurance prevents that from happening. Hope they help you. Peggy brenda <brendas4x4@...> wrote: Hi group, My name is I was told a month ago I have ra, I have been living with pain for over two years and the pain has gotton so bad now that I will be taking shots. I am glad to find a group to talk to and get more information on this terrible thing that is effecting all of us. I did not realize how many of us there is. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Judi, I have been thinking about you so much lately. Though I hardly ever post I feel such a bond and connection to you. I was worried that things may not be going so well when their was a lapse. I am glad to hear that things could be looking up for Ron. Thanks for keeping us posted and good luck to you on your upcoming surgeries. You certainly have had your share. Terri [ ] Hi group > > Hi everyone! > > I know I have been awol a long time. It has been a stressful time, > getting our daughter moved (she now lives in Georgia with her kids) and > dealing with her ex-husband and his attitude. > > Meanwhile, Ron was accepted as a volunteer in a study group on > Parkinson's through St. Hospital in Indy. He is going to have > the deep brain stimulation (DBS) surgery sometime in June. Their > feeling is that by doing it earlier in the course of the disease, it > might actually reverse the brain damage. They've told him he will see > at least a 50% return of normal movement, and he is thrilled! > > I am going to have some minor surgery mid-May to remove some troublesome > lipomas (for those of you who don't know me, I have Dercum's Disease) to > send to a doctor who is now doing research on Dercum's. The very large > ones in my right arm are causing unending problems and seriously > interfering with my 2 favorite hobbies--quilting and gardening. The > other large tumor above my right knee will come out a week after the > arm. Those of us with DD are thrilled that someone is finally doing > research! > > I keep you all in my prayers, knowing that everything we all have to > deal with might not be insurmountable challenges, and with appreciation > for all the support I have always found here (even though I don't have > RA!) > > Judi > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 So good to hear from you, Judi. I hope it isn't too hard to be separated from and the kids. I hope Ron's surgery is a total success. That much improvement is an exciting prospect. That's great that there is someone finally studying Dercum's. Where is this researcher? I'm assuming you mean in the US. I hope you get much relief from the removal of the lipomas. It sounds so gosh darn painful. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Hi group > > Hi everyone! > > I know I have been awol a long time. It has been a stressful time, > getting our daughter moved (she now lives in Georgia with her kids) and > dealing with her ex-husband and his attitude. > > Meanwhile, Ron was accepted as a volunteer in a study group on > Parkinson's through St. Hospital in Indy. He is going to have > the deep brain stimulation (DBS) surgery sometime in June. Their > feeling is that by doing it earlier in the course of the disease, it > might actually reverse the brain damage. They've told him he will see > at least a 50% return of normal movement, and he is thrilled! > > I am going to have some minor surgery mid-May to remove some troublesome > lipomas (for those of you who don't know me, I have Dercum's Disease) to > send to a doctor who is now doing research on Dercum's. The very large > ones in my right arm are causing unending problems and seriously > interfering with my 2 favorite hobbies--quilting and gardening. The > other large tumor above my right knee will come out a week after the > arm. Those of us with DD are thrilled that someone is finally doing > research! > > I keep you all in my prayers, knowing that everything we all have to > deal with might not be insurmountable challenges, and with appreciation > for all the support I have always found here (even though I don't have > RA!) > > Judi Quote Link to comment Share on other sites More sharing options...
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