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Re: OT: Trip to the steering aid store.

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I said last week this stuff will be expensive. I think it's outrageous to

try to make so much money from the pockets of those that really need them.

My personal feeling is that those in wheelchairs are better off because they

wake every morning with the same disability. We don't have that luxury

because our disability moves from day to day, or even hour to hour.

Perspective is important in these cases and seems to be an illusion for

most. It's hard to keep our eyes on the ball because it does change so much.

I've said before that I wish I had a normal disability so I can know what to

expect tomorrow. Plans cannot be made because my body can't do what it

should at any given time. We have to live with it, though. Your comment,

" anyone with a spinal cord injury or nervous system disorder is definitely

worse off than we are " may not be true. Which would you rather have?

Dennis

[ ] OT: Trip to the steering aid store.

>I am hoping this isn't a repost. I am catching up on my e-mail and

> not sure if this is something I posted already. Time for a break.

>

> I finally went in to see them and it was much more than the web site

> revealed. They had conversion vans for sale and other vehicles

> outfitted with ramps and swivel chairs, etc. I just wanted a

> steering wheel handle to steer better having RA in the shoulders,

> elbows, wrists, fingers everything used in steering a car among other

> things. Everyone in the store was in a wheelchair. The salesman

> asked me what type of condition I had. He said he didn't think

> arthritis was real until he got it in his neck. I am sure a lot of

> people don't think it's real. It shouldn't be called arthritis

> although I understand why it is. The

> equipment/modifications/gadgets, etc. were extremely pricey. A lot

> of scooters and fancy wheelchairs. Some I wish I had known about for

> my daughter.

>

> I suppose anyone with a spinal cord injury or nervous system disorder

> is definitely worse off than we are. At least we can hope for a

> treatment, they don't have treatments other than OT/PT. Nonetheless,

> RA pain is pretty bad and can be almost as crippling as a nervous

> system disorder in the long run without proper treatment or without

> prolonged relief.

>

> I was told they really didn't have anything for arthritis which was

> pretty obvious so the steering cover was the route I took. It isn't

> the steering control I was hoping for, but maybe I can feel a little

> more independent with the steering wheel cover which independence is

> my goal.

>

> Take care all.

>

>

> blessings and healing,

> Ebony

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