Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 In a message dated 12/8/06 10:32:52 AM, res0bh3k@... writes: > Does this mean my > adrenal glands have shut down and I'll always need to take prednisone? > > Probably. This is what I was told. Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 > I start having hypoglycemic > symptoms.>>> > What are the symptoms? Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 My doc told me if I had any problems I would need to see an endocrinologist . I am weaning off now too and am at 2.5 mg a day. Joy NELLIESTAR@... wrote: In a message dated 12/8/06 10:32:52 AM, res0bh3k@... writes: > Does this mean my > adrenal glands have shut down and I'll always need to take prednisone? > > Probably. This is what I was told. Pris Joy ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ Visit Joy's Homepage and Reading Room! http://jhoormann-ivil.tripod.com Come see My Dog Salsa! http://www.geocities.com/jhoorm01/Salsa.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 I've been taking Prednisone for 16 years, mostly at 10 mg and never more than 15 mg/day. I recently tried to go off it and got down to 7 mg before having intolerable pain. I tried more than once and finally gave up. It's doing a good job of keeping me up and active, and the lack of quality of life I'd have to endure wasn't worth it. It's not doing any real damage because I am at a 'low level', so I'm content to take my 10 mg/day. Quality of life is the most important for me. Dennis in Eastexas " It's not Rocket Surgery " [ ] need for prednisone > I've been on prednisone for about 6 years (most of the time it was 10 > mg). I'm trying to wean myself off since I started MTX, but am having a > lot of trouble doing so. When I get to 8 mg, my joint pain increases > significantly, and when I go below 8 mg, I start having hypoglycemic > symptoms. Do any of you also have this problem? Does this mean my > adrenal glands have shut down and I'll always need to take prednisone? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 ive been on/off prednisone for 15 years...now i only take it when i have a bad flare..despite the rheumy doc prescribing 10-20 mg daily...for me, i found that i built a dependence/tolerance for it and it took more and more to be effective..along with the side effects....for me, ive learned to live with some of the pain,etc...and only take it when i really need it...frank carnes NELLIESTAR@... wrote: In a message dated 12/8/06 10:32:52 AM, res0bh3k@... writes: > Does this mean my > adrenal glands have shut down and I'll always need to take prednisone? > > Probably. This is what I was told. Pris --------------------------------- Want to start your own business? Learn how on Small Business. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 I had a lot of problems with hypoglycemia when I was in my early 20s, long before I was diagnosed with RA. The symptoms I typically experience are extreme fatigue and weakness, confusion and inability to concentrate, dizziness/fainting, nausea, and headaches. It can become so severe I can't work, drive, or do anything except stay in bed. > What are the symptoms? > Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 In a message dated 12/8/06 8:04:18 PM, betnden@... writes: > It's not doing any real damage > because I am at a 'low level', so I'm content to take my 10 mg/day. Quality > of life is the most important for me. > I agree. I got off prednisone, after tapering down for almost a year. Asked the doctor if I could go back on! I am on 5-15 mg, so far, no side effects after 8 years. I will take a quality like rather than suffer every single day without preddy, even if I get side effects. Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2006 Report Share Posted December 8, 2006 I take prednisone in burst of 20 mg three times a day for two or three weeks at a time and let me say hats off to all of you who use it daily and for years at a time. Every time I have a flare up and they tell me what I've got to take I cry, I hate it so much. I do feel better in some ways but over all it's unpleasant and saddening., I'm only 25 and have been on and off of it since I was 15. If I never had to take it again I would throw a party, but it looks like I have a chest infection so I will probably have to go back on it soon as it is all that will sooth my inflamed lungs and such. Uckie!- I guess that doesn't have too much to deal with the orginal question, I just thought I'd chime in. Ginny On 12/8/06, betnden@... <betnden@...> wrote: > > I've been taking Prednisone for 16 years, mostly at 10 mg and never more > > than 15 mg/day. I recently tried to go off it and got down to 7 mg before > having intolerable pain. I tried more than once and finally gave up. It's > doing a good job of keeping me up and active, and the lack of quality of > life I'd have to endure wasn't worth it. It's not doing any real damage > because I am at a 'low level', so I'm content to take my 10 mg/day. > Quality > of life is the most important for me. > > Dennis in Eastexas > " It's not Rocket Surgery " > > [ ] need for prednisone > > > I've been on prednisone for about 6 years (most of the time it was 10 > > mg). I'm trying to wean myself off since I started MTX, but am having a > > lot of trouble doing so. When I get to 8 mg, my joint pain increases > > significantly, and when I go below 8 mg, I start having hypoglycemic > > symptoms. Do any of you also have this problem? Does this mean my > > adrenal glands have shut down and I'll always need to take prednisone? > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 > I'm only 25 and have been on and off of it since I was 15. If I never had > to > take it again I would throw a party, but it looks like I have a chest > What does pred. do to you that you hate ? Pris Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 , As Joy mentioned, an endocrinologist may be of help. The normal function of your adrenal glands may be suppressed at this point, but it is possible to reverse the situation. Is your rheumatologist helping you taper off? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] need for prednisone > I've been on prednisone for about 6 years (most of the time it was 10 > mg). I'm trying to wean myself off since I started MTX, but am having a > lot of trouble doing so. When I get to 8 mg, my joint pain increases > significantly, and when I go below 8 mg, I start having hypoglycemic > symptoms. Do any of you also have this problem? Does this mean my > adrenal glands have shut down and I'll always need to take prednisone? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2006 Report Share Posted December 9, 2006 My rheumy is overseeing the prednisone reduction, which I've done very slowly while the MTX is building up. --- In , " " <Matsumura_Clan@...> wrote: > As Joy mentioned, an endocrinologist may be of help. > The normal function of your adrenal glands may be suppressed at this point, > but it is possible to reverse the situation. > Is your rheumatologist helping you taper off? Quote Link to comment Share on other sites More sharing options...
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