Re: Living in pain....it is no fun at all....

[Guest guest]

Penny, what you wrote made me cry a little bit. It sounds so much like me. I

have gone downhill fast within just 3 months. I can't get my woods hikes done

and my dogs are not happy about that, to be sure. It is really hard to adjust

to being someone, like you said, a " Type A " , so was I, all my life. I'm 51 and

other than my dogs have no one. I've been thinking about getting in touch with

someone I know at our local hospital and getting a r.a. support group started.

I withdraw alot, too, but it's easier for me living alone because other than my

dogs knowing I'm just not the same, no one else much notices it. I have the

greatest boss in the world and he has let me flex my work time out...but get

this: he was diagnosed with pancreatic cancer this week. It's been a really

devastating week for us at work. He's such a supportive person when his staff

has health issues, and now I feel like there is no way I can tell him my

ailments in light of his cancer. Sorry to go

on and on, your email spoke to me and I wanted to say thanks for sharing it. I

truly do understand.

[ ] Living in pain....it is no fun at all....

Hi!

I am in this weird place where my health basically got significantly

worse in a short period of time. I have had some health problems

but they only impacted a bit on my life. In 1996-1998, I started

noticing pain and IBS and I did some looking into stuff and starting

trying to find out. My doctor thought, based on my blood work and

symptoms that I might have Lupus, so he sent me to a specialist who

diagnosed Fibromyalgia, but also said that some of my bloodwork

looks like I might develop RA in the next few years, months, ect...

and she told me to watch for swelling and symetrical pain. Well, in

2003, I got to the point where my illness started impacting my

ability to continue being a type A person who could do whatever I

wanted and I slowly starting losing things that I could do....In

about September 2006, I got to the point where fulltime work was no

longer possible. In August, I saw my doctor(family practioner) and I

requested more breakthrough meds(Vicodin) for my fibromyaglia. ..I

used to get 10 per month and we doubled it to 20 per month.

I am in quite a bit of pain, but still functioning. I find it hard

in the evening as I just want to withdraw from everyone and I am

really an outgoing person. My daughter, 15 year old, sees me in

pain and she wants to make it better. I am in so much pain that I

can not stand being touched more than a gentle stroke and I also am

rather irritable at times.

Part of me wants to continue working and the other part would be

relieved if the rheumatologist said that disability would be

recommended.

I have had a lot of stress lately that does not help. I have had

family situations involving problems with my mom and I also have

ongoing problems with my 28 year old son. You know, when it rains,

it pours. Thanks for the support that has been shown me on this

site. Gentle Hugs, Penny

__________________________________________________

[Guest guest]

What type of work do you do? I am so sorry to hear that your boss

has pancreatic cancer. My father-in-law died from it, 5 weeks after

being diagnosed, but the symptoms were ignored in his case, because

he was 91 years old and everyone, including him, thought it was old

age. My husband is still gieving over his dad as they were very

close.

I have been married to Chuck for 35 years and we have two sons,

-31 and -28, both out on their own, and 15 years

old. I am 56 and my husband is 59. He understands and sympathizes

as much as he can, but I think this has happened pretty fast for him

also.

He got used to the slightly ill me and does not know what to think

about the moderately ill me. I am really scared and I tend to not

tell my husband a lot about my fears, because he just looks sad and

does not know what to say. I feel my daughter has a hard enough

time being a teen with older parents, so I try not to burden her

unless I ask her to help me with something.

I have three girlfriends, out of a large bunch, that have stuck with

me through thick and thin, but I hate to burden them a lot. I tend

to talk to them on the phone at least once or twice a week.

For a job, even though I have a marketing college degree, I work for

only $6.75 per hour as a sales associate at an upscale children's

store. I average about 26 hours a week as there are only two of us

and my hours increase a bit before Christmas and then will cut back

after the New Year. Thanks so much for your post. Penny

>

> Penny, what you wrote made me cry a little bit. It sounds so much

like me. I have gone downhill fast within just 3 months. I can't

get my woods hikes done and my dogs are not happy about that, to be

sure. It is really hard to adjust to being someone, like you said,

a " Type A " , so was I, all my life. I'm 51 and other than my dogs

have no one. I've been thinking about getting in touch with someone

I know at our local hospital and getting a r.a. support group

started. I withdraw alot, too, but it's easier for me living alone

because other than my dogs knowing I'm just not the same, no one

else much notices it. I have the greatest boss in the world and he

has let me flex my work time out...but get this: he was diagnosed

with pancreatic cancer this week. It's been a really devastating

week for us at work. He's such a supportive person when his staff

has health issues, and now I feel like there is no way I can tell

him my ailments in light of his cancer. Sorry to go

> on and on, your email spoke to me and I wanted to say thanks for

sharing it. I truly do understand.

>

[Guest guest]

Pancreatic cancer is a tough one to fight. I wish your boss much luck

in his road ahead. I also wish you good days with little pain.

Sue

On Friday, December 8, 2006, at 08:29 PM, MBL wrote:

> I have the greatest boss in the world and he has let me flex my work

> time out...but get this: he was diagnosed with pancreatic cancer this

> week. It's been a really devastating week for us at work. He's such

> a supportive person when his staff has health issues, and now I feel

> like there is no way I can tell him my ailments in light of his > cancer.

[Guest guest]

Hello Penny.. So true. But some day the sun will come out and the day will look

a lot better. Another old clique is, " if it can't get any worse, it has to get

better. " We all can see where you are and how painful and depressing it can be

with constant pain and tiredness, but with the help of an Entity that has more

strength than we, we some how make it through the bad days and weeks and enjoy

the less stressful ones. Know that you aren't alone and that we will all keep

you in mind and send positive thoughts/energies to you and each other.

gentle hugs, Lee

[ ] Living in pain....it is no fun at all....

Hi!

You know, when it rains,

it pours. Thanks for the support that has been shown me on this

site. Gentle Hugs, Penny

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