Hi my name is Annie

[Guest guest]

Hi,

I'm Annie. I'm 26 with a one year old that out runs me daily. I have

had undiagnosed pain since New Years. I woke up and found I couldn't

breath. I popped my first two ribs out of place when I sneezed. From

there the pain started spreading all over my body and I started to

fall a lot. I knew I needed help when both my amkles gave out and my

daughter and I hit the wall at the bottom of the stairs. It took

three months to get to a Rheumy (is that what you call them?) I have

been told I have lupus and Fibro. I'm scared. We wanted to have

another baby but I don't have the physical ability right now because

of all the medication I am on. My world has been turned upside down

and I'm awake at 1 am because the pain is too much too sleep. I

choose to stop my vicodin because it made me short tempered and

sleepy (two things I can't be with a toddler) I'm on Ultram now and

it's like I'd get the same help if i took a tic tac! Should I call

my doctor and ask for something else?

I hope to make new friends here and find others that can help with

questions I might have and be able to help me find ways to explain

to friends and family that I'm not lazy just a little slower because

I hurt so bad. It would be easier to get people to understand if I

had a visible problem like a gun shot and it isn't fair! I'm done

complaining. This was probably rude since I'm just introducing

myself. Thanks to all who read the whole thing.

Annie

[Guest guest]

Hi Annie, I feel your pain, literally. I was diagnosed with Lupus/RA right

around your age (the Fibro dx was added much later) back when my son was 3

and my daughter just born. Poor thing, she learned to sleep through the

night quite early because my wrist pain was so bad, it would take a while to

get her bottle ready. My thoughts and prayers will be with you in your

daily struggles. I do want to convey the message that all is not lost.

Sure, it sucks. Lots of meds to go through before you'll find the 'right'

one. But the MOST important thing is to find the right Rheumy (That's what

I call them 'cause I can't spell it!) Enbryl was a god-send to me. It

helped bring me back to somewhat 'normal' life. I had to switch to Humira

due to $$ reasons (Personally, I liked Enbryl better) but what a

difference. I only wish it was around 20 years ago. How scary to have your

ankles give out when holding the baby. I agree with you with Ultram. They

are like tic tacs. Didn't help me one bit either. Tell your doctor. Call

him, don't wait until your next appt. Tell him you need help sleeping, you

need to get a good night sleep to keep up with that little one! I've had

to deal with people thinking I'm lazy or whatever, but so what. They have

no idea what you are going through and probably never will. You need to

focus on getting your pain level down first. Being a mom, it's easy to put

yourself last on the list, but try to be kind to yourself. You will feel

better, there will be better days, this will not pass, but it can be

bearable and there are many people in your 'boat'. You are not alone.

Anytime you want to 'talk' it's just an email away. Take care of yourself

and that little one.

Joanne, IL

[ ] Hi my name is Annie

> Hi,

>

> I'm Annie. I'm 26 with a one year old that out runs me daily. I have

> had undiagnosed pain since New Years. I woke up and found I couldn't

> breath. I popped my first two ribs out of place when I sneezed. From

> there the pain started spreading all over my body and I started to

> fall a lot. I knew I needed help when both my amkles gave out and my

> daughter and I hit the wall at the bottom of the stairs. It took

> three months to get to a Rheumy (is that what you call them?) I have

> been told I have lupus and Fibro. I'm scared. We wanted to have

> another baby but I don't have the physical ability right now because

> of all the medication I am on. My world has been turned upside down

> and I'm awake at 1 am because the pain is too much too sleep. I

> choose to stop my vicodin because it made me short tempered and

> sleepy (two things I can't be with a toddler) I'm on Ultram now and

> it's like I'd get the same help if i took a tic tac! Should I call

> my doctor and ask for something else?

>

> I hope to make new friends here and find others that can help with

> questions I might have and be able to help me find ways to explain

> to friends and family that I'm not lazy just a little slower because

> I hurt so bad. It would be easier to get people to understand if I

> had a visible problem like a gun shot and it isn't fair! I'm done

> complaining. This was probably rude since I'm just introducing

> myself. Thanks to all who read the whole thing.

>

> Annie

>

>

>

>

>

>

>

>

>

>

[Guest guest]

Annie

You can come here to vent any time you want to!! There are some great rheummy

and there are some that are jerks. Make sure you are comfortable with yours and

if one med doesn't work, let them know and try something else. I took celebrex

for years but it wasn't enough and am now trying Lyrica. We all understand the

pain and the frustration of these diseases. We are here anytime you need.

Family and friends can be rough and there is a website called

www.butyoudontlooksick.com and it is a good site for them to read.

Please take it easy on yourself and don't be afraid to ask others for help. It

is so important that we don't let ourselves get so worn down that it takes us

forever to recover. If you can't do something, don't do it, or ask someone else

to help. If your house isn't spotless, who cares.........if you can't do your

hair somedays, then tell everyone to just deal with it. This is your body and

you and only you can protect it.

Also, check for support groups in your area. I know we have a fibro group here

as I do a spa day for them 2x a year. It is so important to find whatever helps

you with your pain, whether it is heat pads, ice packs, massage, accupressure,

biofeedback..........just whatever works and often times these groups will

discuss things that work for someone. Now, remember that just because it works

for one doesn't mean it will work for you, everybodies body chemistry works

differently (which is why there are so many meds).

Again, welcome and I wish for you a pain free day!

Hugs

in NC

[Guest guest]

Welcome to the group Annie!

Sorry to read you had so much trouble before getting a disgnosis. I

went through that too in the early 90's when Fibro was so well known.

It must be hard on you being in so much pain with a toddler in the

house. I agree about Ultram but take it anyway. My only strongest

one is Darvocet N but you need something stronger. Someone in this

group should be able to suggest something. Everyone is good that

way.

Good luck to you. I hope get the care you need.

Debbie L

>

> Hi,

>

> I'm Annie. I'm 26 with a one year old that out runs me daily. I

have

> had undiagnosed pain since New Years. I woke up and found I

couldn't

> breath. I popped my first two ribs out of place when I sneezed.

From

> there the pain started spreading all over my body and I started to

> fall a lot. I knew I needed help when both my amkles gave out and

my

> daughter and I hit the wall at the bottom of the stairs. It took

> three months to get to a Rheumy (is that what you call them?) I

have

> been told I have lupus and Fibro. I'm scared. We wanted to have

> another baby but I don't have the physical ability right now

because

> of all the medication I am on. My world has been turned upside

down

> and I'm awake at 1 am because the pain is too much too sleep. I

> choose to stop my vicodin because it made me short tempered and

> sleepy (two things I can't be with a toddler) I'm on Ultram now

and

> it's like I'd get the same help if i took a tic tac! Should I call

> my doctor and ask for something else?

>

> I hope to make new friends here and find others that can help with

> questions I might have and be able to help me find ways to explain

> to friends and family that I'm not lazy just a little slower

because

> I hurt so bad. It would be easier to get people to understand if I

> had a visible problem like a gun shot and it isn't fair! I'm done

> complaining. This was probably rude since I'm just introducing

> myself. Thanks to all who read the whole thing.

>

> Annie

>

[Guest guest]

Annie, don't worry about 'unloading' on us, that's why we're here. My

problems started at age 46, so I had most of the family things done by then.

The bad part of that is we were just starting our 'freedom' from kids, had a

good position at work, and it all crashed at one time. It can happen to

anybody at any time, but because nobody can see our problems and pain, they

get a little dis-courteous. Ultram is a joke for a lot of us, it doesn't do

anything for us at all. I can take a handful and not experience any effects,

so I'm on MS Contin (morphine) and recently back on Vicadin because of my

back damage. I also have a prescription for Ultram if I want to waste my

money. If your pain pills aren't working for you, tell the doctor. I believe

they understand that some will work and some won't, and I think they choose

the least likely one to give you side effects but still some help for the

pain. I think your next step should be Darvocet or maybe Vicadin. They are

low impact but still helpful. Ask your doc what's next. I hope you get

relief from this, it doesn't sound pleasant!

Dennis in Eastexas

" You can't always fix it with money "

>

>>

>> Hi,

>>

>> I'm Annie. I'm 26 with a one year old that out runs me daily. I

> have

>> had undiagnosed pain since New Years. I woke up and found I

> couldn't

>> breath. I popped my first two ribs out of place when I sneezed.

> From

>> there the pain started spreading all over my body and I started to

>> fall a lot. I knew I needed help when both my amkles gave out and

> my

>> daughter and I hit the wall at the bottom of the stairs. It took

>> three months to get to a Rheumy (is that what you call them?) I

> have

>> been told I have lupus and Fibro. I'm scared. We wanted to have

>> another baby but I don't have the physical ability right now

> because

>> of all the medication I am on. My world has been turned upside

> down

>> and I'm awake at 1 am because the pain is too much too sleep. I

>> choose to stop my vicodin because it made me short tempered and

>> sleepy (two things I can't be with a toddler) I'm on Ultram now

> and

>> it's like I'd get the same help if i took a tic tac! Should I call

>> my doctor and ask for something else?

>>

>> I hope to make new friends here and find others that can help with

>> questions I might have and be able to help me find ways to explain

>> to friends and family that I'm not lazy just a little slower

> because

>> I hurt so bad. It would be easier to get people to understand if I

>> had a visible problem like a gun shot and it isn't fair! I'm done

>> complaining. This was probably rude since I'm just introducing

>> myself. Thanks to all who read the whole thing.

>>

>> Annie

[Guest guest]

>

> Hi Annie, I feel your pain, literally. I was diagnosed with

Lupus/RA right

> around your age (the Fibro dx was added much later) back when my

son was 3

> and my daughter just born. Poor thing, she learned to sleep

through the

> night quite early because my wrist pain was so bad, it would take a

while to

> get her bottle ready. My thoughts and prayers will be with you in

your

> daily struggles. I do want to convey the message that all is not

lost.

> Sure, it sucks. Lots of meds to go through before you'll find

the 'right'

> one. But the MOST important thing is to find the right Rheumy

(That's what

> I call them 'cause I can't spell it!) Enbryl was a god-send to

me. It

> helped bring me back to somewhat 'normal' life. I had to switch to

Humira

> due to $$ reasons (Personally, I liked Enbryl better) but what a

> difference. I only wish it was around 20 years ago. How scary to

have your

> ankles give out when holding the baby. I agree with you with

Ultram. They

> are like tic tacs. Didn't help me one bit either. Tell your

doctor. Call

> him, don't wait until your next appt. Tell him you need help

sleeping, you

> need to get a good night sleep to keep up with that little one!

I've had

> to deal with people thinking I'm lazy or whatever, but so what.

They have

> no idea what you are going through and probably never will. You

need to

> focus on getting your pain level down first. Being a mom, it's

easy to put

> yourself last on the list, but try to be kind to yourself. You

will feel

> better, there will be better days, this will not pass, but it can

be

> bearable and there are many people in your 'boat'. You are not

alone.

> Anytime you want to 'talk' it's just an email away. Take care of

yourself

> and that little one.

> Joanne, IL

>

> [ ] Hi my name is Annie

>

>

> > Hi,

> >

> > I'm Annie. I'm 26 with a one year old that out runs me daily. I

have

> > had undiagnosed pain since New Years. I woke up and found I

couldn't

> > breath. I popped my first two ribs out of place when I sneezed.

From

> > there the pain started spreading all over my body and I started to

> > fall a lot. I knew I needed help when both my amkles gave out and

my

> > daughter and I hit the wall at the bottom of the stairs. It took

> > three months to get to a Rheumy (is that what you call them?) I

have

> > been told I have lupus and Fibro. I'm scared. We wanted to have

> > another baby but I don't have the physical ability right now

because

> > of all the medication I am on. My world has been turned upside

down

> > and I'm awake at 1 am because the pain is too much too sleep. I

> > choose to stop my vicodin because it made me short tempered and

> > sleepy (two things I can't be with a toddler) I'm on Ultram now

and

> > it's like I'd get the same help if i took a tic tac! Should I call

> > my doctor and ask for something else?

> >

> > I hope to make new friends here and find others that can help with

> > questions I might have and be able to help me find ways to explain

> > to friends and family that I'm not lazy just a little slower

because

> > I hurt so bad. It would be easier to get people to understand if I

> > had a visible problem like a gun shot and it isn't fair! I'm done

> > complaining. This was probably rude since I'm just introducing

> > myself. Thanks to all who read the whole thing.

> >

> > Annie

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >