Re: Living in pain....it is no fun at all....Penny

[Guest guest]

No, Penny. It's not fun at all. I've had a similar experience.

Shortly after I found Mr. Wonderful (ar 44 years of age) and was

married, I was dx'd with moderate to severe RA. The little world

that we had created started falling apart. The pain and depression

almost got the best of me. My husband has continued to be my best

friend and greatest supporter, when my daughter and mom don't

understand at all. There were alot of days when I wished the doc

would tell me I couldn't work anymore so I could crawl " under " the

bed and stay.

However, after 15 months of different meds and doctors, I think

we've finally found the right doctor and meds and i have alot of good

days, and feel more human than I have in a long time. Keep looking

and keep pushing them until they find what makes you feel better. We

all know that every day won't be good, but the ones that are, are

Wonderful! Bless you, good luck.

>

> Hi!

> I am in this weird place where my health basically got

significantly

> worse in a short period of time. I have had some health problems

> but they only impacted a bit on my life. In 1996-1998, I started

> noticing pain and IBS and I did some looking into stuff and

starting

> trying to find out. My doctor thought, based on my blood work and

> symptoms that I might have Lupus, so he sent me to a specialist who

> diagnosed Fibromyalgia, but also said that some of my bloodwork

> looks like I might develop RA in the next few years, months, ect...

> and she told me to watch for swelling and symetrical pain. Well,

in

> 2003, I got to the point where my illness started impacting my

> ability to continue being a type A person who could do whatever I

> wanted and I slowly starting losing things that I could do....In

> about September 2006, I got to the point where fulltime work was no

> longer possible. In August, I saw my doctor(family practioner) and

I

> requested more breakthrough meds(Vicodin) for my fibromyaglia...I

> used to get 10 per month and we doubled it to 20 per month.

>

> I am in quite a bit of pain, but still functioning. I find it hard

> in the evening as I just want to withdraw from everyone and I am

> really an outgoing person. My daughter, 15 year old, sees me in

> pain and she wants to make it better. I am in so much pain that I

> can not stand being touched more than a gentle stroke and I also am

> rather irritable at times.

>

> Part of me wants to continue working and the other part would be

> relieved if the rheumatologist said that disability would be

> recommended.

>

> I have had a lot of stress lately that does not help. I have had

> family situations involving problems with my mom and I also have

> ongoing problems with my 28 year old son. You know, when it rains,

> it pours. Thanks for the support that has been shown me on this

> site. Gentle Hugs, Penny

>