Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Hi Judi: Glad to see you checking in with us! That is wonderful about you having found someone who is actually doing research on Decrum's - I hope that through research they can find a way to help patients like yourself. I am glad that and the little ones are all settled in - sorry to hear that her ex is being troublesome. It must be hard to adjust to not having your little grandchildren with you every day, but also more restful for you and Ron. Do you have empty nest syndrome now it's just you two, or is it a second honeymoon lol! That is great that Ron got into the study, and I hope that the deep brain stimulation helps him tremendously! Best of luck with your coming lipoma surgeries. Please keep us updated on everything! Prayers are coming your way, Judi! Kathe --- nonny46 <nonny46@...> wrote: > > Hi everyone! > > I know I have been awol a long time. It has been a > stressful time, > getting our daughter moved (she now lives in Georgia > with her kids) and > dealing with her ex-husband and his attitude. > > Meanwhile, Ron was accepted as a volunteer in a > study group on > Parkinson's through St. Hospital in Indy. > He is going to have > the deep brain stimulation (DBS) surgery sometime in > June. Their > feeling is that by doing it earlier in the course of > the disease, it > might actually reverse the brain damage. They've > told him he will see > at least a 50% return of normal movement, and he is > thrilled! > > I am going to have some minor surgery mid-May to > remove some troublesome > lipomas (for those of you who don't know me, I have > Dercum's Disease) to > send to a doctor who is now doing research on > Dercum's. The very large > ones in my right arm are causing unending problems > and seriously > interfering with my 2 favorite hobbies--quilting and > gardening. The > other large tumor above my right knee will come out > a week after the > arm. Those of us with DD are thrilled that someone > is finally doing > research! > > I keep you all in my prayers, knowing that > everything we all have to > deal with might not be insurmountable challenges, > and with appreciation > for all the support I have always found here (even > though I don't have > RA!) > > Judi > > > > > > [Non-text portions of this message have been > removed] > > Kathe " To ride a horse is to borrow freedom. " __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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