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This board seems to be dominated by hip and knee patients.

You might consider posting your questions about ankle replacement on

WebMD where they are sometimes answered by an OS as well as

patients. http://boards.webmd.com/topic.asp?topic_id=1131

> Hello again and Happy New Year. It is nearly February and I have

not

> yet received a response to my December posting. I am hoping that

> those of you in the group who have dealt with ankle replacements

may

> be willing to take a little time to talk to me about it. Also, I

> found a great website for the injured and recovering orthopedic

> patient: www.brokenbeauties.com

>

> Here is a copy of my last post:

>

> I am very pleased to have found this group, I have been searching

> for a long time! I am going to have a total ankle replacement at

> some point in the next six months and I would really like to spend

> some time learning about it from others who have done it. The

> doctors tell you very little, if they even know at all, about the

> post-op and healing process. I would really like to be able to ask

> someone who has done it what it is really like and what to expect.

> Please send me an e-mail, or post a response so others can share.

> Thank you.

>

> Kim

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HI KIM,

IT LOOKS LIKE YOU WILL BE THE TEACHER FOR ALL OF US. I HAVE TALKED WITH 'ANKLES' IN THE POOL, BUT HAVE SEEN NONE ON HERE. OF COURSE WE ALL WISH YOU THE VERY BEST.

HUGS, MARGE

....save me, for I am Your servant and I trust in You.

Hello again and Happy New Year. It is nearly February and I have not yet received a response to my December posting. I am hoping that those of you in the group who have dealt with ankle replacements may be willing to take a little time to talk to me about it. Also, I found a great website for the injured and recovering orthopedic patient: www.brokenbeauties.com Here is a copy of my last post: I am very pleased to have found this group, I have been searchingfor a long time! I am going to have a total ankle replacement atsome point in the next six months and I would really like to spendsome time learning about it from others who have done it. Thedoctors tell you very little, if they even know at all, about thepost-op and healing process. I would really like to be able to asksomeone who has done it what it is really like and what to expect.Please send me an e-mail, or post a response so others can share.Thank you.Kim

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Hi Kim, I missed your December post otherwise I would have

replied. I have been with this group since day two, I'm no

expert, but I have had multiple joint replacements over the past

five years including an ankle in '99. So, let me just tell you the

rehab process is long, I'd say 3+ months. This is because the first

four weeks your in a non-weight bearing cast(so practice walking

w/crutches)then that comes off for x-rays to see the healing

correctly and recasted, partial weight-bearing. Another four weeks,

cast off, x-rays, recasted w/ a removable cast. After this time is

when the actual rehab starts, a physical therapist(pt) will be

prescribe to you by your Dr. This therapy was done at my home, other

questions you might have?..; showering? I bought this over the cast

rubber protector, it was a pain to get on(LITERALLY!!,OUCH), but it

kept the cast dry. Let me know of specific questions, I'm here if

you need me. Peace, ie

P.S. I'm totally happy w/my replacement ankle, hardly know I have

one. Keep me posted on you progress. Good Luck.

> Hello again and Happy New Year. It is nearly February and I have

not

> yet received a response to my December posting. I am hoping that

> those of you in the group who have dealt with ankle replacements

may

> be willing to take a little time to talk to me about it. Also, I

> found a great website for the injured and recovering orthopedic

> patient: www.brokenbeauties.com

>

> Here is a copy of my last post:

>

> I am very pleased to have found this group, I have been searching

> for a long time! I am going to have a total ankle replacement at

> some point in the next six months and I would really like to spend

> some time learning about it from others who have done it. The

> doctors tell you very little, if they even know at all, about the

> post-op and healing process. I would really like to be able to ask

> someone who has done it what it is really like and what to expect.

> Please send me an e-mail, or post a response so others can share.

> Thank you.

>

> Kim

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  • 1 month later...
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Hi Madeleine

I am 43 years and 11 weeks post-op froma total ankle replacement. So far, I am

THRILLED with my decision... the pain I had experienced before surgery was

keeping me from walking, stairs, etc. Even tho I am still in a walking cast and

in intense rehab.. I am 100% pasinfree in my ankle joint (the tendons etc are

still stiff from the surgery and I have a long way to go with regard to

flexability, etc.)

The downside of the ankle replacement is longevity - they project it might only

last 7-10 years. But that is a lifetime when it comes to ortho research and

development.. so I chose to go this way and hope that things improve so that

when/if I have to have a revision there will be new options.

From what I understand.. once you choose a fusion you lose the option of doing a

replacement. however, if you choose a replacement and it fails for some reason..

fusion is always another choice. SO... I would recommend going for the best

first (which is replacement).

there are few surgeons in the country doing these procedures.. I am in chicago

and will be happy to shar einfo on my doc, stephen haddad. He is wonderful.. and

he sees patients from all over the country who come here for their surgery and

initial rehab.

good luck w/your decision.

maureen in chicago

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Hi,

I am 30 years old now and in Nov. 1999 I had a severe head on car

accident, which many tell me I was lucky to survive. I severly had

an open compound fracture to my right ankle, among other injuries.

The ER Dr. at the horpital I went to told me that I would probably

never walk on that foot again and that no medical book had ever

listed a fracture that bad to be able to be saved. But the ortho

specialist decided to at least try. Rather than amputate right away

they decided to try to put me back togethar. The other hospital here

claimed they would amputated right away. But anyhow throughout the

many surgery's the last one being an ankle fusion 2 yrs. ago, the

doctors have managed to save my leg. My ankle at the time was just a

mush of a mess, they said it looked like dynamyte was blown off in

my ankle, but after 8 months i was finally able to walk on it. That

only lasted for about 3 months. Then the cartilage in my ankle

became severly worn it was bone rubbing on bone. Thats when I had to

explore my options. We checked into cartilage replacement, but by

this point my ankle was too bad, they said the bone was too wore and

the cartilage would not take in my ankle anymore, then ankle

replacement they said that throughout a lifetime a human can only

get about 3 replacements, because each time a new replacement is put

in they have to saw a little more bone off to attach the new

replacement. So the max would be 3 replacements. Which they said I

would probably go through quite fast, being so young and physically

active yet I would wear them out to fast. My only option was an

ankle fusion...But my Dr. claims that in time I will be a good

candidate for ankle replacement, They actually just saw the fusion

apart and put the replacement in. He claimed that the fusion was

reversable for an ankle replacement...But even if he is not I am

actually glad I went with the fusion, sure I lost the mobility to

bend my ankle, but I can walk pain free and I don't have to worry

about a replacement going out or only being allowed so many

replacements. Don't get me wrong though, when I am older and not so

mobile I may get that replacement. But for now and for me, the ankle

fusion just seemed like the only way for me.

Shananne

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  • 2 years later...
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Hello Magda, As a matter of fact, I was just talking with a co-worker today who told me he had his ankle replaced a few years ago and he is doing just great. In fact, he goes skiing and is a very active fit person. Hope you have the same result. Marciaeagle48 <drmagda@...> wrote: Does anyone have any anecdotal info, good or bad, regarding ankle replacements? My ortho surgeon says that results are not that successful yet, so I'm wondering ??? I'm likely looking at this option or ankle fusion in my future.thanx,

magda __________________________________________________

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  • 6 months later...

Hi ,

Sorry, I cannot offer my experience. But this question raises my curiosity

because I also have severe ankle involvement. The mobility with this proceedure

over fusion appears promising if you are a candidate. It is documented that

longer lasting results are achieved by people with the newer Agility design.

I know your dedication to research as you have forwarded all of us much

valuable

information. What have you been told about the risks vs. the benefits ? What a

blessing to have options that could improve pain and functioning.

:)

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tools, free access to millions of high-quality videos from across the web, free

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Ankle REPLACEMENT???

My Mother is 63, has had RA since she was 6, has had 2 spinal

fusions, both hips replaced(the first was experimental and is now

pretty much standard.. it involves a lot of cobalt and titanium) has

had parts of both elbows excised, has had a shoulder replaced and is

in line for some radical experimental total knee replacements at IU.

Ankle replacement?? if my mother hasn't had it or hasn't heard of

it, your dreaming. Each of the tens of tiny bones would have to be

custom made, there would have to be a material slick enough to serve

as cart. and cushion enough to serve as a bursor and something to

connect it all AND be able to support the weight of the human body,

but provide maximum flexibilty with the lightest weight. Send me an

article please, to blumajikboi@... about this?? because of now,

as I udnerstand, a person still can't kneel RELIABLY on an artificial

knee for shattering the kneecap, or worst, splintering the femur.

I am MOST interested to hear about ankle replacements!!

Jim

>

> Hi ,

> Sorry, I cannot offer my experience. But this question raises

my curiosity because I also have severe ankle involvement. The

mobility with this proceedure over fusion appears promising if you

are a candidate. It is documented that longer lasting results are

achieved by people with the newer Agility design.

> I know your dedication to research as you have forwarded all

of us much valuable

> information. What have you been told about the risks vs. the

benefits ? What a

> blessing to have options that could improve pain and functioning.

> :)

>

______________________________________________________________________

__

> Check out the new AOL. Most comprehensive set of free safety and

security tools, free access to millions of high-quality videos from

across the web, free AOL Mail and more.

>

>

>

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hi Jim, you mentioned IU in your post, are you and your family in Indiana? I'm

in Bloomington. Have been wondering what our medical facilities in this state

have to offer in the newer R.A. treatments and surgeries and just beginning to

do some research.

[ ] Re: ankle replacement

Ankle REPLACEMENT? ??

My Mother is 63, has had RA since she was 6, has had 2 spinal

fusions, both hips replaced(the first was experimental and is now

pretty much standard.. it involves a lot of cobalt and titanium) has

had parts of both elbows excised, has had a shoulder replaced and is

in line for some radical experimental total knee replacements at IU.

Ankle replacement? ? if my mother hasn't had it or hasn't heard of

it, your dreaming. Each of the tens of tiny bones would have to be

custom made, there would have to be a material slick enough to serve

as cart. and cushion enough to serve as a bursor and something to

connect it all AND be able to support the weight of the human body,

but provide maximum flexibilty with the lightest weight. Send me an

article please, to blumajikboi about this?? because of now,

as I udnerstand, a person still can't kneel RELIABLY on an artificial

knee for shattering the kneecap, or worst, splintering the femur.

I am MOST interested to hear about ankle replacements! !

Jim

>

> Hi ,

> Sorry, I cannot offer my experience. But this question raises

my curiosity because I also have severe ankle involvement. The

mobility with this proceedure over fusion appears promising if you

are a candidate. It is documented that longer lasting results are

achieved by people with the newer Agility design.

> I know your dedication to research as you have forwarded all

of us much valuable

> information. What have you been told about the risks vs. the

benefits ? What a

> blessing to have options that could improve pain and functioning.

> :)

>

____________ _________ _________ _________ _________ _________ _

__

> Check out the new AOL. Most comprehensive set of free safety and

security tools, free access to millions of high-quality videos from

across the web, free AOL Mail and more.

>

>

>

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Hi, Dawn.

This question is being asked by another in our group.

This topic doesn't come up too often, but I'll be interested to hear

anyone's report about an ankle replacement.

a, our group owner and lead moderator, is a candidate for ankle

replacements, but she has been waiting for the procedure and materials to

improve and for the chances for success to increase.

I'll post what I can find about the latest developments.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] ankle replacement

> Hi ,

> Sorry, I cannot offer my experience. But this question raises my

> curiosity because I also have severe ankle involvement. The mobility with

> this proceedure over fusion appears promising if you are a candidate. It

> is documented that longer lasting results are achieved by people with the

> newer Agility design.

> I know your dedication to research as you have forwarded all of us

> much valuable

> information. What have you been told about the risks vs. the benefits ?

> What a

> blessing to have options that could improve pain and functioning.

> :)

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