getting well

[Guest guest]

What else are you taking to thin your blood?

Phil

Zazzue wrote:

> From: Zazzue <Zazzue@...>

>

> For over 15 years I have rarely gotten a cold or the flu....maybe 5

> times in all those years. I took the armour and immediately got a

> cold (or is it the flu?). Granted, it has been trying to get a hold

> of me for about a week, and it finally succeeded. I've been taking

> aspirin and other home stuff to bolster my immune system and thin my

> blood, and I've been feeling better. So, I must be making head way

> with this sort of therapy, or I wouldn't be feeling so sick. I do

> remember that one of my doctors commented on my having a low red cell

> count, be he wasn't concerned.

> Well, enough for right now, I got to get back to bed.

>

> Zazzue

>

> http://www.CreativeAddiction.com

> mailto:Zazzue@...

>

> > This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

[Guest guest]

> I am going to stop using doxy --at least for a while. I am not sure to what

> extent it was responcible for my being sick but I sure was sick. Does anyone

> have experience with an ABX that does not cause such a major reaction?

> thanks

> Steve

> getting well

> From: Zazzue <Zazzue@...>

> For over 15 years I have rarely gotten a cold or the flu....maybe 5

> times in all those years. I took the armour and immediately got a

> cold (or is it the flu?). Granted, it has been trying to get a hold

> of me for about a week, and it finally succeeded. I've been taking

> aspirin and other home stuff to bolster my immune system and thin my

> blood, and I've been feeling better. So, I must be making head way

> with this sort of therapy, or I wouldn't be feeling so sick. I do

> remember that one of my doctors commented on my having a low red cell

> count, be he wasn't concerned.

> Well, enough for right now, I got to get back to bed.

> Zazzue

> http://www.CreativeAddiction.com

> mailto:Zazzue@...

> > This list is intended for patients to share personal experiences with

> each other, not to give medical advice. If you are interested in any

> treatment discussed here, please consult your doctor.

[Guest guest]

My own experience was quite mild -- but I had major remission via blood

thinning prior to starting the antibiotics (platete thinning alone jumped me

from 30% to 80% -- I was lucky) - plus having CFS for only 8 months before

starting...

My wife is likely to start the same abx routine as I am on next week (10

years after the start of gradual onset), and we have already transfer

complete management of the house and the kids to me because we expect one

real nasty ride for her.... I believe that doing the 'oxygen' treatments

before antibiotics have a possibility of reducing die-off ... since

increasing oxygen should inhibits the growth of new mycoplasma (or whatever)

see http://www.folkarts.com/idef/treatments.htm for details and options...

Which antibiotic and what dosages?

Ken

----- Original Message -----

From: Zazzue <Zazzue@...>

>

> > I am going to stop using doxy --at least for a while. I am not sure to

what

> > extent it was responcible for my being sick but I sure was sick. Does

anyone

> > have experience with an ABX that does not cause such a major reaction?

>

> > thanks

>

> > Steve

>

[Guest guest]

Glen,

You seem to have done a lot with regard to diet and detoxifying your

body. However, has any doctor answered basic questions for you such as:

1) Why do you specifically have an epileptic disorder?

2) What it is that triggers your seizures?

3) What options do you have for improving your overall quality of life?

If no one has answered those questions for you, you need to seek " second

opinions " until those questions are answered.

Our Bookmark section may help you do just that. Please take advantage

of it. Check out s-Reiter . You can get a FREE evaluation of

your medical records from them. Plus, their director of therapy

research will personally respond to questions you have about epilepsy.

Knowledge is power. Check it out.

Good luck.

Lamar

bcequity wrote:

> Hi everybody. My name is Glen . I have been battling temporal

> lobe epilepsy since age 21, though I did not know it until age 37

> when I had a " B.E.A.M. " test done (see Pathmed.com). I am now age

> 46.

> The biggest things that have helped to date are:

> 1)hypoglycemia diet

> 2)removal of mercury amalgams

> 3)I am now working on a parasite program

> 4)I am also working on futhter mercury detoxification

>

> I look forward to your focused comments on things that may help.

>

> Please contact me :bcequity@...

>

>

>

[Guest guest]

Marcia/Adrienne and others re: When I get Well~

Go ahead and think of the future as you do have one.

Our symptoms wax and wane like when we/others have the flu~we have a couple

hours of energy and then we have to rest for a couple of hours (or more). I am

52 years young (I especially like adding the young part thanks to another

sufferer's suggestion) and have had CFS/FMS for more years than I know (as a

child most likely). Some years (many) it's worse but I have been so much better

since I have been eating better (again). Yeah, I had three months where I was a

couch potato along with the tator tots who joined me to sit all day and watch TV

when I had bronchial pneumonia and couldn't move (and did you know that most

programs are geared for the eighth grade level~can you feel yourself getting

dumber watching some shows?). However, for me the diet is the key that helped

me get up and get moving (Dantini protocol of food allergy rotation diet, along

with some heavy antivirals). Many of you have no energy to cook or prepare

food, but try hard to be good to yourself with what you eat. If you are eating

fast foods, takeout, processed foods, lots of sugar (cookies, candy, other

sweets), diet sodas or caffeine, or chips or whatever~you are killing yourself

with the junk and additives they put in our foods. Try to stay away from all

this stuff and eat fresh fruits and veggies, raw unsalted nuts (no oils or

processed salts) and if possible organic foods. If you eat meat or eggs, try to

get stuff that hasn't been fed antibiotics or hormones. Keep your meals simple,

don't mix a lot of different foods or things together, eat roughage to keep your

bowels moving properly, and I believe you will notice a huge difference. I

notice when I eat badly I feel badly; those I have talked to who are sitting all

day eating bags of cookies, candy and chips feel the worst and don't get better

at all.

If you are offended by this, please remember it's only because I care how you

all feel as I have been through this, too. It takes time to prepare stuff, so

on good days do meals for the fridge/freezer. I, too, have to-do lists that are

several years old but have been too busy taking care of the in-law family stuff.

Now that is settled I am working on our house and lives, so there is

improvement. I am doing things I haven't done for the past four years now. I

also notice the things I used to do 12 years ago that I am no longer capable of

doing even if I wanted to, but the journey continues and I am getting better. A

friend told me when I started getting better, it will take that many years of my

age divided by ten (so I started at 50 so it will take me 5 years and I've

already done 2 so have 3 more to go~I like this theory). I hope this helps any

of you.

in La Selva Beach

on Recuperation since January 13, 2005 and a huge improvement even with the food

allergy diet and antivirals.

Re: Re: Digest Number 4256

Yeah, after 26 yrs of it, I can't find my list of what to do when I 'get well'

either. I'm pretty sure the job I had has filled by now :-), the career field

changed to where I'm now an obsolete dinosaur, past menopause, should have

grandkids but never had energy have KIDS, so 'when I get well' (where's the

cure??? ) life is not going to 'pick up where it left off'. We have to make the

best of what we have and find ways to live with it.

Marcia

I am glad there is someone around to help me set my thinking/caring

priorities.

" When I get well??? " I have been chronic for 24+ yrs. Before that

intermittent for about 20 yrs. Mostly all I get is tireder.

A

[Guest guest]

My husband has diabetes now so we eat very healthy to keep his sugar normal, but

we didn't eat 'junk' before that either, he got it from too much fruit juicepop,

and gatorade and sugary drinks. I don't have much energy but I've always cooked

healthy food and fixed fresh salads, eat raw nuts, flax seeds, sunflower seeds,

etc. Been there/done it. Doesn't cure me, but I eat healthy because its the

right thing to do. Most the cfs patients I know of eat healthier than any

patient group or normals group I know of.

Marcia

Many of you have no energy to cook or prepare food, but try hard to be good

to yourself with what you eat. If you are eating fast foods, takeout, processed

foods, lots of sugar (cookies, candy, other sweets), diet sodas or caffeine, or

chips or whatever~you are killing yourself with the junk and additives they put

in our foods. Try to stay away from all this stuff and eat fresh fruits and

veggies, raw unsalted nuts (no oils or processed salts) and if possible organic

foods. If you eat meat or eggs, try to get stuff that hasn't been fed

antibiotics or hormones. Keep your meals simple, don't mix a lot of different

foods or things together, eat roughage to keep your bowels moving properly, and

I believe you will notice a huge difference. I notice when I eat badly I feel

badly; those I have talked to who are sitting all day eating bags of cookies,

candy and chips feel the worst and don't get better at all.

If you are offended by this, please remember it's only because I care how you

all feel as I have been through this, too. It takes time to prepare stuff, so

on good days do meals for the fridge/freezer. I, too, have to-do lists that are

several years old but have been too busy taking care of the in-law family stuff.

Now that is settled I am working on our house and lives, so there is

improvement. I am doing things I haven't done for the past four years now. I

also notice the things I used to do 12 years ago that I am no longer capable of

doing even if I wanted to, but the journey continues and I am getting better. A

friend told me when I started getting better, it will take that many years of my

age divided by ten (so I started at 50 so it will take me 5 years and I've

already done 2 so have 3 more to go~I like this theory). I hope this helps any

of you.

in La Selva Beach

[Guest guest]

" I don't have much energy but I've always cooked healthy food and fixed fresh

salads, eat raw nuts, flax seeds, sunflower seeds, etc. Been there/done it.

Doesn't cure me, but I eat healthy because its the right thing to do. "

Funny; I was gonna say the same been there, etc. I certainly can't say " always. "

I used to have nearly the world's worst diet. Switching hasn't cured me either,

but I sure can tell a difference.

Adrienne

[Guest guest]

-

When I first got CFS, the first 4 years or so, I would have really

bad relaplses, be unable to eat and lose 7-8 pounds per relapse.

I would try to regain the weight by eating candy like M & Ms, because

I didn't know any better. Now that I have cut out refined sugar,

I can snow ski (a little bit), and mow the yard if I take breaks,

among other activities. Plus, I still work. So FWIW, here is

another testimonial about diet being very important. Your comment

about roughage/bowels is very accurate, IMO. I would be interested

to know what kind of antivirals you took. I only took

acyclovir twice, but that has been ten years ago at least. Thanks,

Mike C. (48 and PWC for 12 years)

> Marcia/Adrienne and others re: When I get Well~

>

> Go ahead and think of the future as you do have one.

>

> Our symptoms wax and wane like when we/others have the flu~we have

a couple hours of energy and then we have to rest for a couple of

hours (or more). I am 52 years young (I especially like adding the

young part thanks to another sufferer's suggestion) and have had

CFS/FMS for more years than I know (as a child most likely). Some

years (many) it's worse but I have been so much better since I have

been eating better (again). Yeah, I had three months where I was a

couch potato along with the tator tots who joined me to sit all day

and watch TV when I had bronchial pneumonia and couldn't move (and

did you know that most programs are geared for the eighth grade

level~can you feel yourself getting dumber watching some shows?).

However, for me the diet is the key that helped me get up and get

moving (Dantini protocol of food allergy rotation diet, along with

some heavy antivirals). Many of you have no energy to cook or

prepare food, but try hard to be good to yourself with what you

eat. If you are eating fast foods, takeout, processed foods, lots

of sugar (cookies, candy, other sweets), diet sodas or caffeine, or

chips or whatever~you are killing yourself with the junk and

additives they put in our foods. Try to stay away from all this

stuff and eat fresh fruits and veggies, raw unsalted nuts (no oils

or processed salts) and if possible organic foods. If you eat meat

or eggs, try to get stuff that hasn't been fed antibiotics or

hormones. Keep your meals simple, don't mix a lot of different

foods or things together, eat roughage to keep your bowels moving

properly, and I believe you will notice a huge difference. I notice

when I eat badly I feel badly; those I have talked to who are

sitting all day eating bags of cookies, candy and chips feel the

worst and don't get better at all.

>

> If you are offended by this, please remember it's only because I

care how you all feel as I have been through this, too. It takes

time to prepare stuff, so on good days do meals for the

fridge/freezer. <<snip<<<<

[Guest guest]

When I get well I want to hike the Pacific Rim Trail.

Cort

Schmidt <schmidtmba@...> wrote:

Marcia/Adrienne and others re: When I get Well~

Go ahead and think of the future as you do have one.

Our symptoms wax and wane like when we/others have the flu~we have a couple

hours of energy and then we have to rest for a couple of hours (or more). I am

52 years young (I especially like adding the young part thanks to another

sufferer's suggestion) and have had CFS/FMS for more years than I know (as a

child most likely). Some years (many) it's worse but I have been so much better

since I have been eating better (again). Yeah, I had three months where I was a

couch potato along with the tator tots who joined me to sit all day and watch TV

when I had bronchial pneumonia and couldn't move (and did you know that most

programs are geared for the eighth grade level~can you feel yourself getting

dumber watching some shows?). However, for me the diet is the key that helped

me get up and get moving (Dantini protocol of food allergy rotation diet, along

with some heavy antivirals). Many of you have no energy to cook or prepare

food, but try hard to be good to yourself with what you

eat. If you are eating fast foods, takeout, processed foods, lots of sugar

(cookies, candy, other sweets), diet sodas or caffeine, or chips or whatever~you

are killing yourself with the junk and additives they put in our foods. Try to

stay away from all this stuff and eat fresh fruits and veggies, raw unsalted

nuts (no oils or processed salts) and if possible organic foods. If you eat

meat or eggs, try to get stuff that hasn't been fed antibiotics or hormones.

Keep your meals simple, don't mix a lot of different foods or things together,

eat roughage to keep your bowels moving properly, and I believe you will notice

a huge difference. I notice when I eat badly I feel badly; those I have talked

to who are sitting all day eating bags of cookies, candy and chips feel the

worst and don't get better at all.

If you are offended by this, please remember it's only because I care how you

all feel as I have been through this, too. It takes time to prepare stuff, so

on good days do meals for the fridge/freezer. I, too, have to-do lists that are

several years old but have been too busy taking care of the in-law family stuff.

Now that is settled I am working on our house and lives, so there is

improvement. I am doing things I haven't done for the past four years now. I

also notice the things I used to do 12 years ago that I am no longer capable of

doing even if I wanted to, but the journey continues and I am getting better. A

friend told me when I started getting better, it will take that many years of my

age divided by ten (so I started at 50 so it will take me 5 years and I've

already done 2 so have 3 more to go~I like this theory). I hope this helps any

of you.

in La Selva Beach

on Recuperation since January 13, 2005 and a huge improvement even with the food

allergy diet and antivirals.

Re: Re: Digest Number 4256

Yeah, after 26 yrs of it, I can't find my list of what to do when I 'get well'

either. I'm pretty sure the job I had has filled by now :-), the career field

changed to where I'm now an obsolete dinosaur, past menopause, should have

grandkids but never had energy have KIDS, so 'when I get well' (where's the

cure??? ) life is not going to 'pick up where it left off'. We have to make the

best of what we have and find ways to live with it.

Marcia

I am glad there is someone around to help me set my thinking/caring

priorities.

" When I get well??? " I have been chronic for 24+ yrs. Before that

intermittent for about 20 yrs. Mostly all I get is tireder.

A

[Guest guest]

Marcia: Good for you eating healthy!!! My son always teases me, " Mom, you eat

all the healthy foods and take supplements and you are sicker than any of us. "

So, go figure~why should we be sicker than some. These ailments affect even

those of us who eat better than most. Just think what we'd be like if we didn't

eat healthy the way we do. I have seen many people in that boat, though~a

friend is really worse than I am because she eats lots of " junk " food. As I

said, I hope you weren't offended~just want others to feel better~and I am not

being critical in any way and am not the kind to try to upset anyone. Some

people I have met just aren't educated into what is going into the American diet

and all the additives, many have never read food labels or understood what's in

things. My husband also has diabetes and chooses to eat the fast foods and

junk food diet even though he will eat what I cook (when I can) so I try my best

to balance it out. I can sure tell the difference when he's eating poorly.

Best wishes for better days ahead for you and your family. in La Selva

Beach CA

Re: Re: Getting Well

My husband has diabetes now so we eat very healthy to keep his sugar normal,

but we didn't eat 'junk' before that either, he got it from too much fruit

juicepop, and gatorade and sugary drinks. I don't have much energy but I've

always cooked healthy food and fixed fresh salads, eat raw nuts, flax seeds,

sunflower seeds, etc. Been there/done it. Doesn't cure me, but I eat healthy

because its the right thing to do. Most the cfs patients I know of eat healthier

than any patient group or normals group I know of.

[Guest guest]

My son always teases me, " Mom, you eat all the healthy foods and take

supplements and you are sicker than any of us. " So, go figure~why should we be

sicker than some.

I can't tell you how many times I'd have these exact thoughts!!! its not

faiiiiir!!!! LOL

As I said, I hope you weren't offended~just want others to feel better~and I am

not being critical in any way and am not the kind to try to upset anyone. Some

people I have met just aren't educated into what is going into the American diet

and all the additives, many have never read food labels or understood what's in

things.

not offended at all, thanks for sharing what helps you because it may help

another!

Good luck with the diabetic husb! Its a challenge and sure made my life a lot

more work, but I'm sure the changes will be good for me too in the long run.

Marcia

[Guest guest]

Mike C: Thank you for the information on your life. It is very interesting to

see where people are coming from and what progress they've made. Some of us

would have liked the weight loss~I gained weight because I was eating everything

in sight and was so hungry. I was on a vegetarian diet and everything I was

eating I was allergic to, so it was making me sicker and hungrier and gain

weight. Now that I am more balanced I am doing better (lost 40 lbs, regained 10

which is okay).

The antiviral prescribed by Dr. Dantini www.drdantini.com is Valtrex. He had me

take 3 one mg tabs per day, along with two Zantac 300 mg (one am one hour before

eating, and one pm one hour before eating) to buffer the stomach. It is rather

expensive if you don't have insurance ($600/month just for the Valtrex) but it

helped the viruses. I was having sore throats and sore, swollen glands (from

the viruses) which are much better. If I feel my throat glands getting sore or

feel like I am coming down with something I am to take the meds for 2-3 days to

give my system a boost, and that is a help. I spent six months on the food

allergy diet and antivirals before I noticed a huge difference, but that seventh

month I got more done than I had the past two years. So it was worth it to me.

I do have to watch my food diet carefully. If and when I cheat (I do on

occasion) I pay for it either throwing up that night or I get such bad brain fog

and become quite irritable and bitchy over trivial things (or when our teenage

son pushes my buttons). So I try really hard to stick to my diet and find my

mental attitude is much smoother and people around me happier too. Other things

affect me, also, such as the weather (I ached horridly when this stormy weather

hit), sitting too long in the car, working too hard at our school cafeteria or

doing other chores too long (gardening or vacuuming). I have to balance my

energy levels and it's hard to do when there is so much to do. My employers at

the private boarding school I work at are very understanding (we are all like

family and protect each other) and let me do only what I can and work just part

time (I substitute teach, go on field trips, fill in for cafe workers when they

take a day off, schedule the gate security workers for the campus to protect our

property and private beach access, etc.). I just filled up my July calendar

this week and hope I'm not going to overdo it but everyone else needs vacation

time and the campus still have things going on that require supervision workers.

in La Selva Beach CA

Re: Getting Well

-

When I first got CFS, the first 4 years or so, I would have really

bad relaplses, be unable to eat and lose 7-8 pounds per relapse.

I would try to regain the weight by eating candy like M & Ms, because

I didn't know any better. Now that I have cut out refined sugar,

I can snow ski (a little bit), and mow the yard if I take breaks,

among other activities. Plus, I still work. So FWIW, here is

another testimonial about diet being very important. Your comment

about roughage/bowels is very accurate, IMO. I would be interested

to know what kind of antivirals you took. I only took

acyclovir twice, but that has been ten years ago at least. Thanks,

Mike C. (48 and PWC for 12 years)

> Marcia/Adrienne and others re: When I get Well~

>

> Go ahead and think of the future as you do have one.

>

> Our symptoms wax and wane like when we/others have the flu~we have

a couple hours of energy and then we have to rest for a couple of

hours (or more). I am 52 years young (I especially like adding the

young part thanks to another sufferer's suggestion) and have had

CFS/FMS for more years than I know (as a child most likely). Some

years (many) it's worse but I have been so much better since I have

been eating better (again). Yeah, I had three months where I was a

couch potato along with the tator tots who joined me to sit all day

and watch TV when I had bronchial pneumonia and couldn't move (and

did you know that most programs are geared for the eighth grade

level~can you feel yourself getting dumber watching some shows?).

However, for me the diet is the key that helped me get up and get

moving (Dantini protocol of food allergy rotation diet, along with

some heavy antivirals). Many of you have no energy to cook or

prepare food, but try hard to be good to yourself with what you

eat. If you are eating fast foods, takeout, processed foods, lots

of sugar (cookies, candy, other sweets), diet sodas or caffeine, or

chips or whatever~you are killing yourself with the junk and

additives they put in our foods. Try to stay away from all this

stuff and eat fresh fruits and veggies, raw unsalted nuts (no oils

or processed salts) and if possible organic foods. If you eat meat

or eggs, try to get stuff that hasn't been fed antibiotics or

hormones. Keep your meals simple, don't mix a lot of different

foods or things together, eat roughage to keep your bowels moving

properly, and I believe you will notice a huge difference. I notice

when I eat badly I feel badly; those I have talked to who are

sitting all day eating bags of cookies, candy and chips feel the

worst and don't get better at all.

>

> If you are offended by this, please remember it's only because I

care how you all feel as I have been through this, too. It takes

time to prepare stuff, so on good days do meals for the

fridge/freezer. <<snip<<<<

This list is intended for patients to share personal experiences with each

other, not to give medical advice. If you are interested in any treatment

discussed here, please consult your doctor.

------------------------------------------------------------------------------

[Guest guest]

> When I get well I want to hike the Pacific Rim Trail.

> Cort

Excellent choice!

That's exactly where I went.

I can send you pictures.

-

[Guest guest]

Marcia: Thanks for responding so nicely. I was worried I had upset the apple

cart and guess I was tired this week. Yeah, why do we have it and others who

eat horridly are well and live forever? One of the many questions mankind will

never answer. Yeah, hubbies are a challenge with their dietary issues. It's so

hard to feed adults when they'd rather indulge (but we do too). My

father-in-law has diabetes 2, clinical depression & panic/anxiety attacks, and

food allergies and eats a horrid diet. I spent a lot of time making special

foods for him, but with all his problems he lets them sit in the fridge till

they rot or forgets to take them out of the freezer, says he can't stand up long

to cook something or microwave it (what's two minutes!!!) so he eats out (bad

fast food) cuz it's hot and he doesn't have to prepare it. So I gave up and

just let him make his choices which is killing him. He drinks 4 diet dr pepper

a day for the caffeine~the artificial sugar and the caffeine make him worse but

he doesn't get it. He can't do wheat but he eats white processed bread products

cuz he says it sets better with him; he just doesn't get it. But he's 74 so

it's his choice and he won't live long~his feet are already numb, no feeling,

wierd colors, has had lasik surgery for eye problems, etc. We do what we can

for him, try to help him make better choices, but then let him do what he wants.

He's happier and it's less stress for us.

in La Selva Beach CA

Re: Re: Getting Well

My son always teases me, " Mom, you eat all the healthy foods and take

supplements and you are sicker than any of us. " So, go figure~why should we be

sicker than some.

I can't tell you how many times I'd have these exact thoughts!!! its not

faiiiiir!!!! LOL

As I said, I hope you weren't offended~just want others to feel better~and I

am not being critical in any way and am not the kind to try to upset anyone.

Some people I have met just aren't educated into what is going into the American

diet and all the additives, many have never read food labels or understood

what's in things.

not offended at all, thanks for sharing what helps you because it may help

another!

Good luck with the diabetic husb! Its a challenge and sure made my life a lot

more work, but I'm sure the changes will be good for me too in the long run.

Marcia

[Guest guest]

,

this is what I have a hard time with. My husbs Dr, diabetic nurse and

nutritionist were totally thrilled that we got his sugar from 500 when diagnosed

to now the fasting rate in the 70s to 90s on oral med and he had to quit some of

that because his sugar was going to low. Its been a LOT of Xtra work for me,

making his lunches for work with fresh veggies cut up, raw nuts etc and no more

packaged (read 'easy') foods with too many carbs. I told them all, just give me

something that can be treated and we can do it! NOT like the stupid illness I

have where changing diet or other factors may help a little but not enough to

change my life or get me to work. HIs Dr said that we are his 'stars' for

getting this under control so quickly and he's doing so well, because something

like only 3 percent of patients diag with diabetes will make those necessary

changes. The medicines can help but the diet MUST change in diabetics or the

future is grim. (blindless, foot amputations, heart attacks, strokes,

neuropathies, etc). Its so hard to watch those who choose to take that road

instead of just changing their diet and giving up sugar and high carbs. And

here we are, we try so hard to do everything to get well, try every supplement,

read all the research, go to every Dr, etc, but we don't have a plan that will

turn our illness around like they can if they 'choose' to. Its got to be

frustrating for you to watch!

Marcia

My father-in-law has diabetes 2, clinical depression & panic/anxiety attacks,

and food allergies and eats a horrid diet. I spent a lot of time making special

foods for him, but with all his problems he lets them sit in the fridge till

they rot or forgets to take them out of the freezer, says he can't stand up long

to cook something or microwave it (what's two minutes!!!) so he eats out (bad

fast food) cuz it's hot and he doesn't have to prepare it. So I gave up and

just let him make his choices which is killing him. He drinks 4 diet dr pepper

a day for the caffeine~the artificial sugar and the caffeine make him worse but

he doesn't get it. He can't do wheat but he eats white processed bread products

cuz he says it sets better with him; he just doesn't get it. But he's 74 so

it's his choice and he won't live long~his feet are already numb, no feeling,

wierd colors, has had lasik surgery for eye problems, etc. We do what we can

for him, try to help him make better choices, but then let him do what he wants.

He's happier and it's less stress for us.

in La Selva Beach CA

Re: Re: Getting Well

My son always teases me, " Mom, you eat all the healthy foods and take

supplements and you are sicker than any of us. " So, go figure~why should we be

sicker than some.

I can't tell you how many times I'd have these exact thoughts!!! its not

faiiiiir!!!! LOL

As I said, I hope you weren't offended~just want others to feel better~and I

am not being critical in any way and am not the kind to try to upset anyone.

Some people I have met just aren't educated into what is going into the American

diet and all the additives, many have never read food labels or understood

what's in things.

not offended at all, thanks for sharing what helps you because it may help

another!

Good luck with the diabetic husb! Its a challenge and sure made my life a lot

more work, but I'm sure the changes will be good for me too in the long run.

Marcia

[Guest guest]

Marcia: Kudos to you and your husband for being both willing to work on dietary

changes. I know how hard it is for you being tired all the time, too, to do the

extra work. It will be worth it in the long run. Be sure to keep him away

from the artificial sugars~a little (yes, LITTLE) real sugar is much better than

the pink packet stuff and splenda. The artificial stuff kills more than it

helps but I can't get my father-in-law off it. Old mindsets are hard to change.

So he will have amputations unless he dies before that.

My husband's interest in changing his diet fluctuates depending on his stress

levels and those of his work and father's stress levels~so he often foregoes any

dietary changes because he can't deal with that and the other stressors. So, he

will continue to be overweight and will have problems in the future. He is

being an ostrich (hiding his head in the sand and ignoring the issues). I have

offered but he is going through mid-life crisis time (turning 51 this month) and

working on control issues~when he was growing up he was not allowed an opinion

(his dysfunctional mother) so now he is trying to make his own choices and I

have to let him, good or bad. He is going to counseling for grieving since he

lost his mother, sister and grandmother in an 18-month period and is having a

hard time (he had to give permission to disconnect his sister and wait for her

to flat-line). We are parenting his dad more than being the children, so that's

tough, too. Like everything else we'll get through this, too, but it's hard in

the meantime. I guess this is what builds character and understanding.

in La Selva Beach CA

Re: Re: Getting Well

,

this is what I have a hard time with. My husbs Dr, diabetic nurse and

nutritionist were totally thrilled that we got his sugar from 500 when diagnosed

to now the fasting rate in the 70s to 90s on oral med and he had to quit some of

that because his sugar was going to low. Its been a LOT of Xtra work for me,

making his lunches for work with fresh veggies cut up, raw nuts etc and no more

packaged (read 'easy') foods with too many carbs. I told them all, just give me

something that can be treated and we can do it! NOT like the stupid illness I

have where changing diet or other factors may help a little but not enough to

change my life or get me to work. HIs Dr said that we are his 'stars' for

getting this under control so quickly and he's doing so well, because something

like only 3 percent of patients diag with diabetes will make those necessary

changes. The medicines can help but the diet MUST change in diabetics or the

future is grim. (blindless, foot amputations, heart a

Marcia

[Guest guest]

Re: Re: Getting Well

Marcia: Kudos to you and your husband for being both willing to work on

dietary changes. I know how hard it is for you being tired all the time, too,

to do the extra work. It will be worth it in the long run.

,

Thanks so much for the kudos :-) It feels good to know somebody understands

just how hard it was for me to turn this around for him! I'm the one that does

all the shopping,fixes all meals, makes his lunches to take to work, all he has

to do is 'eat it' and get better. But I'm so thankful its worked. I had one of

the worst winters I've ever had, and I'm sure that the added stress from the

husbs near death experience and then nurturing him back to health really took

its toll on me. I had a nasty flu 4 times this winter, finally had to get some

antbx from a dr because I just could barely go on. After I started the vite D

it increased my endurance enough that now I can do the walk for one mile a day

and it does'nt bother me much but it was killing me last winter and the husb

wouldn't do it unless I went with him.

I have been to a couple different dentists this spring/summer and last week

saw the final one and the news is NOT good. I knew that all the mercury I had

was bad, and I have a big cracked merc filling and some chipped large ones that

need to be adressed. But even worse, I'm allergic to the bridge piece that some

idiot put in my mouth about 12 yrs ago. Its caused infection at the gums on both

the front and back sides of the teeth (the bridge is 4 bottom front teeth). It

does not fit so its ruined my jaw and my bite, I have so much pain from the

whole mess. Also I have two crowns labeled by this 30yr merc free veteran

dentist as made of unidentifiable 'scary metal'. One is seated right next to a

gold crown which he said virtually has made a 'battery in my mouth'. I said do

you mean the galvanic currents I recently read about? Yes. NO wonder I can't

ever sleep! These crowns were done maybe 5 yrs into CFS and shortly after that

is when I developed the prob of not being able to sleep. The bridge piece was

done 12 yrs ago, about the time I developed FM. My tongue has been cracked and

burning, very painful and my lower lip very swollen, dry and burning ever since

it went in. I knew I couldn't afford to fix it, cost 2200 back then to put it

in, and thats the problem now. I told the dentist we need to rip all 4 teeth out

and do a partial plate. He said you won't be happy, never get it to fit right

and you'll never wear it, well, at least I could get some relief from the pain

in my mouth if I could take it out at night. Right now because the bridge is too

big, I can't bite down correctly or even relax my jaw in the normal position

because its in the way. This has caused horrible jaw probs. He wants to do

implants and correct my bite, and 'fix' everything and it would cost 30,000. Of

course it might as well be a million. I was so overwhelmed by all of this

horrible news that I kinda knew in the back of my mind that I cried in his

office and embarrassed myself. I'll just do what I can do and thats going to

have to be pull out those teeth and get a partial plate, I can't imagine it

could be more miserable that what I've suffered the last 12 yrs. Maybe my jaw

will correct itself then and not need the orthotic plastic device they want me

to get and wear at night and all during the day when I can. We didn't even GET

to the mercury problems yet! Even patching/piecemealing it into something better

will cost 7 or 8K sounds like, my insurance will pay for $1000 a year, period.

I just dont' know how I'm going to get this all done and get relief from this

misery. But the dental profession is going to have a LOT to answer for for the

hell and misery they have caused people with their cavalier attitudes about

patients who have been damanged, lives miserably affected so they can rake in

the profits.

At least I've finally found a dentist with some experience in all of this to

know what he's doing, altho he's a bit 'different', he does not rush the patient

and asks what you feel, think and want! Amazing! The problem is what I want is

my mouth back the way it was before these dentists in my past ruined it! And

now I (who am to ill to work now)am supposed to come up with this kind of money

to undo the damage done by them!!! Life is SO unfair.

I am wondering now how much FM and other conditions really is caused not just

by mercury but by the combinations of other metals in our mouths and the

reactions they make synergistically and other things these dentists are doing.

I did have the Clifford Dental Materials reactivity test done so they won't be

using anything else in my mouth that I'm allergic to or have bad reactions to

hopefully, I will get those results tomorrow from the ND, and hopefully another

Myers cocktail, the first one did help and I'm on empty again.

The immunoligist had put my on Doxy a couple weeks before this dental visit

and I'd also had a course of URI drugs recently before that, so the mouth

infection is whats there after all the antibx. Scary. The first dentist had

said everything looked FINE to her! (course she thinks merc is safe, the more

the better)

Will keep everyone posted, this is going to go very slow (years)!

Marcia

[Guest guest]

>> That's what the doctor said. I still think I'll wait a bit. People

> with RA can and do get well.

Boy, that seems like a pipe dream to me right now, I sure hope you're

right