Re: Welcome to all the new members!

[Guest guest]

thanks for your welcome...i'm sorry to hear that you have been going through

a tough time lately, i do hope that things improve for you, hope to speak

with you sometime.

julie

x

[Guest guest]

Annie,

my heart goes out to you. I was upset about losing my 30s to RA but

to get lupus/fibro at 26 years old is unthinkable to me.

I don't have much to add. I think all of the important points have

been covered by everyone else. I didn't have much success with many

of the meds including Ultram only it worked but more like on my

mentality. My dreams were so morbid and vivid that I flushed the

entired bottle right away so that I wouldn't be tempted to take them

with another flare. I have only been able to tolerate ibuprofen

(motrin) for pain and it is the same as advil in the store so you

know not much pain was lifted from that.

I know it can be really scary. And happy that you have an early

diagnosis -- now they can try to slow down the progression of the

diseases sooner.

My daughter regressed when she was almost 2 I developed RA shortly

after that. So I had 11 years of changing diapers and lifting her

while fighting RA. It was tough but we moms are tough and will do

anything for our children regardless of our pain level. Just

surround yourself with positive people, people who aren't afraid of

the condition and who will help out without you having to convince

them you are in pain, people who will help around the house, clean a

little or babysit or run errands for you, or hire a Mother's helper

to watch the baby and help out with the cleaning occasinally. Just

mainly so you don't over do it, can get to you appts, take care of

yourself, and get plenty of rest. Don't forget to enjoy life in

between the aches and pains as well which with a little one I am sure

you will.

peace and healing,

Ebony

[Guest guest]

Thank you everyone for the support. My Rheumy called me back today and

apologized for being too busy to call me back. She gave me vicodin to

take at night and wants to see me in her office tomorrow to go over

test results. Please pray that all goes well. (if you pray because I

don't want to offend anyone who doesn't) I also called and made an

appt. to see a pain specialist that my aunt goes to. She has

scleroderma and has found that it's helpful. I look farward to being

here more often.

Annie