Re: to Diane, diagnosed at 21

[Guest guest]

HI Diane,

Seems Im a few days behind on the conversation

around here, but I wanted to let you know that I was

diagnosed at 25, but started feeling the effects about

23. (I'm now 32.) They initailly started me on

Plaquinal, and it did hold things at bay for a while.

For some it can be a permenant solution, but if not

they have a whole arsenal of things out there for you

to try. (You may have noticed by reading all the

messages from this group.) I'm sorry to hear that it

had to happen to you so early, but dont worry, there

is a regular life for a 20-something after

R.A.....just somedays it's a bit slower-going. Please

let me know if you want any insights about being an

achey, but happenin' gal in her twenties! ; ). All

jokes aside, I hope all is well.....or atleast going a

bit better.

sincerely,

--- Ebony <stillbreathing29@...> wrote:

> Bonnie,

>

> I think the information at emedicine.com on lupus is

> helpful. I will

> paste the address below. It did go on to say the

> symptoms for lupus

> can be general. To me that means it could be any of

> the autoimmune

> conditions so would definitely have to get it

> checked out but here's

> the address:

>

>

http://www.emedicinehealth.com/lupus_systemic_lupus_erythematosus/page

> 3_em.htm

>

>

> Bonnie, I am so sorry for the loss of your mom.

> You sound like you

> are on the right track, however. I am happy to hear

> you have

> addresses for safe houses. I recently lost my mom

> too, August 2005.

> Since then I have figured out so about my mom and

> forgiveness. We

> weren't as close as you and your mom. It was

> troubled at times. She

> felt I didn't understand her and vice versa, but we

> kept the

> communications lines open, plus you only get one

> mother so she is

> deeply missed. I called her weekly to divert my

> attention from the

> chaos and the pain. I miss my weekly talks, so I

> can truly imagine

> how you must feel without your mom. I think that

> type of support

> system is very important in life and it doesn't have

> to be blood

> relatives. Maybe since you are in counseling it can

> put you on the

> path for rebuilding another support system. Besides

> you aren't

> totally alone, you have us. But I know what you

> mean.

>

> Hopefully, you get to see a doctor soon. Get

> evaluated soon.

>

> Hang in there.

>

> peace and healing,

> Ebony

>

>

>

>

>

>