Guest guest Posted June 12, 2003 Report Share Posted June 12, 2003 Judy and group, Well seems like all the doctors are not in agreement, so I have written to the Pharmacist at Walgreens.com. For those of you that don't know about that it is a great service they offer. You can write to a pharmacist to get your drug related questions answered. Should have my answer in the next 24 hrs and will post it to the group. Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- MTX & Folic Acid Judy here, I saw my rhemy yesterday and asked the same questions regarding taking mtx and folic acid on the same day and got the same answer that it's just an old wife's tale. Althoug he tells me not to take my iron supplements on the same day. Hope everyone is having a good day. Judy, Collegeville, PA P.S. FYI for questions regarding CBC-my white count is always high even with Remicade, mtx and pred. but my sed rate came down. I did ask him about taking Folic Acid at the same time as MTX as I've noticed that a lot of us here do not take it on the same day due to lack of absorption of the MTX. He told me that was an old wife's tale and not to pay any attention to it and keep taking one a day like I do. So much for that....... ????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2003 Report Share Posted July 8, 2003 Hey , My doctor started me on the folic acid the same time as the MTX. I have never had any mouth sores, occasional sore on the side of my tongue, but that is not new. Congrats on no diebetes! Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- MTX & Folic Acid I asked my rhumy why that i only take my folic acid twice a week as i know some of you stated you take it everyday.He said that some people get the mouth sores pretty bad and thats prob why they take it everyday.Also he said the folic acid if i were to take it everday would make the MTX less effective.The one thing that seemed to make him excited lol was my blood pressure it musta been good he looked like he acually couldnt beleive the reading he got.Anyways back to the MTX been lucky soo far think ive been on it 2 months and i havent got the mouth sores.Do most people evenually get the mouth sores?Anyways take care all have a nice day. d.Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 Wow , That is what happens to my tongue, but they don't get that big. I increase my MTX this week so we will see what happens. I take 1 mg of folic acid and I also take the leukovorin, but 25mg, 4 times a day. My doc says that will help with the fatigue. It is a very high dose compared to what I have seen others here on. Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- MTX & Folic Acid I asked my rhumy why that i only take my folic acid twice a week as i know some of you stated you take it everyday.He said that some people get the mouth sores pretty bad and thats prob why they take it everyday.Also he said the folic acid if i were to take it everday would make the MTX less effective.The one thing that seemed to make him excited lol was my blood pressure it musta been good he looked like he acually couldnt beleive the reading he got.Anyways back to the MTX been lucky soo far think ive been on it 2 months and i havent got the mouth sores.Do most people evenually get the mouth sores?Anyways take care all have a nice day. d.Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 Wow , That is what happens to my tongue, but they don't get that big. I increase my MTX this week so we will see what happens. I take 1 mg of folic acid and I also take the leukovorin, but 25mg, 4 times a day. My doc says that will help with the fatigue. It is a very high dose compared to what I have seen others here on. Lynn Renae Dudenhoefer lynndude@... -On any path that you may stroll, -keep your angel in your soul! -- MTX & Folic Acid I asked my rhumy why that i only take my folic acid twice a week as i know some of you stated you take it everyday.He said that some people get the mouth sores pretty bad and thats prob why they take it everyday.Also he said the folic acid if i were to take it everday would make the MTX less effective.The one thing that seemed to make him excited lol was my blood pressure it musta been good he looked like he acually couldnt beleive the reading he got.Anyways back to the MTX been lucky soo far think ive been on it 2 months and i havent got the mouth sores.Do most people evenually get the mouth sores?Anyways take care all have a nice day. d.Canada Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 , when I was taking the MTX by pill form I never got the mouth sores. But he said that it does cut down on the other side effects also.. I am now on 25mgs of the shots once a week, but I still take the folic acid every day. I think that all the dr's look at it differently.. My dr said it doesn't do anything to the effective ness of the MTX, I asked him the same thing. weird.. lol.. Hope you are doing well take care.. Kelley in Colorado Kelleyak31@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2003 Report Share Posted July 9, 2003 > I think that all the dr's look at it differently.. My dr said it doesn't > do > anything to the effective ness of the MTX, I asked him the same thing. > weird.. And that's why doctors are *practicing* medicine. There are few definative answers, and when there are, one doc was paying attention in class, one was writing love letters and another was asleep. Funny how they all heard and understood different things ;-) (wsm311@...) Peace and Carrots Farm Vermont http://www.homestead.com/peaceandcarrots/ http://www.sHikingHiatus.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 I'm on plaquenil and according to my rheumatologist, it can take up to 6 months to know whether it's working or not. It's not the strongest of the drugs available but according to the doctor, it has the least and mildest side effects. Maybe you should give it another 6 weeks or so before switching? R ----Original Message Follows---- From: Pennie Kellett <penniepincher66@...> Reply- Subject: [ ] MTX & Folic Acid Date: Mon, 11 Dec 2006 11:57:05 -0800 (PST) Hello, I have been on Plaquenil now for 6 weeks and it hasn't done anything for me. Tomorrow I am going back to my GP who has a letter from my Rheummy to start me on MTX if the Plaquenil didn't work. Please can anyone give me any information before I see my local doctor. What dose would they normally start me on? Is it correct that you need to take folic acid with MTX (is this to reduce side affects)? How much folic acid? Does the doctor prescribe this, or is it something that you pick up over the counter at the chemist? Sorry for so many questions, and also the different terminology (I am Australian), but I just want to go armed with all the knowledge that I can. By the way thank you to everyone for such an informative site. It's really terrible how much you guys have to pay for medicine, and how your health insurance companies treat you. We have something called the PBS, and once a drug has been approved to be on the list the most we will ever pay is $33, also the health insurance co's don't get to choose what drugs and treatment we get. Everyone is Australia whinges about our health system, but I think we should be very greatful. Hope you all have a pain free day. Pennie Send instant messages to your online friends http://au.messenger. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 thank you, I guess I'll see what they say tomorrow. Pennie [ ] MTX & Folic Acid Date: Mon, 11 Dec 2006 11:57:05 -0800 (PST) Hello, I have been on Plaquenil now for 6 weeks and it hasn't done anything for me. Tomorrow I am going back to my GP who has a letter from my Rheummy to start me on MTX if the Plaquenil didn't work. Please can anyone give me any information before I see my local doctor. What dose would they normally start me on? Is it correct that you need to take folic acid with MTX (is this to reduce side affects)? How much folic acid? Does the doctor prescribe this, or is it something that you pick up over the counter at the chemist? Sorry for so many questions, and also the different terminology (I am Australian), but I just want to go armed with all the knowledge that I can. By the way thank you to everyone for such an informative site. It's really terrible how much you guys have to pay for medicine, and how your health insurance companies treat you. We have something called the PBS, and once a drug has been approved to be on the list the most we will ever pay is $33, also the health insurance co's don't get to choose what drugs and treatment we get. Everyone is Australia whinges about our health system, but I think we should be very greatful. Hope you all have a pain free day. Pennie Send instant messages to your online friends http://au.messenger . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 My doctor said it could take a couple months. I did see results in a round about way sooner than that. My chief complaint is what Raynauds is doing to my life. Some on this board said it is not for Raynauds. But I think it does help with that probably by reducing the cause. It is secondary to lupus and some other auto immune problems. As for directly effecting the rest of my problems, pain and such I don't seem to have any. I do have pain from the Raynauds so if it just helps that it still helps. Betty [ ] MTX & Folic Acid I have been on Plaquenil now for 6 weeks and it hasn't done anything for me. Tomorrow I am going back to my GP who has a letter from my Rheummy to start me on MTX if the Plaquenil didn't work. Please can anyone give me any information before I see my local doctor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 At the beginning when I knew I had RA, I kept getting sick with colds/sinus problems. I am not sure if it was from the medicine, etc. but the dr started me on folic acid and I have not been sick like that since (knock on wood). I have had colds, etc; however, not bad sinus infections. --- Rhonda <rhonda5003@...> wrote: > I'm on plaquenil and according to my rheumatologist, > it can take up to 6 > months to know whether it's working or not. It's > not the strongest of the > drugs available but according to the doctor, it has > the least and mildest > side effects. Maybe you should give it another 6 > weeks or so before > switching? > > R > > ----Original Message Follows---- > From: Pennie Kellett <penniepincher66@...> > Reply- > > Subject: [ ] MTX & Folic Acid > Date: Mon, 11 Dec 2006 11:57:05 -0800 (PST) > > Hello, > I have been on Plaquenil now for 6 weeks and it > hasn't done anything for me. > Tomorrow I am going back to my GP who has a letter > from my Rheummy to > start me on MTX if the Plaquenil didn't work. > Please can anyone give me any > information before I see my local doctor. What dose > would they normally > start me on? Is it correct that you need to take > folic acid with MTX (is > this to reduce side affects)? How much folic acid? > Does the doctor > prescribe this, or is it something that you pick up > over the counter at the > chemist? Sorry for so many questions, and also the > different terminology (I > am Australian), but I just want to go armed with all > the knowledge that I > can. > By the way thank you to everyone for such an > informative site. It's really > terrible how much you guys have to pay for medicine, > and how your health > insurance companies treat you. We have something > called the PBS, and once a > drug has been approved to be on the list the most we > will ever pay is $33, > also the health insurance co's don't get to choose > what drugs and treatment > we get. Everyone is Australia whinges about our > health system, but I think > we should be very greatful. Hope you all have a > pain free day. > Pennie > > Send instant messages to your online friends > http://au.messenger. > > [Non-text portions of this message have been > removed] > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Hi, Went to my GP today, who advises that my Rheumy has me on too low a dose. He has doubled it, so now I am on 400 mg a day. He doesn't hold out much hope that it will work, (though I hope otherwise). he said to give it a month and if it isn't working he is going to switch me to MTX. Here's hoping. Pennie [ ] MTX & Folic Acid > Date: Mon, 11 Dec 2006 11:57:05 -0800 (PST) > > Hello, > I have been on Plaquenil now for 6 weeks and it > hasn't done anything for me. > Tomorrow I am going back to my GP who has a letter > from my Rheummy to > start me on MTX if the Plaquenil didn't work. > Please can anyone give me any > information before I see my local doctor. What dose > would they normally > start me on? Is it correct that you need to take > folic acid with MTX (is > this to reduce side affects)? How much folic acid? > Does the doctor > prescribe this, or is it something that you pick up > over the counter at the > chemist? Sorry for so many questions, and also the > different terminology (I > am Australian), but I just want to go armed with all > the knowledge that I > can. > By the way thank you to everyone for such an > informative site. It's really > terrible how much you guys have to pay for medicine, > and how your health > insurance companies treat you. We have something > called the PBS, and once a > drug has been approved to be on the list the most we > will ever pay is $33, > also the health insurance co's don't get to choose > what drugs and treatment > we get. Everyone is Australia whinges about our > health system, but I think > we should be very greatful. Hope you all have a > pain free day. > Pennie > > Send instant messages to your online friends > http://au.messenger . > > [Non-text portions of this message have been > removed] > > > > > Quote Link to comment Share on other sites More sharing options...
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