Guest guest Posted November 15, 2002 Report Share Posted November 15, 2002 There is a nice " hepatitis " forum at http://www.medhelp.org/ with lots of supportive people who have Hepatitis C. I am sure they have lots of information for you and can help you more with this than we can (most of us have autoimmune hep, as mentioned previously). They are really a nice group of people, so give it a try! I have even seen some discussion of cryoglobunemia there. I am sure many here also have fibromyalgia, though, and can offer suggestions and help for that! Best, > I have hep c and am about to start the Peg injections. I also have > CFS/Fibromyalgia and cryoglobuninemia. anyone familiar with this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 20, 2006 Report Share Posted May 20, 2006 Becca... Welcome to the group. Delayed response, sorry...I only check this once a month. I hope that they have checked ALL your hormone levels. With you being hypo thyroid, AND the hysterectomy....along with the epilepsy meds. Maybe there is another hormone out of wack. What are the side effects of your epilepsy meds, perhaps that is causing the tierdness. I can tell the difference between thyroid related tierdness and other tierdness. I am careful to take my synthroid on an empty stomach, with a full glass of water, and waiting 30 minutes before eating, to make sure it is as effective as it can be. There is a long list of foods to avoid in order to keep your thyroid working at its highest level. Maybe if you did this you could boost your system?? Sorry I am not more help. > > Hello...My name is Becca and I am new to the group...Thought I would > introduce myself and tell you something about me. I was diagnoised hypo > about ten years ago after going to the doctor one day. I told her that > I was tired all the time. She drew some blood and when it came back it > showed that I was hypo. I have been taking .025 MCG of synthroid since. > I am still tired all the time. I sleep alot. But three years after I > was diagnoised with hypothyroidism, one day out of the blue, I had a > seizure, and then another. And I have been having them now for 7 years > and now have the diagnoises of epilepsy. So I have to take alot of > medication for that. So I dont know if my being tired comes from my > thyroid or my other meds. They always tell me my blood work comes back > normal. And they also say that they have to be careful on my dosage or > they will throw me into hyperthyroidism. Im tired of feeling like crap > all the time and dont know what to do. Im 33 and had a hysteroctemy a > year and a half a go because of endometrosis that kept coming back. > Anyone got any advise for me? Thanks for listening to me ramble > on...sorry about that...Becca. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2006 Report Share Posted December 11, 2006 Hello everyone... I'm new to the group....I joined a few weeks ago, but have not posted until now. I was officially diagnosed last Tuesday with RA. My Rheumatologist has put me on Mtx 7.5mg every Friday for two weeks and then 15mg every Friday thereafter. I am also on Folic Acid (Folpace). I had Chronic Pancreatitis for 9.5 years and ultimately had my pancreas removed and had the first islet cell transplant in the southeast for pancreatitis (they harvested my islet cells from my pancreas and put them in my liver). My question to the group is, does anyone know if there is a link between pancreatitis and rheumatoid arthritis or even a complete pancreatectomy (removal of the pancreas) and RA? Thank you for any help you can give! Robin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2006 Report Share Posted December 12, 2006 Welcome to the group, Robin! I don't know of a link between pancreatitis and rheumatoid arthritis itself; however, many of the drugs used to treat RA have been implicated in cases of pancreatitis. We do have one long-time member, Lynn (MeMom), who had RA first, then had pancreatitis. Her situation became so serious that she had to have part of her pancreas removed (Whipple procedure). Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Hello...new to the group > Hello everyone... > > I'm new to the group....I joined a few weeks ago, but have not posted > until now. > > I was officially diagnosed last Tuesday with RA. My Rheumatologist > has put me on Mtx 7.5mg every Friday for two weeks and then 15mg every > Friday thereafter. I am also on Folic Acid (Folpace). > > I had Chronic Pancreatitis for 9.5 years and ultimately had my > pancreas removed and had the first islet cell transplant in the > southeast for pancreatitis (they harvested my islet cells from my > pancreas and put them in my liver). My question to the group is, does > anyone know if there is a link between pancreatitis and rheumatoid > arthritis or even a complete pancreatectomy (removal of the pancreas) > and RA? > > Thank you for any help you can give! > > Robin Quote Link to comment Share on other sites More sharing options...
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