Re: ((((((Kathy in IL))))))

[Guest guest]

(((((Kathy)))))

I am so sorry to hear of all you have been going

through with your medications. There are new

medications out, Orencia is one, and maybe they might

be an option for you? I am sorry that you have had so

many bad reactions to the medications for RA, and it

must be so hard when it seems that you are running out

of options as far as meds are concerned. My prayers

are with you, kiddo, and I hope they can find

something that will help the RA, but not hurt you any

further.

Kathe in CA

--- kringlemom@... wrote:

> hey ebony. from what my dr says i did well on arava

> before until the raised

> the dosage. all i remember is a corporate office and

> holding on to the walls

> to get around because i was so dizzy. i tried to

> get into one of my rheumi's

> associates before my late may appt. she offered me

> several choices, but since

> i am now working 11-4, none of them fit. so i made

> an appt with my gp

> tuesday. maybe he can do something for me. i've

> taken enbrel before, they pulled me

> off because i was getting sick all the time and

> they mentioned sepsis. i was

> on remicade and broke out in hives on my 3rd iv.

> the arava made me dizzy, and

> well the mtx..... great run once i got used to it.

> i have an ulcer from

> taking ibuprofin for years and all the other

> nsaids. so it limits what i can

> now take.

>

> Kathy in IL

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Hi,

I know I don't post much, but my name is Janet, and I have a question. I

used to get hives all over everyday, and I would have to take zyrtec or they

would spread to my face. I haven't had hives in the past 6 months, not since

my sister moved into the house her and her husband bought. I used to take

aleve, but that made me break out in the hives. The question is, am I going to

be able to take some of the med. percribed for me, (once I get a med card and a

doctor) or will I be limited somewhat? Has anyone gone though this? Thanks

Kathe Sabetzadeh <lv2ryd@...> wrote: (((((Kathy)))))

I am so sorry to hear of all you have been going

through with your medications. There are new

medications out, Orencia is one, and maybe they might

be an option for you? I am sorry that you have had so

many bad reactions to the medications for RA, and it

must be so hard when it seems that you are running out

of options as far as meds are concerned. My prayers

are with you, kiddo, and I hope they can find

something that will help the RA, but not hurt you any

further.

Kathe in CA

[Guest guest]

she told me there was a new drug out at 6500/mo not sure if it is orencia or

not. thanks for the wishes

Kathy in IL

[Guest guest]

i take zyrtec and flonaise daily, they gave me benadryl when i took the

remicade, but i still brok e out in hives. i am still seeing the dr i had when i

had regular insurance. she does my exams and writes my scripts. then i have my

pcp run my lab work. i get a discount for being low income with them.

otherwise i'd have to lose my rheumi that i've had since 1997. the state of il

helps a lot with my meds, but i might lose that benefit next month too because

i

went over the income amounts last year by $300, so i applied and hope they

have a fee i can pay to keep the coverage. (the first year i paid $25 to get

the prescription coverage. it the covered drugs for my arthritis diabetes and

glaucoma only. everything else was cash. so i'd always ask for samples from

the dr's office.

Kathy in IL

[Guest guest]

not sure what enbrel is at now, but back 5-6 yrs ago. it was $1000/mo

Kathy in IL

[Guest guest]

yes it is unbelievable what people are forced to live on. actually according

to standards i am living well. i own my mobile home (well still paying

interest on it!!) also pay $600/mo for the land it sits on. i own 2 cars (one

my

son pays for) but i have phone, cable, and a cell phone. my parents pay for my

aol service, but it is cheaper to communicate this way since they moved to

florida.so i know i am very lucky and blessed. many people have nothing. i

even started to have some fun again as i started going to concerts again in

2004

after 6 yrs of not being able to do anything socially. i joined the fan club

for the band chicago and have met many friends. i can't go as often as they

do, or to the convention in vegas.but, i've been to 6 concerts to see them

and also some of the other local " oldies " chicago area bands (the buckinghams,

ides of march, cryan shames, styx) the styx show i won tickets for and one

of the chicago shows also was won. (see i got some luck left!!) but i

remember the days, sitting in my home, running a fever and being in so much

pain i

felt like all i ever did was watch the world go by thru my windows. . i hope

it doesn't revert back to that. i have my chicago concert 7/1/06 and i don't

want to miss that since the band members recognize me now too (that is so

cool!!) in the meantime i have increased my prednisone to 10 mgs a day.

Kathy in IL

[Guest guest]

Kathy:

$6500.00 a month?!!!! Wow!, why do these companies

insist on making drugs for RA that insurance companies

are going to balk at paying, and it's out of reach for

people without insurance? That is just awful, and I

thought Enbrel was bad!

Kathe in CA

--- kringlemom@... wrote:

> she told me there was a new drug out at 6500/mo not

> sure if it is orencia or

> not. thanks for the wishes

>

> Kathy in IL

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Hi Kathy:

That is unbelievable that you are basically penalized

for trying to work and bring home money to support

yourself. That is so wrong. I always try to get

samples from my doctor too. My first doctor, my GP

who left this area to go up north, kept me in

medications with the samples she got from the drug

reps - it was very helpful, and I really miss her. I

will keep you in my prayers that you continue to be

able to receive the insurance you have.

--- kringlemom@... wrote:

> i take zyrtec and flonaise daily, they gave me

> benadryl when i took the

> remicade, but i still brok e out in hives. i am

> still seeing the dr i had when i

> had regular insurance. she does my exams and writes

> my scripts. then i have my

> pcp run my lab work. i get a discount for being low

> income with them.

> otherwise i'd have to lose my rheumi that i've had

> since 1997. the state of il

> helps a lot with my meds, but i might lose that

> benefit next month too because i

> went over the income amounts last year by $300, so

> i applied and hope they

> have a fee i can pay to keep the coverage. (the

> first year i paid $25 to get

> the prescription coverage. it the covered drugs for

> my arthritis diabetes and

> glaucoma only. everything else was cash. so i'd

> always ask for samples from

> the dr's office.

>

> Kathy in IL

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

Hi Kathy:

That is so great that you have been able to go to

concerts again! I love Chicago, and know those other

" oldies " bands too lol. I hope that you are able to

go to and enjoy the concert in July. How cool is it

to win the Styx concert tickets, and be recognized by

the members of the Chicago band! You go girl!

Kathe in CA

--- kringlemom@... wrote:

> yes it is unbelievable what people are forced to

> live on. actually according

> to standards i am living well. i own my mobile home

> (well still paying

> interest on it!!) also pay $600/mo for the land it

> sits on. i own 2 cars (one my

> son pays for) but i have phone, cable, and a cell

> phone. my parents pay for my

> aol service, but it is cheaper to communicate this

> way since they moved to

> florida.so i know i am very lucky and blessed. many

> people have nothing. i

> even started to have some fun again as i started

> going to concerts again in 2004

> after 6 yrs of not being able to do anything

> socially. i joined the fan club

> for the band chicago and have met many friends. i

> can't go as often as they

> do, or to the convention in vegas.but, i've been to

> 6 concerts to see them

> and also some of the other local " oldies " chicago

> area bands (the buckinghams,

> ides of march, cryan shames, styx) the styx show i

> won tickets for and one

> of the chicago shows also was won. (see i got some

> luck left!!) but i

> remember the days, sitting in my home, running a

> fever and being in so much pain i

> felt like all i ever did was watch the world go by

> thru my windows. . i hope

> it doesn't revert back to that. i have my chicago

> concert 7/1/06 and i don't

> want to miss that since the band members recognize

> me now too (that is so

> cool!!) in the meantime i have increased my

> prednisone to 10 mgs a day.

>

> Kathy in IL

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

Kathe

" To ride a horse is to borrow freedom. "

__________________________________________________

[Guest guest]

the styx concertr was cool. but winning the preview show of chicago was so

much fun!! we went backstage and saw the trailers and wardrobes, heck we even

ended up on stage!!

i ended up being seen on the news segment and that's why the band remembers

me. now they call out to me from stage!! it is so much fun. i also e-mail with

nick who is a sub trombonist for them, carl (lead singer from the

buckinghams and bob stroud (local dj and lead singer for the cryan shames for 4

yrs

now. i am waiting for the latest copy of the chicago scrapbook to see if the

put

in my pictures i had taken with jason (bass player) and lee (trumpet player

extrodenaire!!) it should arrive any day now and i am excited!!

Kathy in IL

[Guest guest]

Kathi, THat sounds like GREAT fun! I love all those bands..I could not handle

going when I was at my most ill, but am hoping to be able to do more this

summer. We go to county fairs a lot for their concerts.

- In , Kathe Sabetzadeh <lv2ryd@...> wrote:

>

> Hi Kathy:

>

> That is so great that you have been able to go to

> concerts again! I love Chicago, and know those other

> " oldies " bands too lol. I hope that you are able to

> go to and enjoy the concert in July. How cool is it

> to win the Styx concert tickets, and be recognized by

> the members of the Chicago band! You go girl!

>

> Kathe in CA

>

> --- kringlemom@... wrote:

>

> > yes it is unbelievable what people are forced to

> > live on. actually according

> > to standards i am living well. i own my mobile home

> > (well still paying

> > interest on it!!) also pay $600/mo for the land it

> > sits on. i own 2 cars (one my

> > son pays for) but i have phone, cable, and a cell

> > phone. my parents pay for my

> > aol service, but it is cheaper to communicate this

> > way since they moved to

> > florida.so i know i am very lucky and blessed. many

> > people have nothing. i

> > even started to have some fun again as i started

> > going to concerts again in 2004

> > after 6 yrs of not being able to do anything

> > socially. i joined the fan club

> > for the band chicago and have met many friends. i

> > can't go as often as they

> > do, or to the convention in vegas.but, i've been to

> > 6 concerts to see them

> > and also some of the other local " oldies " chicago

> > area bands (the buckinghams,

> > ides of march, cryan shames, styx) the styx show i

> > won tickets for and one

> > of the chicago shows also was won. (see i got some

> > luck left!!) but i

> > remember the days, sitting in my home, running a

> > fever and being in so much pain i

> > felt like all i ever did was watch the world go by

> > thru my windows. . i hope

> > it doesn't revert back to that. i have my chicago

> > concert 7/1/06 and i don't

> > want to miss that since the band members recognize

> > me now too (that is so

> > cool!!) in the meantime i have increased my

> > prednisone to 10 mgs a day.

> >

> > Kathy in IL

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>

[Guest guest]

Just remember the cost of R & D to produce new drugs. (that's usually

what you're really paying for, not the materials themselves) In

Germany they put a cap on how much comapnies can charge for drugs.

The result? There are no new drugs being developed in Germany...

the companies can't afford to do it.

It's a complex problem, but I, for one, wouldn't want drug companies

to stop trying to develop new, safer, more effective meds for us!

>

> > she told me there was a new drug out at 6500/mo not

> > sure if it is orencia or

> > not. thanks for the wishes

> >

> > Kathy in IL

> >

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> Kathe

>

> " To ride a horse is to borrow freedom. "

>

>

>

> __________________________________________________

>