Guest guest Posted April 21, 2006 Report Share Posted April 21, 2006 Dennis, Knowledgeable ones on this list!! what did you mean by this?? do you mean because I do something ie folic acid differently to you, I am not knowledgeable??? --- Original Message ----- From: betnden@... Sent: Saturday, April 22, 2006 11:54 AM Subject: Re: [ ] folic acid/MTX With all the crap I listened to with my former Rummy, I'd investigate before I made any changes. First, I was told that since I took my MTX on Sunday, I had to take my blood test on Thursday, 4 days after the shot to let the blood settle and the test more accurate. Then, I was told that I had to do the blood test on Tuesday because they weren't in the clinic on Thursday and Friday. Also, there was no mention of Folic Acid, which was causing me problems. I finally found out the real facts here and adjusted my FA to work right. Whatever you do, do research as much as possible, and listen to the knowledgeable ones on this list! I take my FA every morning and don't stop on any day for any reason. Dennis [ ] folic acid/MTX > > > Hi all, > After reading some of the postings over the past few days, I am > wondering if I missed something vital. Are you not supposed to take folic > acid on the days you take MTX? I have been. I tried to call the dr > yesterday, still waiting for him to call me back. Any help from anyone out > there will help, I am scheduled to take the MTX with my dinner tonight. > Does taking them together really mess up the purpose of the MTX? Yikes!! > Thanks for any help, Peggy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 To Dennis~ Everyone on this list is knowledgeable. I'm a 30 year expert on prednisone, crohns, illio-colonic resection surgeries,MTX, RA, osteoporosis, Humira, and so many other drugs and procedures. I'm an expert where these things concern ME. I assume other's on here see themselves about the same. So when advice is given or stories are shared it's from non-professionals that have nothing to draw from but the benefit of their own personal experiences and anecdotal information. Doctors differ widely about testing and treatment. Does it mean that one is more knowledgeable than another? It could, or it could mean that they just have different experiences in treating patients, and more confidence in one approach over another. Most importantly, the info and advice you get from here are from people just like you and me. People that are trying to share their experiences as best they can with others and to get suggestions as well. Take what you need from here and throw away the rest. I had one doctor put me on MTX a year ago and my abdomen was beginning to be mishapen because of swelling of my liver...........he wouldn't listen to me or even look at me. So, I mentioned this to a nurse that was administering the shot (for some reason I always had to go in, though I've given myself many other shots over the past 30 years) and she basically whispered in my ear that I'm seeing the wrong doctor and that I need to see this particular doctor. She made the arrangements and the first thing he did was take me off MTX........... It's up to all of us to personally sift out what works for us. In the meantime we'll all hear suggestions or experiences that don't work for us or don't apply to us. I would caution anyone against veiled insults about the knowledge of others on this list. IAN [ ] folic acid/MTX > > > > > > Hi all, > > After reading some of the postings over the past few days, I am > > wondering if I missed something vital. Are you not supposed to take > folic > > acid on the days you take MTX? I have been. I tried to call the dr > > yesterday, still waiting for him to call me back. Any help from anyone > out > > there will help, I am scheduled to take the MTX with my dinner tonight. > > Does taking them together really mess up the purpose of the MTX? > Yikes!! > > Thanks for any help, Peggy > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 I don't feel that I said anything out of line, so there will be no apology from me. I said what I believe. So, maybe I'll just read and not pass on anything I learn. Dennis [ ] folic acid/MTX >> > >> > >> > Hi all, >> > After reading some of the postings over the past few days, I am >> > wondering if I missed something vital. Are you not supposed to take >> folic >> > acid on the days you take MTX? I have been. I tried to call the dr >> > yesterday, still waiting for him to call me back. Any help from anyone >> out >> > there will help, I am scheduled to take the MTX with my dinner >> tonight. >> > Does taking them together really mess up the purpose of the MTX? >> Yikes!! >> > Thanks for any help, Peggy >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 when advice > is given or stories are shared it's from non-professionals that have nothing > to draw from but the benefit of their own personal experiences and anecdotal > information. Ian, Don't sell us short. Many of us have done a lot of reading and research. I have a journalism degree and was well trained in research methods. Sierra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Dennis, sometimes what we say is interpreted in a way that was not intended when it is in writing . I have known you long enough to know you would never be insulting in any way shape or form. You are a valuable contributor to our list, so keep on passing on information that may well be of benefit to one or more of us. Hugs June [ ] folic acid/MTX >> > >> > >> > Hi all, >> > After reading some of the postings over the past few days, I am >> > wondering if I missed something vital. Are you not supposed to take >> folic >> > acid on the days you take MTX? I have been. I tried to call the dr >> > yesterday, still waiting for him to call me back. Any help from anyone >> out >> > there will help, I am scheduled to take the MTX with my dinner >> tonight. >> > Does taking them together really mess up the purpose of the MTX? >> Yikes!! >> > Thanks for any help, Peggy >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 Dennis, You said nothing out of line, so please don't feel that you did. We all have to remember that each and every one of us is dealing with a horrible disease that we take heavy duty meds for. Sometimes things are written in an email that can be misunderstood. With no facial expressions or tones of voices, it's easy to misread or miswrite. I've done it myself. Please continue to share your experiences with us. a On Apr 22, 2006, at 12:32 PM, betnden@... wrote: > I don't feel that I said anything out of line, so there will be no > apology > from me. I said what I believe. So, maybe I'll just read and not > pass on > anything I learn. > > Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 In a message dated 4/22/2006 1:08:01 PM Central Standard Time, juner24@... writes: Dennis, sometimes what we say is interpreted in a way that was not intended when it is in writing . I have known you long enough to know you would never be insulting in any way shape or form. You are a valuable contributor to our list, so keep on passing on information that may well be of benefit to one or more of us. Altho i havent know you very long, I agree with June. Please dont hold back that wonderfull advice you give hugs http://www1.myspace.com/julz2kidz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 In a message dated 4/22/2006 6:36:15 PM Central Standard Time, Matsumura_Clan@... writes: I don't believe that Dennis was trying to insult you. And, you're right, we do indeed benefit from hearing from a variety of members about what their rheumatologists are directing. May I suggest that we all put this episode behind us and try to give one another the benefit of the doubt? I sincerely hope you and Dennis will both continue to participate. I second that! http://www1.myspace.com/julz2kidz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 I feel the same way that June does, Dennis. Words on a computer screen can often be misinterpreted and taken the wrong way. One of the things I like about this list is the way that we all get along so well, without the petty arguing that I've seen on other lists. I hope you will continue to post. Sue On Saturday, April 22, 2006, at 01:59 PM, June Dixon wrote: > Dennis, sometimes what we say is interpreted in a way that was not > intended when it is in writing . I have known you long enough to know > you would never be insulting in any way shape or form. You are a > valuable contributor to our list, so keep on passing on information > that may well be of benefit to one or more of us. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 I thought that was the whole idea of this list passing on things we learn, our experiences and to give support to those who understand what we are going through ? that is what I was doing in my original message. I do not claim to know everything as I don't but I will no longer share in this group. [ ] folic acid/MTX >> > >> > >> > Hi all, >> > After reading some of the postings over the past few days, I am >> > wondering if I missed something vital. Are you not supposed to take >> folic >> > acid on the days you take MTX? I have been. I tried to call the dr >> > yesterday, still waiting for him to call me back. Any help from anyone >> out >> > there will help, I am scheduled to take the MTX with my dinner >> tonight. >> > Does taking them together really mess up the purpose of the MTX? >> Yikes!! >> > Thanks for any help, Peggy >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2006 Report Share Posted April 22, 2006 , I don't believe that Dennis was trying to insult you. And, you're right, we do indeed benefit from hearing from a variety of members about what their rheumatologists are directing. May I suggest that we all put this episode behind us and try to give one another the benefit of the doubt? I sincerely hope you and Dennis will both continue to participate. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org Re: [ ] folic acid/MTX Dennis > > I thought that was the whole idea of this list passing on things we learn, > our experiences and to give support to those who understand what we are > going through ? that is what I was doing in my original message. I do not > claim to know everything as I don't but I will no longer share in this > group. > Quote Link to comment Share on other sites More sharing options...
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