Re: Were pharma companies and authorities invited to join this support group?

[Guest guest]

no they haven't been invited. but come on, be realistic. do you

seriously think an fda official or pharm executive would join this

group? just the slightest accidental admission of guilt or wrongdoing

would open themselves up to a lawsuit. t's not worth the risk for them

to say anything.

vornan

>

> Has anybody invited the pharma companies or relevant government

> organisations to join this support group? And what was their answer?

> Communication with these groups is very important.

>

[Guest guest]

I see what you mean and I respect your opinion. But if these people

know this forum, they can at read these discussions.

And this 'pharma community' worldwide is large. It involves (I roughly

estimate) about fifty thousand staff employees. I think it is possible

that some of those people or their possibly well informed close

relatives are willing to join us anonymously with conscious

intentions. Some of these people will probably be worried if they will

know the rumours about PSSD. And they can possibly offer us valuable

information.

> do you

> seriously think an fda official or pharm executive would join this

> group?

[Guest guest]

Corrections

" Fifty thousand " should be " five thousand " .

" Conscious intentions " should be " conscientious intentions "

...............................................................

> And this 'pharma community' worldwide is large. It involves (I roughly

> estimate) about fifty thousand staff employees. I think it is possible

> that some of those people or their possibly well informed close

> relatives are willing to join us anonymously with conscious

> intentions.

[Guest guest]

What is big pharma going to do? Push more drugs? We already know about

Viagra, Cialis, Levitra, and big pharma has nothing more to offer.

They aren't interested in admitting that their defective drugs are

injuring and killing people. They don't employ legitamate respectable

scientists. And inviting big government? I don't know what country you

live in, but here in the USA, that would be no better than inviting a

bull in a china shop.

The department of homeland security doesn't even bother chasing

terrorists. They go around harrassing toy store owners, and opening

your mail if you order stuff from outside the country. After the

government passed H.R.1955, everbody is now a terrorist. Don't rattle

their cage. We've already been labeled with some kind of brain

disease, and they are more than willing to treat us as an inferior people.

>

> Has anybody invited the pharma companies or relevant government

> organisations to join this support group? And what was their answer?

> Communication with these groups is very important.

>

[Guest guest]

I am very critical about the policy of certain pharma companies and

the pharma policy of the current US government. But demonizing doesn't

solve the problem IMHO.

I try to be pragmatic and realistic. How can we officially reproach

the pharma companies about PSSD if we don't officially notify them of

our complaints? That is the official legal procedure. And in my

experience careful, systematic and well thought negotiations have

often proven effective in very serious conflicts.

And since the pharma companies are very influencial in the field of

SSRI research, negotiations with these companies may appear nessecary

to have PSSD professionally studied. Unless we start our own research

funding project, which requires an active financial organisation with

a very large amount of money. And we are not yet that far.

And without any communication with governments and politicians, we

would strongly diminish our influence.

> >

> > Has anybody invited the pharma companies or relevant government

> > organisations to join this support group? And what was their answer?

> > Communication with these groups is very important.

> >

>

[Guest guest]

" Unless we start our own research funding project, which requires an

active financial organisation with a very large amount of money. "

i think the correct research could prove these things are damaging in

this way then we could sue them. game over.

as far as they are concerned we are all psychiatric patents reporting

symptoms of a mental illness, that is there line and it wont deviate

until its made to!

im telling you this now and truly believe it, pay for one study and

get two lots of people half guys the other half girls to take these

drugs for two weeks and have cyber sex with each other masturbating

web cam to web cam for an hour at a time 3 or 4 times per day while

they can click a mouse to flick through a complete library of erotic

images.

they will all end up with sexuall dysfunction, as while they were on

the drugs those areas of the brain would have been the most active

and most effected by the loss of serotonin that the ssri prevented

from being restored!

this is all that needs to be done to prove this is reall and the

drugs cause it!

> > >

> > > Has anybody invited the pharma companies or relevant government

> > > organisations to join this support group? And what was their

answer?

> > > Communication with these groups is very important.

> > >

> >

>

[Guest guest]

I see your point. But have you ever called the drug company that did

this to you and told them about the injury they caused?

I have. It wasn't a nice experience.

It sounds like your idea is centered around creating a big

organisation that would have some teeth to it to get the cartel to

take this seriously. Who knows how to do that?

> > >

> > > Has anybody invited the pharma companies or relevant government

> > > organisations to join this support group? And what was their answer?

> > > Communication with these groups is very important.

> > >

> >

>

[Guest guest]

This study will never happen.

Nobody would willingly volunteer to be inflicted with sexual

dysfunction. That's why scientists use rats.

> > > >

> > > > Has anybody invited the pharma companies or relevant government

> > > > organisations to join this support group? And what was their

> answer?

> > > > Communication with these groups is very important.

> > > >

> > >

> >

>

[Guest guest]

I admire you for contacting the pharma company. I think a telephone

call to a pharma company about PSSD can best be preceded by a

diplomatic letter or email. And such communication is IMO most

effective if it is factual and objctive, instead of personally

emotional or even hostile. I'm not suggesting though that you acted

emotionally or defensive.

To gain more influence we first need much more active forum members

worldwide I think. And we should closely cooperate with (large)

existing patient organisations in the field of mental health care,

psychiatry, depression etc... They may closely cooperate with pharma

companies, politicians, universities, doctors, mass media and other

patient organisations. And they might have some funding, legal

stature, some (professional) staff, knowledge, webforums and

supporting active members.

And I personally still believe it is important for us to try to

establish a working relationship with the pharma companies. They have

large knowledge, much money, extensive power, influential contacts,

networks etc, etc... And they also can greatly gain from cooparation

with us. They don't want to lose their reputation in public in the

long run by televison rumours. They don't want to be damaged by CNN

reports.

They will probably try to do 'damage control' in that respect. Besides

their business reputation and credibility is critical in competition

with each other. So there seems to be a chance they are willing to

cooperate and negotiate with us, although being opponents. It's

politics.

> But have you ever called the drug company that did

> this to you and told them about the injury they caused?

> I have. It wasn't a nice experience.

> It sounds like your idea is centered around creating a big

> organisation that would have some teeth to it to get the cartel to

> take this seriously. Who knows how to do that?

[Guest guest]

Millions of patients use psycho medication already or have used it.

Scientists can gather data about them without further enhancing their

health risks. And tracked PSSD patients can be studied by

questionnaires and physical examination.

>

> This study will never happen.

> Nobody would willingly volunteer to be inflicted with sexual

> dysfunction. That's why scientists use rats.

[Guest guest]

well the drug company's claim its impossible for this to happen so

any research done like this doesn't have to say its looking for any

persistant sexual effects after discontinuing the drug.

the subjects could be told its to assess other sexual side effects

like delayed ejaculation or even to explore the possibility that they

have positive effects.

think about it, they will get sexual dysfunction, one it will prove

pssd and two if they try to sue it opens the flood gates for us to

sue the manufacturers.

> > > > >

> > > > > Has anybody invited the pharma companies or relevant

government

> > > > > organisations to join this support group? And what was

their

> > answer?

> > > > > Communication with these groups is very important.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Hi Steve, the people who wark for that company have already denied our

allegations.

Are you aware that directors of companies have a duty to increase the

profits of the shareholders? It is unlikely that they would take an

interest in our group because their are only a couple of thousand of

people in the group. So far they have rebutted any allegation that pssd

is real.

[Guest guest]

We've come a long way to finding out the best cures for pssd. For some

people it is hormone treatement. For other people certain dopamine

related drugs may be the best treatment. For other people cialis, plus

some other treatemnts may be the best treatment. A lot of men get very

effective results from exercise. Stablon seems to be very effective for

some people.

I think its very negative to theink that we will never find the cure

without loads of funding. A lot of people are starting to get better.

[Guest guest]

>

> Hi Steve, the people who work for that company have already denied our

> allegations.

Where can I find that on the web? That denial should be documented

officially.

> Are you aware that directors of companies have a duty to increase the

> profits of the shareholders? It is unlikely that they would take an

> interest in our group because their are only a couple of thousand of

> people in the group. So far they have rebutted any allegation that

> pssd is real.

Shareholders and pharma staff don't want the value of their stocks

drop due to a media scandal on CNN about PSSD. Within a few years time

PSSD will possibly be on world television, if we work on that via PSSD

webforums and emails.

[Guest guest]

Do some real research about what the pharma cartel is really doing and

then maybe you'll understand that they are not your friends.

They are not there to listen to you. They are not there to help you in

any way what so ever. And all their billions $ and power and political

influence isn't being used for your best interest. It isn't going to

make any difference if you sound neutral, diplomatic or hostile. The

result is the same. Indifference.

When their poisons are banned. Their wallets will hurt. At that point

they will care.

> > But have you ever called the drug company that did

> > this to you and told them about the injury they caused?

> > I have. It wasn't a nice experience.

> > It sounds like your idea is centered around creating a big

> > organisation that would have some teeth to it to get the cartel to

> > take this seriously. Who knows how to do that?

>

[Guest guest]

This study model simply does not fit into scientific methodology.

Even if this study was done, the scientific community would call the

whole thing subjective and unscientific. So it wouldn't do any good to

prove the existance of PSSD.

> >

> > This study will never happen.

> > Nobody would willingly volunteer to be inflicted with sexual

> > dysfunction. That's why scientists use rats.

>

[Guest guest]

How do you plan to solve the dilema of ethical/legal conflict?

First the patients are lied to. And they are injured as a result.

> > > > > >

> > > > > > Has anybody invited the pharma companies or relevant

> government

> > > > > > organisations to join this support group? And what was

> their

> > > answer?

> > > > > > Communication with these groups is very important.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I did study the pharma industry and I am very concerned about their

use of power. I didn't say they are your friends. But I believe in

negotiating with opponents, even if you have doubts about their

integrity. I believe in a political approach. I respect your opinion

though.

And all their billions $ and power and political

> influence isn't being used for your best interest. It isn't going to

> make any difference if you sound neutral, diplomatic or hostile. The

> result is the same. Indifference.

also can greatly gain from cooparation

[Guest guest]

Science uses quite a lot of different complementary research

techniques to gather information and to form and test hypotheses.

These research techniques vary greatly from ('soft') explorative

qualitative to ('hard') quantitative scientific hypothesis testing.

Many of these different research methods are necessary in the ongoing

cyclic scientific process. Research in a new subject often starts with

explorative data gathering.

>

> This study model simply does not fit into scientific methodology.

> Even if this study was done, the scientific community would call the

> whole thing subjective and unscientific. So it wouldn't do any good to

> prove the existance of PSSD.

[Guest guest]

there not lied to, these drugs do not officially have these effects!

so anything that is realised as a result of the study would be a new

discovery.

we know its like sending lambs to the slaughter! but at least the

world would finally know that these drugs can do this and they would

have to put this information on the drugs from there on.

if they had to put in the drug description that this drug could

possibly cause prolonged or permanent sexual dysfunction, no one in

there rite mind would take it!

and we would be able to sue them for what they done to us!

trust me if a study was done like the one ive suggested, its game

over for them!

> > > > > > >

> > > > > > > Has anybody invited the pharma companies or relevant

> > government

> > > > > > > organisations to join this support group? And what was

> > their

> > > > answer?

> > > > > > > Communication with these groups is very important.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

steve approach them with the pretext that you are part of an

organisation planning to implicate my proposed study in the previous

posts.

ask them if they will support a trial of this kind to discover if

these drugs cause persistant sexuall effects that continue long after

you stop using them.

if they have nothing to hide, they should support the study.

> And all their billions $ and power and political

> > influence isn't being used for your best interest. It isn't going

to

> > make any difference if you sound neutral, diplomatic or hostile.

The

> > result is the same. Indifference.

> also can greatly gain from cooparation

>

[Guest guest]

I think that's a useful suggestion.

> ask them if they will support a trial of this kind to discover if

> these drugs cause persistant sexuall effects that continue long after

> you stop using them.

>

[Guest guest]

it is, we should contact all of the big pharmaceutical manufacturers

that produce all the ssris.

if they haven't got anything to hide they should be confident enough

to offer there blessing.

while we are at it, we could ask them what happens to the increased

amount of serotonin that isnt able to be restored because of the ssri

blocking the serotonin transporter and what interaction mao has with

the increase.

> > ask them if they will support a trial of this kind to discover if

> > these drugs cause persistant sexuall effects that continue long

after

> > you stop using them.

> >

>

[Guest guest]

ive found this research centre, they are currently studying the

sexual side effects of ssris and looking to recruit people for there

studies in the new york area.

i think this organisation are the most likely to ever study pssd.

maybe we should contact these people with the idea of implementing my

proposed study.

i think vornan might be interested in this link, if he didnt know of

them already.

http://www.depressionny.com/q & a-sexualse.htm

http://clinicaltrials.gov/ct/search?term=SSRI%

2C+sexual+dysfunction & submit=Search

> > ask them if they will support a trial of this kind to discover if

> > these drugs cause persistant sexuall effects that continue long

after

> > you stop using them.

> >

>

[Guest guest]

It would be useful if an email about PSSD were sent to all the

research groups in this weblink underneath. Since these scientists are

actuallly studying SISD (SSRI Induced Sexual Dysfunction). I myself

have already contacted many other relevant people.

I would kindly ask any member of this group to send an email to a few

scientists in the field of SISD. One could use a nickname in doing so.

Only with active participation of all forum members we will reach our

goal of an official publication and research.

http://clinicaltrials.gov/ct/search?term=SSRI%2C+sexual+dysfunction & submit=Searc\

h

>

> > > ask them if they will support a trial of this kind to discover if

> > > these drugs cause persistant sexuall effects that continue long

> after

> > > you stop using them.