Re: Were pharma companies and authorities invited to join this support group?

[Guest guest]

me and my mum have the same doctor, i haven't been to see her yet

about pssd because im still to angry! but my mums mentioned it to her

and she says it can happen and persist for a while after you stop

taking the ssri, but its nothing to worry about because its not

permanent.

>

> They seem to believe that sexual side effects are reversible.

> According to this quote.

>

> " 6) Are the sexual side effects of antidepressant medications

reversible?

>

> Side effects from antidepressants are reversible and often respond

to

> a reduction in dosage. Unfortunately, decreases in dosage can

> compromise the medication’s therapeutic efficacy. It is

important to

> tell your psychiatrist what sexual side effects you are suffering

from

> and explore treatment options. Do not make any changes without

> consulting your psychiatrist as most antidepressants have unpleasant

> withdrawal effects when dosage is changed. "

>

> I wonder if they have done any long term clinical trials to back up

> this statement? Lets say on people who have taken these drugs for 5-

6

> years.

>

[Guest guest]

This is my first time posting and I want to thank the owners/moderators of the

group for the information and data, case reports, etc. it's made available to

me.

There are some studies going on in the second link of the previous post that

sound intersting, like #73- 'Effect of Antidepressants on Sex Hormone Levels and

Sexual Functioning', as well as others that knowing what I know firsthand

horrify me (A Controlled Trial of Serotonin Reuptake Inhibitors Added to

Stimulant Medication in Youth With Severe Mood Dysregulation, Study to Evaluate

the Effectiveness of Certain Selective Serotonin Reuptake Inhibitor (SSRI)

Antidepressants During Pregnancy and Evaluate Newborn Outcomes, etc.). Other

than what's available in the files section here, which is certainly something, I

haven't come across much in the way of studies on the effects of long term use,

'prolonged' side effects, effects of discontinuation itself, etc. I'm wondering

what the circumstances realistically have to be for research in these areas to

be undertaken? Is it a possibility in the near future, an eventual

inevitability, unlikely to happen in my lifetime? Who needs to be roused to

fund such research, that sort of thing.

> > > ask them if they will support a trial of this kind to discover if

> > > these drugs cause persistant sexuall effects that continue long

> after

> > > you stop using them.

> > >

> >

>

[Guest guest]

I live in the New York area, I will contact them tomorrow and post what they

say.

> > > > ask them if they will support a trial of this kind to discover if

> > > > these drugs cause persistant sexuall effects that continue long

> > after

> > > > you stop using them.

> > > >

> > >

> >

>

[Guest guest]

I sent an e-mail to St. Luke's Roosevelt Hospital Center, have not recieve

response yet, will call them tomorrow if they dont respond.

> > > > > ask them if they will support a trial of this kind to discover if

> > > > > these drugs cause persistant sexuall effects that continue long

> > > after

> > > > > you stop using them.

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Got busy at work today, will call St. Luke's Roosevelt Hospital Center on

Monday.

> > > > > > ask them if they will support a trial of this kind to discover if

> > > > > > these drugs cause persistant sexuall effects that continue long

> > > > after

> > > > > > you stop using them.

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Well there does not seem to be anyone answering over at St. Luke's Roosevelt

Hospital Center. I did get the number for the man in charge of the SSRI trails,

Dr. Hellerstein, private practice. I think I will make a appointment with

him and see what he says about PSSD. Most likely it will be a waste of money

but hey a desperate. Reading through the clical trail's web site on sexual

dysfunction and SSRIs I see they claim its all reversible like almost all other

doctors. My bet he will say that its must be something elese and referr me to a

Urologist and percribe Wellibutrin and ignore me when I tell him I been to 7

Urologists, been tested for evrything and had no luck with Wellibutrin. But hey

maybe I will get lucky and find a doctor interested to get the the bottom of

this.

> > > > > > > ask them if they will support a trial of this kind to discover if

> > > > > > > these drugs cause persistant sexuall effects that continue long

> > > > > after

> > > > > > > you stop using them.

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I finally got hold of Dr. Hellerstein and have a appointment with him on

the 21st. He was more open minded about PSSD then I had first suspected. I

have already recieved a e-mail from a nother group member wanting me to ask him

about his Requip trial. If the group has any other questions, please let me

know. Also has anyone tried Requip for PSSD and it NOT work? I read a post on

another site were someone who had PSSD had a permanent response to 1 MG a day

with complete resolution of symptoms. The post also reported it working very

well even with those on SSRIs. I did not have any reponse to Wellbutrin as have

many here, so I am skeptical of Requip which also works by increasing Dopamine

but maybe the different method of action might produce a different result.

> > > > > > > > ask them if they will support a trial of this kind to discover

if

> > > > > > > > these drugs cause persistant sexuall effects that continue long

> > > > > > after

> > > > > > > > you stop using them.

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

>

[Guest guest]

I would advise taking a look at the several hundred patient reports and ratings

of their expreience with Requip on askapatient.com before you consider it.

> > > > > > > > > ask them if they will support a trial of this kind to discover

if

> > > > > > > > > these drugs cause persistant sexuall effects that continue

long

> > > > > > > after

> > > > > > > > > you stop using them.

> > > > > > > > >

> > > > > > > >

> > > > > > >

> > > > > >

> > > > >

> > > >

> > >

> >

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