Re: Hi group- Judi

[Guest guest]

Hi Judi. I know how much you miss those kids. It's hard when they

live so far away.

One nice thing is that the time you spend with them is extra special.

I'm so glad that someone is doing some DD research! Hopefully the

research will

go quickly so that you will benefit from finding treatment besides

these endless

surgeries to remove the lipomas.

Great news about Ron! You will both be in my prayers.

a

On Apr 24, 2006, at 6:43 PM, nonny46 wrote:

>

> Hi everyone!

>

> I know I have been awol a long time. It has been a stressful time,

> getting our daughter moved (she now lives in Georgia with her kids)

> and

> dealing with her ex-husband and his attitude.

>

> Meanwhile, Ron was accepted as a volunteer in a study group on

> Parkinson's through St. Hospital in Indy. He is going to have

> the deep brain stimulation (DBS) surgery sometime in June. Their

> feeling is that by doing it earlier in the course of the disease, it

> might actually reverse the brain damage. They've told him he will see

> at least a 50% return of normal movement, and he is thrilled!

>

> I am going to have some minor surgery mid-May to remove some

> troublesome

> lipomas (for those of you who don't know me, I have Dercum's

> Disease) to

> send to a doctor who is now doing research on Dercum's. The very

> large

> ones in my right arm are causing unending problems and seriously

> interfering with my 2 favorite hobbies--quilting and gardening. The

> other large tumor above my right knee will come out a week after the

> arm. Those of us with DD are thrilled that someone is finally doing

> research!

>

> I keep you all in my prayers, knowing that everything we all have to

> deal with might not be insurmountable challenges, and with

> appreciation

> for all the support I have always found here (even though I don't have

> RA!)

>

> Judi

>

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