Re: trying not to be in Denial

[Guest guest]

Yes, Marilyn, you might as well accept it; it most likely will not go

away. My RA moved around to different parts of my body in the early

stages. Now mine is very well controlled with one of the biologic

DMARDs, Enbrel. I tried methotrexate first, and then Arava, but they

lowered my white cell count too much. Enbrel is my magic bullet, and

hopefully it will stay that way. I agree with you about prednisone. I

took it a few months, but weaned myself off as soon as I could.

Congratulations on your weight loss; that's quite an accomplishment. We

have a couple of other people here who have had some kind of weight

loss surgery.

Welcome to the group. You will find the members very supportive, and

our moderators a and keep us well informed about these awful

diseases.

Sue

On Saturday, July 29, 2006, at 05:04 PM, oeayc wrote:

> Hi I am new to the board. I am 50 years old. I was dianosed wirh RA

> about 3 to 5 years ago. This last winter it was really bad I could

> hardly walk. There isn't a support group in our area and I would like

> to communicate with others that have similar problems. Questions I have

> does your inflammation move to different parts of your body? Like one

> day it might be your feet next day your jaw? Some mornings I wake up

> with this huge headache like a sinus headache most of the time after my

> walk it goes away. I am on methotrexate 6 pills once a week. About

> 3months ago on 15mg of predizone. The predizone does wonders scared of

> side effects. I have gotton myself down to 7mg. Pain is mannageable.

> Last Sept. I had the lapband weight loss surgery and have loss 72lbs.

> I'm sure that helps the RA. I have been trying to tell myself I don't

> have it. But Dr. said sounds like you are trying to make a deal with

> your body. He said he was glad to see my determation but I will always

> have RA. Marilyn

[Guest guest]

Hi Marilyn,

Welcome to the group. My name is Toni. I am also a bandster. How are you

doing on the MTX with the band? I could not tolerate MTX pills or shots

pre-band so post band was totally out of question.

My rheummy will not give me oral pred to take either...due to risk of

complications with the band. So I get injections...and then that is limited to

4 a

year (or something like that).

I am suppose to be on Humira...but it burns like acid in my skin for many

hours after the injection...plus I get a huge hard red lump. So I stopped it.

I was also on Plaquinil...but lost the script and it was not doing anything

for me. My currently rheummy does not listen. I am waiting to see a new doc

that just moved here...but I got a call that I need to move my appt farther

away cause he is not on my ins yet. So I am thinking I may try the doc at

the big medical center cause I am tired of all these quack docs.

Well, its great to have a fellow bandster in the group.

Toni in Texas

[Guest guest]

>

> Hi Marilyn,

> Welcome to the group. My name is Toni. I am also a bandster.

How are you

> doing on the MTX with the band? I could not tolerate MTX pills

or shots

> pre-band so post band was totally out of question.

>

> My rheummy will not give me oral pred to take either...due to

risk of

> complications with the band. So I get injections...and then that

is limited to 4 a

> year (or something like that).

>

> I am suppose to be on Humira...but it burns like acid in my skin

for many

> hours after the injection...plus I get a huge hard red lump. So

I stopped it.

> I was also on Plaquinil...but lost the script and it was not

doing anything

> for me. My currently rheummy does not listen. I am waiting to

see a new doc

> that just moved here...but I got a call that I need to move my

appt farther

> away cause he is not on my ins yet. So I am thinking I may try

the doc at

> the big medical center cause I am tired of all these quack docs.

>

> Well, its great to have a fellow bandster in the group.

>

> Toni in Texas

>

Hi Toni.

I have been doing well on the MTX. The peridzone or mtx doesn't

seem to bother my band. How long have you had your band and how much

have you lost? Do you feel loosing the weight helped the RA? Marilyn

>

>