Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Skylar, welcome to the group, you have found many people who care very much about you and what you are going through. I am 28 and suffer with RA and Fibro and completely understand about pressure from friends and family to get out and " so something with yourself " They just don't get that it can be a struggle to get up and go to the bathroom sometimes. Anytime you need to talk or vent we are here. I hope you have many warm and pain free days. take care. kerri sue --------------------------------- Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 Kerri Sue, I definitely understand the hardships to do anything including get up and go to the bathroom. Most days, I actually need to ask my wife to get up and walk me to/from the bathroom which is not far from my bedroom. The pain has been so bad lately that even for me to get up and shut down my Game Cube is a struggle... and its only a foot and a half away from my bed... I play it to de-stress and then it stresses me that I'm in so much pain from such minor efforts. I really appreciate the idea of support because nobody in my life understands fully right now. My wife's father is all like, you still need to do something with yourself, and my father just refers to this as some dumb thing going on with my body. I want to scream, I want to cry and I just want the pain to go away. Skylar Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 Skylar: I am sorry that you are still in so much pain. I am also sorry to hear that, except for your wife, you do not get the support you need from family. That makes RA just so much more difficult to deal with. Just know that you always have our full unconditional support here. Kathe in CA --- Moonstarling257@... wrote: > Kerri Sue, > > I definitely understand the hardships to do anything > including get up and go > to the bathroom. Most days, I actually need to ask > my wife to get up and walk > me to/from the bathroom which is not far from my > bedroom. The pain has been > so bad lately that even for me to get up and shut > down my Game Cube is a > struggle... and its only a foot and a half away from > my bed... I play it to > de-stress and then it stresses me that I'm in so > much pain from such minor > efforts. > > I really appreciate the idea of support because > nobody in my life > understands fully right now. My wife's father is all > like, you still need to do > something with yourself, and my father just refers > to this as some dumb thing going > on with my body. I want to scream, I want to cry and > I just want the pain to > go away. > > Skylar > > > [Non-text portions of this message have been > removed] > > > > Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 I, too, am sorry to hear you are in so much pain...but as Kathe...glad you have the support of your wife. Sometines, family do not understand the pain and everyday struggles we go through just to get around and have a half way decent life...you look ok to them...or they do not want to think of you having problems beyond a cold. Many a time, i have cried inwardly because the understanding just is not there. The real support i have other than this group is usually from someone who is going through their own battles...such as the bio mother of my oldest daughter who has CP...(guess what....and it brings me to tears to think of it....she has made provisions and made it clear with her husband..that she will be responsible for my care if i ever become totally dependant on help to live)...or a male friend who has AS...the first person i ever knew with AS... I have always been aware of the pain of others all my life...and find it hard at times to understand why others are not more empathetic toward pain. You don't have to gush all over me...but don't look at me with disdain when i take longer to walk to and from the car or get up and down out of a chair (as i saw someone here describe)....just show you understand and grant me the right to feel the pain i do... I can't dismiss it because you want me to do so. Well....i rattled my cage long enough on this one.... Nice meeting you Skylar..even if it is over the 'net on a common ground......we are still in the same family and it is good to know you. CAT/Jan =^..^= Kathe Sabetzadeh <lv2ryd@...> wrote: Skylar: I am sorry that you are still in so much pain. I am also sorry to hear that, except for your wife, you do not get the support you need from family. That makes RA just so much more difficult to deal with. Just know that you always have our full unconditional support here. Kathe in CA --------------------------------- Photos Got holiday prints? See all the ways to get quality prints in your hands ASAP. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2006 Report Share Posted January 10, 2006 In a message dated 1/10/2006 6:22:32 PM Central Standard Time, i_am_catsy@... writes: I have always been aware of the pain of others all my life...and find it hard at times to understand why others are not more empathetic toward pain. You don't have to gush all over me...but don't look at me with disdain when i take longer to walk to and from the car or get up and down out of a chair (as i saw someone here describe)....just show you understand and grant me the right to feel the pain i do... I can't dismiss it because you want me to do so. I feel the same way. Dont pity me, Just let me be. I cant make it go away so dont try and pretend i can... ok i'm gonna stop here while i can. lol hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2006 Report Share Posted January 12, 2006 Skylar, Learning to depend on someone for what we usually do ourselves is a very difficult thing to do. Sometimes I still cry when has to help me put on my socks and shoes. In time, with the right meds I'm sure things will become more comfortable for you, you just have to hang in there and make sure your doctors know all that is going on with you and what you want from them. As far as people not understanding, most of them never will, but we will, so if you need to yell and scream we are here. Take care of yourself. You will be in my thoughts and prayers. kerri sue Moonstarling257@... wrote: Kerri Sue, I definitely understand the hardships to do anything including get up and go to the bathroom. Most days, I actually need to ask my wife to get up and walk me to/from the bathroom which is not far from my bedroom. The pain has been so bad lately that even for me to get up and shut down my Game Cube is a struggle... and its only a foot and a half away from my bed... I play it to de-stress and then it stresses me that I'm in so much pain from such minor efforts. I really appreciate the idea of support because nobody in my life understands fully right now. My wife's father is all like, you still need to do something with yourself, and my father just refers to this as some dumb thing going on with my body. I want to scream, I want to cry and I just want the pain to go away. Skylar Quote Link to comment Share on other sites More sharing options...
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