Guest guest Posted April 29, 2006 Report Share Posted April 29, 2006 Thank you Dorothy. I hope I get good results too. Darlene -------------------------------------------- From: Dorothy Date: 04/28/06 22:09:11 Subject: RE: [ ] plaquenil I take Plaquenil and never had the experience of being exhausted. It did help me, but took many months. I've always been pleased with the results. Good luck, Dorothy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 6, 2009 Report Share Posted November 6, 2009 I read the LiverSupport Digest every day, but usually do my responding to PBCers Digest. Whenever I write, I use my entire name. Please don't confuse this Sharon with anyone else. Sharon, PA 63, dx '98 PBC stage 1-2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 18, 2010 Report Share Posted January 18, 2010 Dear Grouppies....lol, I am so happy today as I am feeling well and got some mail of my very own. Me thinks my drafts might of got sent off to the AIH group only...felt like a lion cub in a pit of hyena's. Please excuse my spelling if it is off a bit. I was dx in London, Ontario up here in Canada at the University of London....it took a bit to get myself there, was held up in a small town called Stratford, where they have the festivals every year. Some doctors have an ego thing going on so alas my liver was very pouched by the time I got onto to meds....I started with prednisone at 60 mg. but the weeks previous it was solumedrol at 500mg by I.V. drip ....had to be sedated for a bit ...lost my marbles but I got most of them back....lol. I talked to some of you gals on the chat room nite but I find I loose my stamina very easily and have to lay down. My bone scans have not been good and my low back has paid the price, spinal stenosis has put me in my bed most days flat on my back. ....now that would be a good thing for my hubby whom is so wonderful but the pain stops me but he is so good and just cuddles me up. We have a good thing going and I love him so. I take my Urso at 500mg three times a day and water pills ...followed by 3 tums for the calcium and have meds for pain and xanax for the hissy fits...lmao...what a term for us eh? must of been a guy who thought for us to come up with that one.Thank you all so much for taking the time to write to me and will keep in touch as much as I can . If any one needs my help in any way please feel free to jot a note. I am going to pray for my brothers and sisters in the group and special prayers for the souls in Haiti. ....love ya all your friend Dort.....xoxoxoxoxox GREETING'S FROM UP-UNDER.....YOUR PAL DOROTHY....XOXO From: JJCATHCART@... Date: Thu, 5 Nov 2009 16:46:11 +0000 Subject: [ ] Dorothy Dorothy.I do not know who this Sharon is but she has no say whatsoever! I am saddened to hear that any of our members may have felt it was their place to say who and who can not be here. Dorothy you are a member for as long as YOU wish. We are here for all people with ANY AUTOIMMUNE liver disease...........AIH, PBC. PSC NASH.whatever...........and we even have a few people with Hep C.. We are a support group..period. " Sharon " .please write her an apology. So anyway.Doreothy how are you doing with the crossover? What meds do you take? Crossover is becoming more and more common.......they don't know if it has always been this way and they just didn't diagnose both or if is a new problem. I have a few friends who are even Post Txers that have crossover. and some that had PBC before transplant and now have AIH.very odd. Joanne Do you take prednosine with your urso or another??????Please post. Joanne We have three Moderators only...myslef, Harper and Kay aka Kitty. Joan C. has not been around as of late......although she may jump in anytime she wishes........Joanne PBC Post TX __________________________________________________________ Blue Cross Health Plans Quote & compare top health plans like Blue Cross, Aetna, and more! http://thirdpartyoffers.netzero.net/TGL2241/c?cp=AuPL-jFscet3PwiWkko2xQAAJ1GQnYn\ RYvkvJ80NTZ4GwAYRAAQAAAAFAAAAAIZm-T4AAAMlAAAAAAAAAAAAAAAAAAOGiQAAAAA= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2010 Report Share Posted March 17, 2010 good day ladies and gents and bugs and germs....lol....glad to hear back from ya and my post got through alright so tis aaaaaaaaallll gggooood as my children seem to like yaking back at me. my health is a bit touch and go my cholesterol is 9. something or other and it should be well below 5. I am a walking heart attack the doc said so it is back to the lipid clinic....will let you in on the good news when I get some...heheheh....not much of that going around this time of day. anyhows love to all and hope my note keeps all updated...I am trying to get myself out of my funk and take part in life but have been sad.....but that is gonna change. love and hugs to my bugs....lol. dottie. GREETING'S FROM UP-UNDER.....YOUR PAL DOROTHY....XOXO liver problems From: t_dorthy@... Date: Mon, 18 Jan 2010 14:27:32 +0000 Subject: RE: [ ] Dorothy Dear Grouppies....lol, I am so happy today as I am feeling well and got some mail of my very own. Me thinks my drafts might of got sent off to the AIH group only...felt like a lion cub in a pit of hyena's. Please excuse my spelling if it is off a bit. I was dx in London, Ontario up here in Canada at the University of London....it took a bit to get myself there, was held up in a small town called Stratford, where they have the festivals every year. Some doctors have an ego thing going on so alas my liver was very pouched by the time I got onto to meds....I started with prednisone at 60 mg. but the weeks previous it was solumedrol at 500mg by I.V. drip ....had to be sedated for a bit ...lost my marbles but I got most of them back....lol. I talked to some of you gals on the chat room nite but I find I loose my stamina very easily and have to lay down. My bone scans have not been good and my low back has paid the price, spinal stenosis has put me in my bed most days flat on my back. ....now that would be a good thing for my hubby whom is so wonderful but the pain stops me but he is so good and just cuddles me up. We have a good thing going and I love him so. I take my Urso at 500mg three times a day and water pills ...followed by 3 tums for the calcium and have meds for pain and xanax for the hissy fits...lmao...what a term for us eh? must of been a guy who thought for us to come up with that one.Thank you all so much for taking the time to write to me and will keep in touch as much as I can . If any one needs my help in any way please feel free to jot a note. I am going to pray for my brothers and sisters in the group and special prayers for the souls in Haiti. ....love ya all your friend Dort.....xoxoxoxoxox GREETING'S FROM UP-UNDER.....YOUR PAL DOROTHY....XOXO From: JJCATHCART@... Date: Thu, 5 Nov 2009 16:46:11 +0000 Subject: [ ] Dorothy Dorothy.I do not know who this Sharon is but she has no say whatsoever! I am saddened to hear that any of our members may have felt it was their place to say who and who can not be here. Dorothy you are a member for as long as YOU wish. We are here for all people with ANY AUTOIMMUNE liver disease...........AIH, PBC. PSC NASH.whatever...........and we even have a few people with Hep C.. We are a support group..period. " Sharon " .please write her an apology. So anyway.Doreothy how are you doing with the crossover? What meds do you take? Crossover is becoming more and more common.......they don't know if it has always been this way and they just didn't diagnose both or if is a new problem. I have a few friends who are even Post Txers that have crossover. and some that had PBC before transplant and now have AIH.very odd. Joanne Do you take prednosine with your urso or another??????Please post. Joanne We have three Moderators only...myslef, Harper and Kay aka Kitty. Joan C. has not been around as of late......although she may jump in anytime she wishes........Joanne PBC Post TX __________________________________________________________ Blue Cross Health Plans Quote & compare top health plans like Blue Cross, Aetna, and more! http://thirdpartyoffers.netzero.net/TGL2241/c?cp=AuPL-jFscet3PwiWkko2xQAAJ1GQnYn\ RYvkvJ80NTZ4GwAYRAAQAAAAFAAAAAIZm-T4AAAMlAAAAAAAAAAAAAAAAAAOGiQAAAAA= Quote Link to comment Share on other sites More sharing options...
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