Re: Hi my name is Annie Annie (long post .......)

[Guest guest]

Hi Annie:

Welcome to the group! The people here are very caring

and supportive, and have been such a help to me in the

years I have been a member. Our moderators, and

a, are the best at finding us information. Yes,

your world is definately turned upside down and in a

big way too. I am so sorry that you have been double

diagnosed at such a young age, and are trying to deal

with a little one at the same time. Falling while

holding your child must have been so scary for you -

What medications are you on besides the Ultram? If

that is not holding your pain, yes, definately give

you doctor a call. There is no reason for you to be

in so much pain, and trying to keep up with a one year

old too. I have fibro and RA, as well as OA and

Raynaud's, and can imagine the pain you are in. I

take meds for both my RA and for my fibro. For fibro,

I take Lyrica, Skelaxin, Cymbalta, Zanaflex, and

Ambien CR - these treat my nerve pain, muscle spasms,

and sleep difficulties, all of which fibro has.

Some of these medications you might talk with your

doctor about, maybe there is something that could help

you too. I know you don't want to take too many meds

because of your little one, but pain relief is

something that is soooo necessary right now, and you

have to focus on getting what you need for that. Rest

is also very important, and hard for you to get right

now probably, and you need a good night's sleep too.

With restorative sleep and rest, you will be able to

cope better with the pain.

You have come to the right place to talk with people

who understand what you are going through. Having

another baby is something that you might be able to

give some thought to, after you have your diseases

under control.

As far as your friends and family not understanding,

that is also a common complaint here, as it is very

hard for them to understand that you are in pain, but

look just the same! The Spoon Theory is one thing

that you could look up on the internet which hopefully

will help them to understand what you are going

through. It took my family some time to get used to

my being in pain, being unable to do things I used to

do, needing help with simple tasks, but if they love

you, they will in time.

You are not lazy, you did not ask for this to happen

to you, and your family and friends need to support

you right now. I think we have all wished at one time

or another (not meaning that we want it - no way) that

we had something visable to show others we are in

pain, ours is what is called an Invisible Illness, and

we all have heard " but you don't look sick " more

timees than we care to count. We understand.

Take care - any questions you have, I am sure someone

here will have the answers for you - if you need

something answered right away put ASAP in your heading

or something to get our attention! We have a lot of

posts, so give us a bit of time to get to you -

Kathe in CA

--- Annie <ahightower@...> wrote:

> Hi,

>

> I started to > fall a lot. I knew I needed help when

both my amkles> gave out and my > daughter and I hit

the wall at the bottom of the> stairs. It took > three

months to get to a Rheumy (is that what you> call

them?) I have > been told I have lupus and Fibro. I'm

scared. We> wanted to have > another baby but I don't

have the physical ability> right now because > of all

the medication I am on. My world has been> turned

upside down and I'm awake at 1 am because the pain is

too much> too sleep. I > choose to stop my vicodin

because it made me short tempered and > sleepy (two

things I can't be with a toddler) I'm on> Ultram now

and > it's like I'd get the same help if i took a tic

tac!> Should I call > my doctor and ask for something

else?

>

> I hope to make new friends here and find others that

> can help with > questions I might have and be able

to help me find> ways to explain > to friends and

family that I'm not lazy just a> little slower because

> I hurt so bad. It would be easier to get people to

> understand if I > had a visible problem like a gun

shot and it isn't> fair! I'm done > complaining. This

was probably rude since I'm just> introducing

> myself. Thanks to all who read the whole thing.

>

> Annie

>

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