Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Hi , and welcome to the group! Sure sounds like a herxheimer reaction to me....Drink lots of water, try to eat well (lots of veggies) even if you are not feeling like cooking, and get lots of rest. Talk to your doctor about cutting back on the dosage and tapering slowly back up, if it gets too hard to bear. Don't hesitate to ask the group about any questions you may have--they are a great resource, especially for those new to the treatment, and have been a rock of support for me in the difficult times. I stil have some flareups, but have gotten a great deal of my life and energy back after three years on the treatment. I hope to hear the same from you in the future! Hang in there, this is the most difficult time, and someday in the next few months hopefully, you should wake up and find yourself looking back and making a long list of the things you can do again, that you haven't been able to do for years! : ) I hope it is soon for you....Regards, Liz G. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 if you feel bad, it is a good sign. hang in there! I know how hard it can be. take a smaller dose if you need to. kathy rheumatic Hi, I'm new. >Hi there. My name is , and I am 24. I have had Rheumatoid >Arthritis since I was 18. I just joined the group, and am new to >antibiotic therapy as well. I started Minocycline (100mg/day) almost a >month ago. I now know that I should have been much more informed before >starting this treatment, but I am trying to learn as much as I can >now.I started getting sick within 3 days of taking the antibiotic. I >was very nauseated and tired. I called the Dr. and she said to just >keep tking it. Since then, I have gotten slowly worse. My RA is flaring >up and I feel like I have the flu without the fever. I am hoping this >may be a good sign even though I feel miserable. Just wondering if >anyone has any suggestions/ similar stories to share? Is this the herx >reaction? I feel so clueless and my Dr. tells me as little as possible. >I have started MSM, and acidophilus supplements also (how much to >take?). Well, I better get back to my research. I am learning a lot >from the rheumatic.org and the road back websites. >Thanks so much, > > > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2001 Report Share Posted March 27, 2001 Hi , If you can tolerate the herxheimer reaction to the antibiotic, then fine. But if it gets too much for you, try cutting the dose back to Monday Wednesday Friday only. (Here she goes again I can hear you all saying) - remember that Dr. McPherson Brown used to start his patients on only 50mg Mon and Fri to start with and then build up. Chris. >Hi there. My name is , and I am 24. I have had Rheumatoid >Arthritis since I was 18. I just joined the group, and am new to >antibiotic therapy as well. I started Minocycline (100mg/day) almost a >month ago. I now know that I should have been much more informed before >starting this treatment, but I am trying to learn as much as I can >now.I started getting sick within 3 days of taking the antibiotic. I >was very nauseated and tired. I called the Dr. and she said to just >keep tking it. Since then, I have gotten slowly worse. My RA is flaring >up and I feel like I have the flu without the fever. I am hoping this >may be a good sign even though I feel miserable. Just wondering if >anyone has any suggestions/ similar stories to share? Is this the herx >reaction? I feel so clueless and my Dr. tells me as little as possible. >I have started MSM, and acidophilus supplements also (how much to >take?). Well, I better get back to my research. I am learning a lot >from the rheumatic.org and the road back websites. >Thanks so much, > > > > > >To unsubscribe, email: rheumatic-unsubscribeegroups > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 My name is Skylar. I am a 23 year old from New York and I was diagnosed with Lupus about two months ago. I don't know how to handle it and neither does my wife. She tries to help me, but I am always sick and achy and tired. I feel like I should be the one taking care of her, but right now, I'm not working and feel like I physically can not hold a job. However, at the same time I feel pressure from family and friends to do something with myself other than just stay at home. I don't know what to do and need to be able to talk to people who would understand me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi there, Sorry to hear of your diagnosis it is hard living in pain...I have RA and thank goodness my family truly understands what I am going through. Maybe if you went online and printed off some information about lupus and gave it to them to read then they would understand more closely what your going through. I gave all my family information on RA and it blue their mind what was involved. Also sometimes our loved ones don't want to believe that we have a disease and that there is nothing they can do about it to help. My husband once said that the saddest thing about the my disease to him was that there was nothing he could do to make the pain go away. We are not looking for sympathy but a little empathy. I am 44 and can't work, I sure wish I could because I would be making a helluva lot more money than my little disability check im receiving. Maybe someday when they get a cure then I can go back to work......I do however keep going as best as I can. Im a musician part time and that keeps me from going in SANE! LOL. If there is anything I can do or just be here for you than I will. You can email me through this list or personally at corinne@.... I have started a support group for RA, Lupus, psoriatic arthritis and many other diseases...oh yes and fibromyalgia....we gather at my home once a month and we chat eat and do karaoke. it is so much fun. Wish I lived closer to you..*S but I am in Canada. Maybe you should look into joining a support group in your area. Skylar wrote: > My name is Skylar. I am a 23 year old from New York and I was > diagnosed with Lupus about two months ago. I don't know how to handle > it and neither does my wife. She tries to help me, but I am always > sick and achy and tired. I feel like I should be the one taking care > of her, but right now, I'm not working and feel like I physically can > not hold a job. However, at the same time I feel pressure from family > and friends to do something with myself other than just stay at home. > I don't know what to do and need to be able to talk to people who > would understand me. > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2006 Report Share Posted April 13, 2006 Welcome Kris! This is certainly a wonderful group and resource. My thoughts are with your family as you work to recover from the Hurricane. I hope your rebuilding progresses as quickly as possible. I can't imagine how difficult it is to be a good parents while everthing is literally turned upside down. Our little ones need intensive therapy, so it must have been very frustrating during those 6 months without it. Your child is certainly lucky that you've sought help at such an early age too. Best, Pam O'Connor, mom to , 4 1/2 years, apraxia and autism [ ] Hi, I'm new. Hello everyone. I've gotten caught up in some of the " conversations " here but haven't had a chance to introduce myself. My name is Kris and I have a 24 mo old with a speech delay and possibly some sensory processing problems. He says mama ( " mum mum " ), da da, and hi (he drops the h). We've had him in EI since about 15 or 16 mos, starting with a speach therapist and a special instructor, because he wouldn't feed himself. We weren't seeing a whole lot of progress. Then hurricane Katrina turned our world upside down (we live in New Orleans). We were evacuated for about 6 mos without any therapy for him. He regressed. Now we are in a FEMA trailer while we repair our home, which flooded and had wind damage. We got our speech therapist back and added an OT (special insructor did not return anyway). We've seen a lot more progress with the OT working with us. My husband has been reading the Late Talker while I read the Out-of-Synch Child (then we'll switch). The Late Talker is where we learned about fish oil and in a round-about- way, this group. My son has some sensory seeking behaviors and some sensitivity. He's a picky eater, hates play-dough and most messy play, but loves dirt and crashing into us. It's confusing to sort it all out. Anyway, I'm sure I'll be posting lots of questions soon (starting with fish oils!) but I just wanted to let everyone know who I am. These groups are kind of a new thing for me. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 14, 2006 Report Share Posted April 14, 2006 Thank you so much!! It's nice to finally feel not alone in all of this!! > > Welcome Kris! > > This is certainly a wonderful group and resource. My thoughts are with your > family as you work to recover from the Hurricane. I hope your rebuilding > progresses as quickly as possible. I can't imagine how difficult it is to > be a good parents while everthing is literally turned upside down. Our > little ones need intensive therapy, so it must have been very frustrating > during those 6 months without it. > > Your child is certainly lucky that you've sought help at such an early age > too. > > Best, > Pam O'Connor, mom to , 4 1/2 years, apraxia and autism Quote Link to comment Share on other sites More sharing options...
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