Re: Hi everyone, I'm new to the board.... (long post)

[Guest guest]

Hi :

Welcome to the group! We are happy to have you here, but sad that

you have found us by being dx with fibromyalgia. I have fibro too,

along with RA, OA and Raynaud's, and well know the pain you are

describing. I have nerve pain in my legs mostly, and aching just

about everywhere else, sometimes numbness in my fingers or toes, and

sometimes shooting pains in my legs which wake me up out of a sound

sleep. By the way, sleep is a big problem with Fibro, are you able

to sleep? Having a 6 month old and 3 year old probably ensures you

do not sleep a lot anyway, but rest is very important, especially

restorative sleep which fibro denies us.

All of this is made doubly hard when people do not believe in your

pain being real. I am so sorry that your family, and especially your

hubby, has taken this attitude. I know, at your young age, it must

really seem strange, all of this pain and fatigue, but we do

understand and are here for you.

What you need to do is find a rheumatologist, as this type of doctor

is more apt to understand fibro and be able to help you. I take

medications for my fibro - I take meds for my nerve pain, muscle

relaxants, pain medication, and sleep meds. All of these, and the

meds I take for my RA, allow me to have a quality of life. I hope

that the doctor will be able to help you too.

I am sure that our moderators, and a, will be able to find

you good information on fibromyalgia that you might be able to get

your family and your hubby to read, which will help them to

understand that this is a very real problem, with very real chronic

pain and fatigue, and they will start supporting you more.

It took my family a bit to understand the fibro, the RA was something

they knew about because my grandmother had it, but this fibro has

actually caused me more pain than my RA at times. It is an invisible

illness, just like RA, MS, Lupus, and other autoimmune or

neurological diseases. I think they have decided that fibro is a

disorder of the central nervous system affecting our brain and our

interpretation of pain stimulus. They are still trying to figure it

all out - and how to treat it.

Like I said, we do understand, and are here to support and help you

as much as possible. You are not alone! Hang in there - let us know

if you get a doctor's appointment - take care -

Kathe in CA

>

> I just wanted to start out by saying hi to everyone and introducing

> myself....> > My name is and I live in Pennsyvlania. I'm a

23 year old > mother of 2 beautiful little girls. Kyla just turned 3

and Leah is 16 > months old. They sure do keep me busy.

>>

>He said to > seek help elsewhere because he came to the conclusion I

have > Fibromyalgia! > I've been to sooooo many doctors that I just

do not like or that just > insist its all in my head.> I have intense

back and hip pain... as well as some nerve pain in my > legs and in

my arms now and again. > The pain comes back in waves... some days

its worse than others, and > seems to be worse in the morning. > I'm

sure all of you can relate to what I'm saying here. Anyhow, since my

diagnoses... well actually the accident, everything > has been down

hill. My own family seems to think its just in my head to.

>

> I'm so tired of being limited at age 23 with 2 small children. I'm

> also tired of not being able to find anyone who understands how I

> feel! I feel lost and trapped in this world. My own husband has no

> clue and treats me the same as the rest of my family a lot, which

> hurts. > I just want people to understand how I feel. > So please,

if I didn't bore you yet with this long story of the past > 2 years

of my life... feel free to lend a hand or an ear... or to > give any

advice you have.

>

> HELP ME PLEASE.

>

>

>