Hi..I'm new to the list

[Guest guest]

Hi !

I am new to the list. I have lived with RA / Lupus for over a decade. I

am on Methotrexate, Remicade, Prednisone and Colchichine... to name a

few of the drugs <g>

I don't go outside much due to heightened photosensitivity from the

lupus AND the drugs. Yes, I should have purchased stock in a sunscreen

company [ I would have been rich off myself].

I live in the Southern California [ the Inland Valley, Rancho Cucamonga

to be exact <g>] and lead a support group for those with

RA-Lupus-Fibromyalgia- other AI's [ auto immune illnesses] and Chronic

Pain. I did this because when I went looking for a local support group,

I was given the run-around between local chapters of certain

organizations and my local hospitals. [ one group would say check your

local hospital, the hospital would tell me to check with the local

organization] I have also spoken with many other people during my

monthly infusions who were looking for someplace they could get answers

and find others like themselves to talk too... It is amazing what you

can learn from others when you get a chance to sit down and talk.

I've found that remicade infusions are good for my body and soul! It is

great to chat with others and share our views on life and health... the

support group is great because now we can do that without an IV in our

arms/hands <g>!!

I'm looking forward to meeting others on this list and sharing...

Ms.

IVRDSG@... [ support group for the Inland Valley / Inland Empire]