Re: Bad day - elevated sed rate and CRP again

[Guest guest]

So sorry you are feeling bad and discouraged, too, Tracie.

Let us know what you and your physician decide to do.Not an MDI'll tell you

where to go!Mayo Clinic in Rochesterhttp://www.mayoclinic.org/rochesters

Hopkins Medicinehttp://www.hopkinsmedicine.org

> > From: tracierae143@...> Date: Fri, 4 Aug

2006 15:46:28 +0000> Subject: [ ] Bad day - elevated sed rate and CRP

again> > Hi all,> > I am having a bad day. My sed rate was up so they sent me

for a c-> reactive protein which was also high. Now i am waiting for my rheumy

> to call and tell me what he is going to attempt with my meds. This is > my

body's response after having to come off of the Humira. I cannot > go back on

it because of the severe pneumonia. I am allergic to > sulfa. Not sure what he

will do. Maybe up my MTX and Prednisone? I > was praying for a brief remission

after being on the Humira because > sometimes that happens, but no luck here.

Just wanted to vent. > Thanks for listening. Sometimes this disease is sooo

discouraging. I > have been in more pain lately though and much more swollen.

> > Hugs to all,> > Tracie

[Guest guest]

Hi

I just got my latest labs back this morning, after 14 days on Imuran, my

C-Reactive Protein has gone from a high of 2.2 down to .6 on the other side of

that coin, my Total Protein is now too low at 6.3

Sometimes you can't win. Have you been on Imuran?

Patsy

---- tracierae143 <tracierae143@...> wrote:

Hi all,

I am having a bad day. My sed rate was up so they sent me for a c-

reactive protein which was also high. Now i am waiting for my rheumy

to call and tell me what he is going to attempt with my meds.

[Guest guest]

I hope you're feeling better soon, Tracie.

>

> Hi all,

>

> I am having a bad day. My sed rate was up so they sent me for a c-

> reactive protein which was also high. Now i am waiting for my rheumy

> to call and tell me what he is going to attempt with my meds. This is

> my body's response after having to come off of the Humira. I cannot

> go back on it because of the severe pneumonia. I am allergic to

> sulfa. Not sure what he will do. Maybe up my MTX and Prednisone? I

> was praying for a brief remission after being on the Humira because

> sometimes that happens, but no luck here. Just wanted to vent.

> Thanks for listening. Sometimes this disease is sooo discouraging. I

> have been in more pain lately though and much more swollen.

>

> Hugs to all,

>

> Tracie

>

[Guest guest]

Tracie,

Sorry to hear the sed rate is elevated. Know the feeling, however.

25 mg MTX is what I am always given. I was told even that would not

work on its own. I was offered the remicade. been there done that.

will wait until they can control the infections before re-starting

biologics.

I took the arava, it helped greatly but could not tolerate the

symptoms. The side-effect came on quickly and violently There is

someone here that says it didn't help at all and had no symptoms so

our bodies are drastically different sometimes in how we metabolize

the different meds and/or how it helps the auto-immune disorder

differently.

I wish you the best on it. I wasn't given folic acid when on it

maybe this is something that can help you avoid some of the side

effects.

wishing you the best possible outcome,

Ebony