Guest guest Posted February 16, 2002 Report Share Posted February 16, 2002 e: I hope you feel better soon. -Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 e I hope you are feeling better as well. I am so sorry to hear that you are in a hotel. Did martha come to see you? I hope that the job interview process is going good. You deserve the best. You are such a kind person that you really need something better than this present situation. Love and prayers, Angelika ----- Original Message ----- From: perlesetlacet@... Sent: Saturday, February 16, 2002 2:51 PM Subject: Re: Update.... e:I hope you feel better soon.-Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 Oh my gosh!!! I am sooo extremely happy that your mom came to visit you. That is the best news. I hope everything is going better as a result. I have faith in St. Jude. I really believe in him and he has answered my prayers in the past. I keep a rosary over my door to watch over me. I will prayer for you. Love, Angelika ----- Original Message ----- From: " e Rene " <e_Rene@...> < >; <SalineInfo > Sent: Saturday, February 16, 2002 2:17 PM Subject: Update.... > Hello everyone, > > Just thought I'd let you know how I am doing. I am doing better than my > last email on Thurs, but still feeling claustrophobic and panicky. My mom > actually came out for the last few days, and we were able to get > reconnected, which helped quite a bit. However, she left this AM about > 415am, and I was very sad to see her go. We talked a lot out, and hopefully > things will be better between us, although it will still require a lot of > work..... > > My pain is much better, almost gone except for some burning in my right hip > and muscle pain in my posterior neck. I am still wearing this horrible > cervical collar 24/7, and that is honestly the worst. I am allowed no > lateral or vertical movement in my neck, and I feel like I am a prisoner in > my own body. The panic attacks are occurring more frequently...On top of > that, the skin on my chin is starting to break down because of the chafing > from the collar, and so yesterday, my mother took me to the hospital to have > the collar looked at to see if I needed to have it refit. But it supposedly > fits well, and is the best fit they can get. So, I had to place some > moleskin on my collar and hopefully that will prevent further chafing. > > The panic attacks occur mostly at night, when the drapes in the hotel room > are pulled closed, and there is no daylight. I start to ruminate on the bad > things that can happen from this surgery (like ending up paralyzed if the > pieces of bone " kick out " , or another non-union). I am only able to sleep > about 1-2 hrs at a time because I need to get up and stretch my hip and move > around to prevent cramping. I am not getting quality sleep, and with waking > up so much during the night, I am having a real hard time. When I sleep, I > am limited to sleeping on my back and again, not having any lateral or > vertical movement of my neck. I am a stomach sleeper, so it makes this that > much more difficult. It is truly such an awful feeling to feel like you > can't escape from your body..... > > I have monofilament sutures subcuticularly in both my hip and neck incision, > and they will be pulled in 2 wks (I'm allergic to prolene and vicryl > sutures, which are typically the ones used for the dissovable kind). I am > able to shower, but again, must do it with a cervical collar and that makes > it very difficult to wash my hair or do much of anything else in the shower. > I can't bend down to wash my legs, so I had to get a long brush to wash my > lower body. I can't blow dry my hair well, nor style it as I have to have > the collar in place and again, my movement is limited. So, as you can see, > I am absolutely miserable!!! > > Sorry to bore you all with the details, but thought I'd let you know how > everything is going. Please keep me in your prayers and thoughts, as I'm > honestly scared to death that I will not be able to take care of myself, or > will do something that will jeopardize the union of this fusion. I have > started to pray to St. Jude asking for God's help, strength, and courage, > and that is something I have not done in about 8 yrs. But I seriously need > all the help and prayers I can get. > > I hope I can get online and just " talk " when I experience my panic attacks, > as this is one of the only things that keeps me focused now. If I know that > I have people out there to " talk " to, I will feel better. I am staying at > the Marriott Towneplace Suites (courtesy of my mom) for at least a month. > If any of you would like to reach me, the number directly into my room is > (303) 563-2435. I am in room 135, if for some reason the voice mail kicked > you over to the front desk. > > Thank you each and every one of you who has been so supportive and helpful > and kind. Words alone cannot express how grateful I truly am to " know " you > all even though I can't put a face with the name. But maybe someday! I > have truly appreciated all the suggestions and offers, and I hold you all > near and dear to my heart. > > e > > > > _________________________________________________________________ > Join the world's largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2002 Report Share Posted February 17, 2002 I am glad your are getting better, I always pray for you dear e, so I will continue to hold you in my thoughts, it is late now so I will try to call you tomorrow as I don't want to wake you if you are resting. You are such a special woman and much needed in this world, god has a plan for us all and you are definitely going to get well, I know, it may take time, I am so happy your mom is communicating with you too, that is wonderful news, I will pray that your relationship will continue to grow with her, I know how much I love my mother too. God bless, and try to destress, maybe get some sleep meds or valerian, something to ease you into sleep, and help you from getting anxious, it has been awhile for me since I have had an anxiety attack, used to get them all the time when I still had implants, felt so trapped in my body too, I know what your going through where anxiety is concerned, and I wish I could help in some way. Please don't hesitate to call me either, if you need to talk and time doesn't matter I can always get up to talk to a friend in need. 208-522-1137 Love blessings ----- Original Message ----- From: " e Rene " <e_Rene@...> < >; <SalineInfo > Sent: Saturday, February 16, 2002 12:17 PM Subject: Update.... > Hello everyone, > > Just thought I'd let you know how I am doing. I am doing better than my > last email on Thurs, but still feeling claustrophobic and panicky. My mom > actually came out for the last few days, and we were able to get > reconnected, which helped quite a bit. However, she left this AM about > 415am, and I was very sad to see her go. We talked a lot out, and hopefully > things will be better between us, although it will still require a lot of > work..... > > My pain is much better, almost gone except for some burning in my right hip > and muscle pain in my posterior neck. I am still wearing this horrible > cervical collar 24/7, and that is honestly the worst. I am allowed no > lateral or vertical movement in my neck, and I feel like I am a prisoner in > my own body. The panic attacks are occurring more frequently...On top of > that, the skin on my chin is starting to break down because of the chafing > from the collar, and so yesterday, my mother took me to the hospital to have > the collar looked at to see if I needed to have it refit. But it supposedly > fits well, and is the best fit they can get. So, I had to place some > moleskin on my collar and hopefully that will prevent further chafing. > > The panic attacks occur mostly at night, when the drapes in the hotel room > are pulled closed, and there is no daylight. I start to ruminate on the bad > things that can happen from this surgery (like ending up paralyzed if the > pieces of bone " kick out " , or another non-union). I am only able to sleep > about 1-2 hrs at a time because I need to get up and stretch my hip and move > around to prevent cramping. I am not getting quality sleep, and with waking > up so much during the night, I am having a real hard time. When I sleep, I > am limited to sleeping on my back and again, not having any lateral or > vertical movement of my neck. I am a stomach sleeper, so it makes this that > much more difficult. It is truly such an awful feeling to feel like you > can't escape from your body..... > > I have monofilament sutures subcuticularly in both my hip and neck incision, > and they will be pulled in 2 wks (I'm allergic to prolene and vicryl > sutures, which are typically the ones used for the dissovable kind). I am > able to shower, but again, must do it with a cervical collar and that makes > it very difficult to wash my hair or do much of anything else in the shower. > I can't bend down to wash my legs, so I had to get a long brush to wash my > lower body. I can't blow dry my hair well, nor style it as I have to have > the collar in place and again, my movement is limited. So, as you can see, > I am absolutely miserable!!! > > Sorry to bore you all with the details, but thought I'd let you know how > everything is going. Please keep me in your prayers and thoughts, as I'm > honestly scared to death that I will not be able to take care of myself, or > will do something that will jeopardize the union of this fusion. I have > started to pray to St. Jude asking for God's help, strength, and courage, > and that is something I have not done in about 8 yrs. But I seriously need > all the help and prayers I can get. > > I hope I can get online and just " talk " when I experience my panic attacks, > as this is one of the only things that keeps me focused now. If I know that > I have people out there to " talk " to, I will feel better. I am staying at > the Marriott Towneplace Suites (courtesy of my mom) for at least a month. > If any of you would like to reach me, the number directly into my room is > (303) 563-2435. I am in room 135, if for some reason the voice mail kicked > you over to the front desk. > > Thank you each and every one of you who has been so supportive and helpful > and kind. Words alone cannot express how grateful I truly am to " know " you > all even though I can't put a face with the name. But maybe someday! I > have truly appreciated all the suggestions and offers, and I hold you all > near and dear to my heart. > > e > > > > _________________________________________________________________ > Join the world’s largest e-mail service with MSN Hotmail. > http://www.hotmail.com > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 22, 2005 Report Share Posted May 22, 2005 Carla, Hi join the crowd my blood work only supported my RA for frist 2 visits i think mybe 1 . and I've never gotten but a couple days releife and just recently have more joint damage and have normal SED rate and negitive RA factor ! but the pain , and joint damage are still very real so yes it is a comlicated diease that i can not figuer out either with much research haha but i have come to know what i do that makes me hurt worse but not other things that bring on flairs such as weather , enviromental ,and such ? later john carla_7971 <carla_7971@...> wrote: Hello everyone...I spoke with my Rheumy's office yesterday, and now they are tellingme that ALL of my ANA results came back negative. I am so confused! I have severe painful swelling in my hands and fingers, and in my wrists, as well as elbows and shoulders. I have the classic rash on my face, and feel very crumby most all of the time. Some days the exhaustion is just so unbearable. My Dr. is to call me on Mondaywith instructions for a follow-up appt. Does anyone have any suggestions as to why there was a change from positive to negative in my ANA, and I still have all the physical symptoms???Goodness, this is soooooo aggrevating! Good night to all, hope allis well with everyone.Carla__________________________________________________ Quote Link to comment Share on other sites More sharing options...
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