Re: Turns out its Fibro....

January 11, 2006

In a message dated 1/11/2006 2:37:02 PM Central Standard Time,

nashirafae@... writes:

Went to see the RA doc today and it turns out I have fibro. Now what exactly

does that mean? She did this thing where she pushed on different spots of my

body and by doing so she actually caused the skin pain I have had to come

back. And to think I was having a good day. So for those who have this if you

don't mind my asking what does this mean. My father read over the pamphlet

that I was given by the RA doctor and got a little upset when he saw the word

" cure " written on it. He told me there is no cure for it and it makes him very

angry that they would say such a thing.

Is this something that can get progressively worse and is there something

besides narcotics for the pain that others have found work better? I also spoke

to my PCP and he told me that he will not keep me on Oxycodone because it is

bad medicine. I take this crap, it hardly works, and now I am told it's a

bad thing. He told me to finish off this med and then he will give me

something different. Would it not be better just to take me off it now than to

continue on something he considers bad???

I am aware that the folks here are not doctors but as I said before I have

found that the information/advice I get out of those who suffer is more

helpful then what most doctors have told me. They do not seem to really get it

if

they are not actually experiencing it you know?

I also realized today that I some how became stupid. Ok not stupid but my

brain seems not right. I am not sure how else to explain it. My husband keeps

asking me what the heck is wrong. I cannot think straight. I would blame the

meds but I have been on them for over a year now. It's totally weird.

sorry about your diagnosis. I dont have fibro that i know of. hugs i get

loopy some days too. dont know why. hugs take care

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