Guest guest Posted March 26, 2006 Report Share Posted March 26, 2006 Count me in on the recent idiopathic knee pain thing. I have low cortisol, a PWC for 13 years, and within the last two years my knees are hurting for no apparent reason. No abx and I take mag. Hard to figure if it is even CFS related. I am 49. Mike C > > > > I also read that people who were taking corticosteroids were more > prone to > > damage from quinolones. So,if we once had high cortisol levels,it > might be > > possible that,this was the cause for us to be more effected by > quinolones. > > Glad that you are improving.This gave me some hopes. > > Best wishes. > > Nil > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Marcia and Mike C, I can only add that you can consider two things: When did the pain start relative to what you were doing? Did you start a medication prior to the pain? Gain weight? etc Where in the knee is the pain located? I had Lyme disease pain in my knees for many years. This tended to be inside the joint much like arthritis and sometimes the knee would become slightly red and swollen especially if I exercised. Back then I was othewise healthy and able to run, ride a bike, swim, etc. The Lyme disease also caused pain in other joints such as small finger joints. My current knee problems were entirely different. The pain was in the ligaments, tendons, and muscles leading into the knees. All the tendons in both knees were involved. There was no redness or swelling - just terrible pain. It was more obvious when I was stepping up on curbs or stairs. Hopefully, you can get some idea of what is causing the pain by sorting through your own details. a Carnes > > > > > > I also read that people who were taking corticosteroids were > more > > prone to > > > damage from quinolones. So,if we once had high cortisol > levels,it > > might be > > > possible that,this was the cause for us to be more effected by > > quinolones. > > > Glad that you are improving.This gave me some hopes. > > > Best wishes. > > > Nil > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Marcia have you tried Whey Protein at a low dosage - if so have you looked into other pathways of boosting glutathione ie turmeric, selenium, milk thistle, mg, vit c, zinc ? Reagrds CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Lyme tends to cause one-sided knee pain as the tick is usually on the ground, crawls up your leg, and the first big juicy vein it finds is right behind the knee. There tend to be a greater # of spirochetes in the tissues where you were bit. > > > > > > > > I also read that people who were taking corticosteroids were > > more > > > prone to > > > > damage from quinolones. So,if we once had high cortisol > > levels,it > > > might be > > > > possible that,this was the cause for us to be more effected > by > > > quinolones. > > > > Glad that you are improving.This gave me some hopes. > > > > Best wishes. > > > > Nil > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Marcia and Mike C, I can only add that you can consider two things: When did the pain start relative to what you were doing? Did you start a medication prior to the pain? Gain weight? etc I gained weight slowly over the years (maybe 5 lbs a year) My knee pain came along with my fibro symptoms, slowly over the years getting worse and worse, during a period I didnt' take any antibiotics or other meds for about 10yrs. I'd had cfs about 8 yrs by then, but it was changing from the swollen gland/infectious kind of stage to the stage where that part stopped and the pain/fibro phase began. Where in the knee is the pain located? I had Lyme disease pain in my knees for many years. This tended to be inside the joint much like arthritis and sometimes the knee would become slightly red and swollen especially if I exercised. the whole knee, around the knee, I think a lot of it is connective tissue. I've never had any swelling or redness in it at all. Back then I was othewise healthy and able to run, ride a bike, swim, etc. The Lyme disease also caused pain in other joints such as small finger joints. I had a lot of pain off and on in small finger joints also about 15 yrs into cfs, thats all gone for about a year since the Vite D tho. My current knee problems were entirely different. The pain was in the ligaments, tendons, and muscles leading into the knees. All the tendons in both knees were involved. There was no redness or swelling - just terrible pain. It was more obvious when I was stepping up on curbs or stairs. Hopefully, you can get some idea of what is causing the pain by sorting through your own details. Well, I'm not having much pain there at all anymore since I started the vite D last year, so its really not even an issue on my list to take care of, I have the blocked methylation probs and VERY low gluathione thats not coming up with supplementation and a mouth full of mercury that I'm having a terrible time trying to get taken care of, etc. I'm just glad the severe pain phase of my fibro/illness is history for now! Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 yes to all the below. Marcia Re: Re: knee pain/ Marcia have you tried Whey Protein at a low dosage - if so have you looked into other pathways of boosting glutathione ie turmeric, selenium, milk thistle, mg, vit c, zinc ? Reagrds CS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 Re: knee pain/ I don't think all CFS is lyme. I think at least 50% is and probably more towards 70%. I do believe all CFS has chronic infection as the main problem. I think cfs is riddled with infection elements too, viral, bacterial, fungal, I'm just not sure if its the chicken or the egg :-/ Marcia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2006 Report Share Posted August 9, 2006 hi , Thanks for your note. I did get steroid injections in my Rt shoulder but they were very uncomfortable. Also it only helped relieve the pain for 3-4 days at most. Probably since I am Rt handed and need to use my arm for my chores etc. But if my rheum gives me one in my knee then I will try not to walk much for a day afterward. Only plain xrays were done for my knees. I am able to bend both legs ok but can't keep either bent for long periods. If the pain gets worse I will call my rheum. Sorry to hear you have a torn ligament in your knee. That's way painful I am sure. Hope you don't need a knee replacement. Good luck to you. hugs, Debbie L Quote Link to comment Share on other sites More sharing options...
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