ot eyes

[Guest guest]

Hi everyone,

, I told you I would let you know what the Rheumy said about my eye. He

told me the surgeon is wrong that only one eye can be affect with the

inflammation from the RA. I told him all that has gone on and he wants me to

see someone he uses. I really think I will do this, apparently if it is the RA,

that is not so good. He said due to previous problems with drugs he has held

off treating me with aggression. I don't do well with the new drugs, as we

know. But if in deed the inflammation is due to the Ra than we will have to try

something to slow it down. My problem I am so afraid to try something new. I

really have a bad track record. I was suppose to try the Boniva IV today and

backed out. He was upset or anything. He told me, he understanding completely

that I am afraid.

I am upset that the surgeon told me, no way could it be the inflammation.

That Ra is always on both sides. I did to explain that, that is not always

true. My one hip is much worse than the other. Well the good news is I don't

need my glasses anymore, so that was a plus.

Just wanted to let you know. Hope everyone has a peaceful and painfree night.

Lynn (MeMom)

[Guest guest]

Hi Lynn, I've been dealing with inflammatory eye disease from RA for about 6

years now, and it usually presents any way it wants to. I've had both eyes

inflamed some times and only one other times. And I've had corneal inflammation

and optic nerve inflammation. I found it best to go through my Rheum for a

referral to an Opthmolgiest, since they are kinda rare complications that most

neighborhood eye doctors do not see on a regular bases.

If you live in an urban area you might be able to get a referral to an ocular

immunologist.

It's a real bear having a rare disease like Uvitis, but good vision is worth

fighting for, and go with the folks who will take your eye inflammation

seriously.

With you in the fight.

in Round Rock, TX

[Guest guest]

I'm glad you followed up with your rheumatologist, Lynn. How is your eye

right now?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] ot eyes

> Hi everyone,

> , I told you I would let you know what the Rheumy said about my eye.

> He told me the surgeon is wrong that only one eye can be affect with the

> inflammation from the RA. I told him all that has gone on and he wants me

> to see someone he uses. I really think I will do this, apparently if it

> is the RA, that is not so good. He said due to previous problems with

> drugs he has held off treating me with aggression. I don't do well with

> the new drugs, as we know. But if in deed the inflammation is due to the

> Ra than we will have to try something to slow it down. My problem I am so

> afraid to try something new. I really have a bad track record. I was

> suppose to try the Boniva IV today and backed out. He was upset or

> anything. He told me, he understanding completely that I am afraid.

> I am upset that the surgeon told me, no way could it be the inflammation.

> That Ra is always on both sides. I did to explain that, that is not

> always true. My one hip is much worse than the other. Well the good news

> is I don't need my glasses anymore, so that was a plus.

> Just wanted to let you know. Hope everyone has a peaceful and painfree

> night.

> Lynn (MeMom)

[Guest guest]

Hi ,

I am sorry I didn't get right back to you. My daughter had surgery on

Thursday so I have been taking care of her. She is on the mend.

Could you tell me how your eye feels? Is sun light a problem for you when

the eye is bothering you?

See my problem is my eye was absolutely fine until the day something blew

into it. That is what started this whole thing. I know something went into

the eye because I felt it. The doctor told me the next day it took a

foreign object out of the eye.

Thank you for all your help, I appreciate everything.

Lynn (MeMom)

Re: [ ] ot eyes

> Hi Lynn, I've been dealing with inflammatory eye disease from RA for about

> 6

> years now, and it usually presents any way it wants to. I've had both eyes

> inflamed some times and only one other times. And I've had corneal

> inflammation

> and optic nerve inflammation. I found it best to go through my Rheum for a

> referral to an Opthmolgiest, since they are kinda rare complications that

> most

> neighborhood eye doctors do not see on a regular bases.

> If you live in an urban area you might be able to get a referral to an

> ocular

> immunologist.

> It's a real bear having a rare disease like Uvitis, but good vision is

> worth

> fighting for, and go with the folks who will take your eye inflammation

> seriously.

> With you in the fight.

> in Round Rock, TX

>

>

>

>

[Guest guest]

Hi ,

I am so sorry for not getting back to you. Cherylynn had extensive sinus

and nose surgery on Thursday. I have been taking care of her. It was long

and nasty operation. She is on the mend now but she looks terrible.

My seems to flare on occasion. I will call the doctor the Rheumy has

recommended. He deals with people with Ra and eye problems. The thing that

is bothering me is my eye was fine until that day when something blew into

it. That is what started the whole inflammation thing. It hasn't felt bad

today but who knows about tomorrow.

thank you for your help. You know how I feel about you and all that

you do. Do you know this month it has been 5 years since the whipple? You

were there for me 100% when that was going on. Funny how time flies. I

need to check on Cherylynn, again thanks.

Lynn

[ ] ot eyes

>

>

>> Hi everyone,

>> , I told you I would let you know what the Rheumy said about my eye.

>> He told me the surgeon is wrong that only one eye can be affect with the

>> inflammation from the RA. I told him all that has gone on and he wants

>> me

>> to see someone he uses. I really think I will do this, apparently if it

>> is the RA, that is not so good. He said due to previous problems with

>> drugs he has held off treating me with aggression. I don't do well with

>> the new drugs, as we know. But if in deed the inflammation is due to the

>> Ra than we will have to try something to slow it down. My problem I am

>> so

>> afraid to try something new. I really have a bad track record. I was

>> suppose to try the Boniva IV today and backed out. He was upset or

>> anything. He told me, he understanding completely that I am afraid.

>> I am upset that the surgeon told me, no way could it be the

>> inflammation.

>> That Ra is always on both sides. I did to explain that, that is not

>> always true. My one hip is much worse than the other. Well the good

>> news

>> is I don't need my glasses anymore, so that was a plus.

>> Just wanted to let you know. Hope everyone has a peaceful and painfree

>> night.

>> Lynn (MeMom)

>

>

>

>

[Guest guest]

Hi Lynn, I hope your Daughter is feeling better, my DIL had the same surgery

last year and it's a rough one.

I have two types of eye problems, one is Sjogren's/Dry Eyes, which started

like you described with the feeling that a foreign object was in my eye all the

time. It kinda also felt like allergies, so I would use allergy drops which

wasn't a very good idea since all it did was dry my eyes out more. One morning I

woke up with my eyelids stuck together, I was totally freaked out. Luckily,

at the time I had a great primary doctor who knew my arthritis history and I

had a diagnosis that same day. I use moistening tears about every 1/2 hour and a

moistening ointment at night. Not every doctor will do this, but my Opth.

gave me a steroid drop to use twice a day, and it has made all the difference.

Although, it does have a lot of side effects and I keep up with have my eye

pressure checked frequently. I tried Restates but they burned too much. There

are

also some little plugs they can put in the tear ducts to conserve eye

moisture, it sounds worse then what it is. Very simple, just about painless

procedure,

if your eye problem is dry eyes it will help a lot.

The other eye problem I have is optic nerve inflammation, I have some type of

overlap syndrome going on, either Lupus or MS, so that would be really

unlikely to happen to most people with RA. But that makes my eyes very bleary

and

I've lost some of my peripheral vision.

There are some other types of eye inflammation that can happen to people with

RA that involve the front part of the eye, or the anterior chamber, I'm sure

your Doctor wants to make sure this isn't happening, but it's treatable also!

My eyes are sensitive to light from the dry eyes, I wear wraparound

sunglasses outside all the time, which is easy to do in Texas since just about

everyone

wears sunglasses.

I hope this isn't more information then what you wanted, Lynn. Hope you get a

chance to rest up from taking care of your Daughter.

Wishing you a pain free day.

[Guest guest]

HI

I just called the eye doctor again. I am meeting with him this afternoon.

He told me to put moisturizing drops in the eye every half hour and see

how that feels afterwards. Says that will tell him a lot. This is the

office I have been going to. Since I have to call the Rheumy to get someone

he recommends. Now I am getting scared. But since I started the drops 1

1/2 hours ago I am able to look at that computer screen. I'll let you know.

Lynn

Re: [ ] ot eyes

> Hi Lynn, I hope your Daughter is feeling better, my DIL had the same

> surgery

> last year and it's a rough one.

> I have two types of eye problems, one is Sjogren's/Dry Eyes, which started

> like you described with the feeling that a foreign object was in my eye

> all the

> time. It kinda also felt like allergies, so I would use allergy drops

> which

> wasn't a very good idea since all it did was dry my eyes out more. One

> morning I

> woke up with my eyelids stuck together, I was totally freaked out.

> Luckily,

> at the time I had a great primary doctor who knew my arthritis history and

> I

> had a diagnosis that same day. I use moistening tears about every 1/2 hour

> and a

> moistening ointment at night. Not every doctor will do this, but my Opth.

> gave me a steroid drop to use twice a day, and it has made all the

> difference.

> Although, it does have a lot of side effects and I keep up with have my

> eye

> pressure checked frequently. I tried Restates but they burned too much.

> There are

> also some little plugs they can put in the tear ducts to conserve eye

> moisture, it sounds worse then what it is. Very simple, just about

> painless procedure,

> if your eye problem is dry eyes it will help a lot.

> The other eye problem I have is optic nerve inflammation, I have some type

> of

> overlap syndrome going on, either Lupus or MS, so that would be really

> unlikely to happen to most people with RA. But that makes my eyes very

> bleary and

> I've lost some of my peripheral vision.

> There are some other types of eye inflammation that can happen to people

> with

> RA that involve the front part of the eye, or the anterior chamber, I'm

> sure

> your Doctor wants to make sure this isn't happening, but it's treatable

> also!

> My eyes are sensitive to light from the dry eyes, I wear wraparound

> sunglasses outside all the time, which is easy to do in Texas since just

> about everyone

> wears sunglasses.

> I hope this isn't more information then what you wanted, Lynn. Hope you

> get a

> chance to rest up from taking care of your Daughter.

> Wishing you a pain free day.

>

>

>

>

[Guest guest]

Hi , I did take Embrel for about 1 1/2, that when all this MS looking

stuff started and my Lupus antibodies became positive. But it didn't stop after

I

stopped the Embrel, the episode I have now is about the 23 ON episode.

I didn't realize to just today that Rituxan can also cause ON, both drugs

have been so good for my quality of life, removing both the pain and fatigue.

I'm

really getting discouraged and running out of medication choices, MTX caused

lung problems, Areva, Liver problems, Cyclosporine, caused hypertension and

Cellcept just didn't work. I'm back on a moderate dose of Predisone till Thus of

this week when I have a Rheum appointment followed by a Neurologist

appointment next week. I hope and pray they get this thing figured out soon,

next is

Cytoxen which I really don't want.

Thanks for caring.

[Guest guest]

Hi Lynn,

Dry eyes can occur without Sjogren's. With Sjogren's you would usually have a

dry mouth also and possibly some salivary gland swelling, but a lot of people

with RA have both.

Hope your feeling better.

[Guest guest]

Hi Lynn,

Sounds like you have a great Doctor and I'm glad the eye drops helped so

much. It's good to know the eye doc appointment can wait.

Have a great day,

[Guest guest]

Hi ,

Well I called the doctor yesterday and he told me put moisturizing drops

in my eye every 30 minutes. I was keep this up until he called me back in a

few hours. He said how I felt at that time would tell him a lot. I did it

and was feeling much better when he called around 2. He said with the drops

helping that much what I have is dry eye. He told me what to get and use

the drops. I have to go for an eye exam but he said there is nothing to

worry about. I guess this is something I will have to keep a check on. I

have to call tomorrow and set up the appointment. I hope he is right but we

will see. He told me even if it was the RA they can treat that and work

with it all.

Thank you for all your help, I appreciate everything. I will let you know

how my appointment goes.

Lynn

Re: [ ] ot eyes

> Hi Lynn, I've been dealing with inflammatory eye disease from RA for about

> 6

> years now, and it usually presents any way it wants to. I've had both eyes

> inflamed some times and only one other times. And I've had corneal

> inflammation

> and optic nerve inflammation. I found it best to go through my Rheum for a

> referral to an Opthmolgiest, since they are kinda rare complications that

> most

> neighborhood eye doctors do not see on a regular bases.

> If you live in an urban area you might be able to get a referral to an

> ocular

> immunologist.

> It's a real bear having a rare disease like Uvitis, but good vision is

> worth

> fighting for, and go with the folks who will take your eye inflammation

> seriously.

> With you in the fight.

> in Round Rock, TX

>

>

>

>

[Guest guest]

is Sjogren's and Dry Eyes the same thing? When I spoke to the doctor

he didn't say that to me.

Thanks for your help,

Lynn

Re: [ ] ot eyes

> Hi Lynn, I hope your Daughter is feeling better, my DIL had the same

> surgery

> last year and it's a rough one.

> I have two types of eye problems, one is Sjogren's/Dry Eyes, which started

> like you described with the feeling that a foreign object was in my eye

> all the

> time. It kinda also felt like allergies, so I would use allergy drops

> which

> wasn't a very good idea since all it did was dry my eyes out more. One

> morning I

> woke up with my eyelids stuck together, I was totally freaked out.

> Luckily,

> at the time I had a great primary doctor who knew my arthritis history and

> I

> had a diagnosis that same day. I use moistening tears about every 1/2 hour

> and a

> moistening ointment at night. Not every doctor will do this, but my Opth.

> gave me a steroid drop to use twice a day, and it has made all the

> difference.

> Although, it does have a lot of side effects and I keep up with have my

> eye

> pressure checked frequently. I tried Restates but they burned too much.

> There are

> also some little plugs they can put in the tear ducts to conserve eye

> moisture, it sounds worse then what it is. Very simple, just about

> painless procedure,

> if your eye problem is dry eyes it will help a lot.

> The other eye problem I have is optic nerve inflammation, I have some type

> of

> overlap syndrome going on, either Lupus or MS, so that would be really

> unlikely to happen to most people with RA. But that makes my eyes very

> bleary and

> I've lost some of my peripheral vision.

> There are some other types of eye inflammation that can happen to people

> with

> RA that involve the front part of the eye, or the anterior chamber, I'm

> sure

> your Doctor wants to make sure this isn't happening, but it's treatable

> also!

> My eyes are sensitive to light from the dry eyes, I wear wraparound

> sunglasses outside all the time, which is easy to do in Texas since just

> about everyone

> wears sunglasses.

> I hope this isn't more information then what you wanted, Lynn. Hope you

> get a

> chance to rest up from taking care of your Daughter.

> Wishing you a pain free day.

>

>

>

>

[Guest guest]

Lynn,

Sorry that Cherylynn had to have surgery, but I hope she is recovering

nicely. It sounds horrible.

Please do go see that physician about your eye. You can't be too careful.

No, I can't believe it's been 5 years since your surgery! That was a scary

time. I was glad to offer you moral support. You did the hard part.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] ot eyes

> Hi ,

> I am so sorry for not getting back to you. Cherylynn had extensive sinus

> and nose surgery on Thursday. I have been taking care of her. It was

> long

> and nasty operation. She is on the mend now but she looks terrible.

> My seems to flare on occasion. I will call the doctor the Rheumy has

> recommended. He deals with people with Ra and eye problems. The thing

> that

> is bothering me is my eye was fine until that day when something blew into

> it. That is what started the whole inflammation thing. It hasn't felt

> bad

> today but who knows about tomorrow.

> thank you for your help. You know how I feel about you and all that

> you do. Do you know this month it has been 5 years since the whipple?

> You

> were there for me 100% when that was going on. Funny how time flies. I

> need to check on Cherylynn, again thanks.

> Lynn

[Guest guest]

,

Since you mentioned optic neuritis, I'm wondering if you were ever on any of

the anti-TNF biologics.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] ot eyes

> Hi Lynn, I hope your Daughter is feeling better, my DIL had the same

> surgery

> last year and it's a rough one.

> I have two types of eye problems, one is Sjogren's/Dry Eyes, which started

> like you described with the feeling that a foreign object was in my eye

> all the

> time. It kinda also felt like allergies, so I would use allergy drops

> which

> wasn't a very good idea since all it did was dry my eyes out more. One

> morning I

> woke up with my eyelids stuck together, I was totally freaked out.

> Luckily,

> at the time I had a great primary doctor who knew my arthritis history and

> I

> had a diagnosis that same day. I use moistening tears about every 1/2 hour

> and a

> moistening ointment at night. Not every doctor will do this, but my Opth.

> gave me a steroid drop to use twice a day, and it has made all the

> difference.

> Although, it does have a lot of side effects and I keep up with have my

> eye

> pressure checked frequently. I tried Restates but they burned too much.

> There are

> also some little plugs they can put in the tear ducts to conserve eye

> moisture, it sounds worse then what it is. Very simple, just about

> painless procedure,

> if your eye problem is dry eyes it will help a lot.

> The other eye problem I have is optic nerve inflammation, I have some type

> of

> overlap syndrome going on, either Lupus or MS, so that would be really

> unlikely to happen to most people with RA. But that makes my eyes very

> bleary and

> I've lost some of my peripheral vision.

> There are some other types of eye inflammation that can happen to people

> with

> RA that involve the front part of the eye, or the anterior chamber, I'm

> sure

> your Doctor wants to make sure this isn't happening, but it's treatable

> also!

> My eyes are sensitive to light from the dry eyes, I wear wraparound

> sunglasses outside all the time, which is easy to do in Texas since just

> about everyone

> wears sunglasses.

> I hope this isn't more information then what you wanted, Lynn. Hope you

> get a

> chance to rest up from taking care of your Daughter.

> Wishing you a pain free day.

>

[Guest guest]

I took remicade one time. It was two days later that I had the pancreatic

attack.

Re: [ ] ot eyes

>

>

>> Hi Lynn, I hope your Daughter is feeling better, my DIL had the same

>> surgery

>> last year and it's a rough one.

>> I have two types of eye problems, one is Sjogren's/Dry Eyes, which

>> started

>> like you described with the feeling that a foreign object was in my eye

>> all the

>> time. It kinda also felt like allergies, so I would use allergy drops

>> which

>> wasn't a very good idea since all it did was dry my eyes out more. One

>> morning I

>> woke up with my eyelids stuck together, I was totally freaked out.

>> Luckily,

>> at the time I had a great primary doctor who knew my arthritis history

>> and

>> I

>> had a diagnosis that same day. I use moistening tears about every 1/2

>> hour

>> and a

>> moistening ointment at night. Not every doctor will do this, but my Opth.

>> gave me a steroid drop to use twice a day, and it has made all the

>> difference.

>> Although, it does have a lot of side effects and I keep up with have my

>> eye

>> pressure checked frequently. I tried Restates but they burned too much.

>> There are

>> also some little plugs they can put in the tear ducts to conserve eye

>> moisture, it sounds worse then what it is. Very simple, just about

>> painless procedure,

>> if your eye problem is dry eyes it will help a lot.

>> The other eye problem I have is optic nerve inflammation, I have some

>> type

>> of

>> overlap syndrome going on, either Lupus or MS, so that would be really

>> unlikely to happen to most people with RA. But that makes my eyes very

>> bleary and

>> I've lost some of my peripheral vision.

>> There are some other types of eye inflammation that can happen to people

>> with

>> RA that involve the front part of the eye, or the anterior chamber, I'm

>> sure

>> your Doctor wants to make sure this isn't happening, but it's treatable

>> also!

>> My eyes are sensitive to light from the dry eyes, I wear wraparound

>> sunglasses outside all the time, which is easy to do in Texas since just

>> about everyone

>> wears sunglasses.

>> I hope this isn't more information then what you wanted, Lynn. Hope you

>> get a

>> chance to rest up from taking care of your Daughter.

>> Wishing you a pain free day.

>>

>

>

>

>

[Guest guest]

,

She looks awful but right now she is a little better. Very uncomfortable.

I think on Wednesday when they take the packing out she may feel a little

better. She is so swollen and black and blue. They told us her nose and

sinuses were so bad they do not know how she was breathing.

If it wasn't for you and all your help with that whipple not sure I would

have made it. Now it is not so hard. I hate restaurants see so much I

can't eat. But all and all I have accepted everything. I think the thing I

miss the most is a good salad. Considering all that happened I am grateful

to be here.

Hope you are well,

Lynn

Re: [ ] ot eyes

>

>

>> Hi ,

>> I am so sorry for not getting back to you. Cherylynn had extensive

>> sinus

>> and nose surgery on Thursday. I have been taking care of her. It was

>> long

>> and nasty operation. She is on the mend now but she looks terrible.

>> My seems to flare on occasion. I will call the doctor the Rheumy has

>> recommended. He deals with people with Ra and eye problems. The thing

>> that

>> is bothering me is my eye was fine until that day when something blew

>> into

>> it. That is what started the whole inflammation thing. It hasn't felt

>> bad

>> today but who knows about tomorrow.

>> thank you for your help. You know how I feel about you and all

>> that

>> you do. Do you know this month it has been 5 years since the whipple?

>> You

>> were there for me 100% when that was going on. Funny how time flies. I

>> need to check on Cherylynn, again thanks.

>> Lynn

>

>

>

>

[Guest guest]

Thanks , I am just having the eye problem. Hope the eye drops will be a

quick answer.

Thank you for all your help, I appreciate everything.

Lynn

Re: [ ] ot eyes

> Hi Lynn,

> Dry eyes can occur without Sjogren's. With Sjogren's you would usually

> have a

> dry mouth also and possibly some salivary gland swelling, but a lot of

> people

> with RA have both.

> Hope your feeling better.

>

>

>

>

[Guest guest]

Poor Cherylynn!

Lynn, you are giving me too much credit, but thank you for your kind words.

I know it must be hard to have to avoid so many foods. I'm very happy you

are here, too.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] ot eyes

> ,

> She looks awful but right now she is a little better. Very

> uncomfortable.

> I think on Wednesday when they take the packing out she may feel a little

> better. She is so swollen and black and blue. They told us her nose and

> sinuses were so bad they do not know how she was breathing.

> If it wasn't for you and all your help with that whipple not sure I would

> have made it. Now it is not so hard. I hate restaurants see so much I

> can't eat. But all and all I have accepted everything. I think the thing

> I

> miss the most is a good salad. Considering all that happened I am

> grateful

> to be here.

> Hope you are well,

> Lynn

[Guest guest]

,

Do you mean one and a half months or years of Enbrel? It sounds like Enbrel

was the trigger. Unfortunately, after discontinuation, the problems don't

always resolve.

How did they treat your optic neuritis after the first occurrence?

I hope your physicians have reported this to the manufacturer and/or the

FDA. If not, you can report it yourself:

http://www.fda.gov/medwatch/report/consumer/consumer.htm

Why were you taking CellCept?

Have you been with the same rheumatologist all along?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] ot eyes

> Hi , I did take Embrel for about 1 1/2, that when all this MS looking

> stuff started and my Lupus antibodies became positive. But it didn't stop

> after I

> stopped the Embrel, the episode I have now is about the 23 ON episode.

> I didn't realize to just today that Rituxan can also cause ON, both drugs

> have been so good for my quality of life, removing both the pain and

> fatigue. I'm

> really getting discouraged and running out of medication choices, MTX

> caused

> lung problems, Areva, Liver problems, Cyclosporine, caused hypertension

> and

> Cellcept just didn't work. I'm back on a moderate dose of Predisone till

> Thus of

> this week when I have a Rheum appointment followed by a Neurologist

> appointment next week. I hope and pray they get this thing figured out

> soon, next is

> Cytoxen which I really don't want.

> Thanks for caring.

>

[Guest guest]

Hi , It was after 1 and 1/2 years on Enbrel, around the end of 1999 the

beginning of 2000. I did change doctors, the first doctor thought I has RA and

the new one thought it was Lupus, but she later changed her mind and said I

had an RA/Lupus overlap. With the overlap and a strong family history of MS I

won't be taking any more TNF inhibitors.

I didn't want to scare any of our new members, but with the new therapies

being so targeted, it really is essential to have the right diagnosis before

trying them. If I had known then what I know now I would have going straight for

the MTX, since it can be used in a variety of disorders.

Thanks for asking, .

[Guest guest]

Thank you, my friend.

Lynn

Re: [ ] ot eyes

>

>

>> ,

>> She looks awful but right now she is a little better. Very

>> uncomfortable.

>> I think on Wednesday when they take the packing out she may feel a little

>> better. She is so swollen and black and blue. They told us her nose and

>> sinuses were so bad they do not know how she was breathing.

>> If it wasn't for you and all your help with that whipple not sure I would

>> have made it. Now it is not so hard. I hate restaurants see so much I

>> can't eat. But all and all I have accepted everything. I think the

>> thing

>> I

>> miss the most is a good salad. Considering all that happened I am

>> grateful

>> to be here.

>> Hope you are well,

>> Lynn

>

>

>

>

[Guest guest]

, if you don't mind saying, how many people in your family have MS?

I agree wholeheartedly that getting an accurate diagnosis is very, very

important. I wish it were easier to do so.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] ot eyes

> Hi , It was after 1 and 1/2 years on Enbrel, around the end of 1999

> the

> beginning of 2000. I did change doctors, the first doctor thought I has RA

> and

> the new one thought it was Lupus, but she later changed her mind and said

> I

> had an RA/Lupus overlap. With the overlap and a strong family history of

> MS I

> won't be taking any more TNF inhibitors.

> I didn't want to scare any of our new members, but with the new therapies

> being so targeted, it really is essential to have the right diagnosis

> before

> trying them. If I had known then what I know now I would have going

> straight for

> the MTX, since it can be used in a variety of disorders.

> Thanks for asking, .

>

[Guest guest]

Hi , Sorry for not answering sooner, but my eye inflammation really

exploded over the past week and I've been in and out of the hospital and not at

home. At least I got an answer to what is wrong, my test came back strongly

positive for Lupus and the MS test are all negative.

The folks with MS in my family are: my Mom's Sister and her Daughter and that

daughters two children, my Grandmother's Sister and her Daughter. In my

direct line the autoimmune diseases seem to be more RA or Lupus, my

Great-grandmother, and Grandmother had RA and my Mom and Sister also have Lupus,

I think my

Son is developing some type of arthritis also but it seems limited at this

point in time, and God willing, it will stay that way.

Hoping this next week is better then last week.

in Round Rock, TX

[Guest guest]

, sorry to hear that you've been having such serious problems. I hope

you will be able to stay home and recover.

That's some family history. I hope your son will be OK.

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

Re: [ ] ot eyes

> Hi , Sorry for not answering sooner, but my eye inflammation really

> exploded over the past week and I've been in and out of the hospital and

> not at

> home. At least I got an answer to what is wrong, my test came back

> strongly

> positive for Lupus and the MS test are all negative.

> The folks with MS in my family are: my Mom's Sister and her Daughter and

> that

> daughters two children, my Grandmother's Sister and her Daughter. In my

> direct line the autoimmune diseases seem to be more RA or Lupus, my

> Great-grandmother, and Grandmother had RA and my Mom and Sister also have

> Lupus, I think my

> Son is developing some type of arthritis also but it seems limited at this

> point in time, and God willing, it will stay that way.

> Hoping this next week is better then last week.

> in Round Rock, TX