Re: Final word from my DR...no RA...!

[Guest guest]

Sooey,

That is good news!! You can now do all you can for the Sarcoidosis,

good luck, Tawny

[Guest guest]

Great news, Sooey! Good luck to you.

Not an MD

[ ] Final word from my DR...no RA...!

> Hi Gang,

>

> I just got the final word from my Dr. yesterday. This was my visit

> with Dr. DiSabatino in New Haven CT for a second opinion. After a

> ton of questions, an exam, xrays and some final blood work, he is

> sure, at this point, I do not have RA. He sees OA in my hands,

> wrists, lower spine and left hip, but no indication of RA. I do have

> a positive RA Factor which was the cause for the referal to him by my

> Pulmonologist in the first place but, he feels it was a false

> positive caused by my chronic Sarcoidosis.

>

> This was very good news. I was surprised to get the word of the

> positive RA Factor from my Pulmo back in November and, once I got

> over the shock, was viewing it as a mixed blessing. Both

> Immunosuppresents and Methotrexate are two of the treatments now

> being used for Sarcoidosis. RA is treated early and aggessively in

> hopes of preventing joint damage. Sarcoid however, is not treated

> until you can not function without it. Often times this is after

> major amounts of lung have been damaged. That sucks. But...that's

> another Forum.

>

> So, thank you all for being here and helping me through a time of

> fear and questions. If the time comes that I do develop symptoms and

> full blown RA, I know you are here. I hope you are all as well as

> you can be and that each days finds you free of pain and full of

> hope. Thank you, all.

>

> Sooey

[Guest guest]

Hi Tawny,

Yes, it's a blessing. A mixed blessing, but a blessing none the

less. Now, it's one less DR. I have to find when I move to the Cape.

How are you doing?

Be well.

Sooey

>

> Sooey,

>

> That is good news!! You can now do all you can for the Sarcoidosis,

> good luck, Tawny

>

[Guest guest]

Thank you, .

sooey

--- In , " " <Matsumura_Clan@...>

wrote:

>

> Great news, Sooey! Good luck to you.

>

>

>

> Not an MD

>

>

> [ ] Final word from my DR...no RA...!

>

>

> > Hi Gang,

> >

> > I just got the final word from my Dr. yesterday. This was my

visit

> > with Dr. DiSabatino in New Haven CT for a second opinion. After

a

> > ton of questions, an exam, xrays and some final blood work, he is

> > sure, at this point, I do not have RA. He sees OA in my hands,

> > wrists, lower spine and left hip, but no indication of RA. I do

have

> > a positive RA Factor which was the cause for the referal to him

by my

> > Pulmonologist in the first place but, he feels it was a false

> > positive caused by my chronic Sarcoidosis.

> >

> > This was very good news. I was surprised to get the word of the

> > positive RA Factor from my Pulmo back in November and, once I got

> > over the shock, was viewing it as a mixed blessing. Both

> > Immunosuppresents and Methotrexate are two of the treatments now

> > being used for Sarcoidosis. RA is treated early and aggessively

in

> > hopes of preventing joint damage. Sarcoid however, is not

treated

> > until you can not function without it. Often times this is after

> > major amounts of lung have been damaged. That sucks.

But...that's

> > another Forum.

> >

> > So, thank you all for being here and helping me through a time of

> > fear and questions. If the time comes that I do develop symptoms

and

> > full blown RA, I know you are here. I hope you are all as well

as

> > you can be and that each days finds you free of pain and full of

> > hope. Thank you, all.

> >

> > Sooey

>

[Guest guest]

That is such wonderful news that you don't have to

deal with RA too! Congrats, and come back and visit

whenever you want. Take care - Kathe in CA

" Until he extends the circle of his compassion to all living things, man will

not himself find peace. "

— Albert Schweitzer, French Nobel Peace Prize-winning mission doctor and

theologian (1875-1965)

__________________________________________________

[Guest guest]

Hi Sooey,

Its bad enough finding out you have a disease, but mulitple problems,

then you start to lose it, or I do anyway. I've been stressed out so

much, and that isn't helping. I'm having problems with my blood

pressure and cholesterol being high. I have started on the meds. My

back and neck are causing me so much pain, I can't hardly function

anymore. I have some herniated discs and DDD. I just feel like I'm

falling apart. I am so happy you don't have the RA. Its a step in the

right direction. So your moving soon to Cape, you will have to let me

know how that goes? I have been off the group for so long, I'm lost.

You take care, Tawny

[Guest guest]

Hi Tawny,

I'm sorry to hear about the high bp and the

cholesterol. The meds for those can be a real pain.

I have high bp also and my Dr. has me on three meds to

control it. One of them is Diovan which has brought

my pressure down but causes me to be light headed. I

started taking it at night which has helped a great

deal. But now I feel stupid...slow and not with it.

I can't remember stuff and I feel like I've fallen off

the brain wagon. I hope it's the meds...

Sorry about the DDD. I know that is awful. I have

watched friends suffer with that and I know it is no

fun.

I'll be thinking of you. Be well.

sooey

--- tdianaok <tdianaok@...> wrote:

> Hi Sooey,

>

> Its bad enough finding out you have a disease, but

> mulitple problems,

> then you start to lose it, or I do anyway. I've

> been stressed out so

> much, and that isn't helping. I'm having problems

> with my blood

> pressure and cholesterol being high. I have started

> on the meds. My

> back and neck are causing me so much pain, I can't

> hardly function

> anymore. I have some herniated discs and DDD. I

> just feel like I'm

> falling apart. I am so happy you don't have the RA.

> Its a step in the

> right direction. So your moving soon to Cape, you

> will have to let me

> know how that goes? I have been off the group for

> so long, I'm lost.

> You take care, Tawny

>

>

>

>

>

>

>

__________________________________________________

[Guest guest]

Sooey,

I am wondering if the high bp is from the other meds I'm on for pain.

I never really had a problem with the bp before. My cholesterol and

triglicerides are very high, so who knows. I am taking Lovastatin

20mg daily(chol) and Hydrochlorothiazide 25mg daily daily(bp). I'm

sorry your feeling so bad on the meds, make sure you tell your doc.

The first cholesterol med caused me horrible side effects with my

lungs, so she took me off of it really fast. I am feeling OK on

these, with no side effects(yet) The DDD is very painful, along with

everything else, I'm pretty much in the house 24/7. I only go out to

grocery shop or pick up my meds, or the doc appointments. I don't

even feel like doing that. It takes so much that I don't have, to

just get ready. You take care, and let your doc know about the meds,

will talk to you soon, Tawny