ok does anyone feel like i do

[Guest guest]

In a message dated 1/12/2006 10:46:34 AM Central Standard Time,

lynn8953@... writes:

i know when i first became sick some of the older member always seemed too

relaxed about everything and it used to get to me-now i undrstand

better--the docs cant

fix what they do not even understand yet--and i have to learn to be there

for the

newbies--pay it forward kindof thing.....lynn

i feel the same way. i cant give up and die because i am sick. Life still

does go on. Today is a really positive one for me. Hope it stays that way! lol

hugs Way to go~pay it forward. hugs

[Guest guest]

hi its lynn,

i have been reading your group for a long time now and just put little snip-its

here and

there.i have been a member for a while and decided to step back which i see alot

of other

member have done from time to time.then i start to read the newbies letters and

my heart

sinks to hear all that chaos and pain coming through--i remember it all too

well....

i have been sick for 5 years now since the age of 43-knocked right off my

feet-lost

everything--i have been given at least 10 diagnosis by now--i have seen maybe 12

doctors--even a trip to boston to the big docs..............it has all been a

nightmare and of

course everything else in life goes haywire while you are sick --the world

doesnt stop

because you aren't well--actually you have more time to notice what is wrong

with

everything-even the paint on the ceiling haha.

i find now the best thing to do is to lie low-take the least amount of

medications i have

to-and just try to get by -myy old life is gone--and in the beginning -well for

4 years i

mourned it's passing....i fought tooth and nail for doctors--i insisted on

diagnosis " --new

meds ect...until i started to work on my mind more with meditation ect...it

really hs helped

me to calm down somewhat-i still flip out on occasion- and i still get depressed

-but

somehow it has changed---i no longer need that definate diagnosis--i no longer

need to

put my family through hell because i am in pain/sick--i have to accept what i

cant

change--its not like i have given up the fight--but i seem to have reached a

point of

relaxing--i know when i first became sick some of the older member always seemed

too

relaxed about everything and it used to get to me-now i undrstand better--the

docs cant

fix what they do not even understand yet--and i have to learn to be there for

the

newbies--pay it forward kindof thing.....lynn

[Guest guest]

Lynn. Your wisdome shine through and you are, indeed, " paying it forward " ! I

was telling

my husband yesterday (3rd flare in less than 2 weeks) that I'm better with each

serious

flare because I know that it WILL eventually go away in 48 hours (just how MY

flares work).

Point is, that little bit of knowledge and acceptance makes the biggest

difference in my

ability to cope better without expecting him to do anything other than go about

his usual

day. Thanks for your post.

wendy

>

> hi its lynn,

> i have been reading your group for a long time now and just put little

snip-its here and

> there.i have been a member for a while and decided to step back which i see

alot of

other

> member have done from time to time.then i start to read the newbies letters

and my

heart

> sinks to hear all that chaos and pain coming through--i remember it all too

well....

> i have been sick for 5 years now since the age of 43-knocked right off my

feet-lost

> everything--i have been given at least 10 diagnosis by now--i have seen maybe

12

> doctors--even a trip to boston to the big docs..............it has all been a

nightmare and

of

> course everything else in life goes haywire while you are sick --the world

doesnt stop

> because you aren't well--actually you have more time to notice what is wrong

with

> everything-even the paint on the ceiling haha.

> i find now the best thing to do is to lie low-take the least amount of

medications i have

> to-and just try to get by -myy old life is gone--and in the beginning -well

for 4 years i

> mourned it's passing....i fought tooth and nail for doctors--i insisted on

diagnosis " --

new

> meds ect...until i started to work on my mind more with meditation ect...it

really hs

helped

> me to calm down somewhat-i still flip out on occasion- and i still get

depressed -but

> somehow it has changed---i no longer need that definate diagnosis--i no longer

need

to

> put my family through hell because i am in pain/sick--i have to accept what i

cant

> change--its not like i have given up the fight--but i seem to have reached a

point of

> relaxing--i know when i first became sick some of the older member always

seemed too

> relaxed about everything and it used to get to me-now i undrstand better--the

docs

cant

> fix what they do not even understand yet--and i have to learn to be there for

the

> newbies--pay it forward kindof thing.....lynn

>