Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 Kay.... please forgive me if I upset you....I`m trying to help.... I`m glad you are going to see a doctor, that`a great news.Ask questions. Once again... there is no medicine that treats cirrhosis. If you have alcoholic or drug induced (Tyelenol) cirrhosis the only treatment is cessation of those toxins. Hepatic encephalopathy is a COMPLICATION of cirrhosis and is treated with low or no protien diet and Lactulose. Untreated it is progressive and can lead to irreversible coma. I had encephaloathy very bad and reached what was called a semi-comatose state.... if you had it bad it would be very noticible as you would not be able to function. Cirrhosis is cirrhosis no matter how you got it .... alcoholically or from AIH or PBc or whatever. Macronodular cirrhosis is a description ..... macro...means large... large nodules. Encephalopathy is a complication of cirrhosis.... once you have that you usually have other complications also.... ascites, edema,varices,pruritis, or such things as spider veins, hemmoroids etc. .... I would think it unusual to have encephalopathy without having at least ascites. Encephalopathy usually develops late in cirrhosis and by that time other complications are present also. Alcohol and Tyelenol killed my wife at age 39.... Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 Kay the prednisone may be causing the rapid heartbeat, it happened to my mom on it. the drs had to take her off. unfortanutly i cant help with the sleep problem, ask ur dr. Christi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 Jerry, Thankyou ! You told me what I wanted to know.. I am so sorry about your wife, I am 39. If I snapped, Im sorry. I bought a bunch of healthy foods, and will live on grapefruit juice, along with lactulose. Last night I slept over 12 hours, and I feel great. Its been almost 2 weeks with only getting only 2 hrs a night, so, I cant wait to get the ball rolling with my doctor. Thanks Jerry, you have helped. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 Kay... I hope you are seeing a hepatologist or gastroentrologist..... Lactulose is a prescription drug. Grapefruit juice and other fruit juices may contain considerable amounts of alcohol so be careful. You may or may not know that I was transplanted in 1995 for end-stage cirrhosis due to alcoholism.That coupled with my wife`s death and the death of other friends or thier transplants is why I portend to know so much about liver disease and alcohoism and that is why I worry so much about your condtion. Now I have autoimmune hepattis and bone marrow cancer so I see a lot of specialists and have been subjected to many conditions and treatments over the last 8 yrs. Please take care of yourself and get that professional help you need. Am anxious to know what the doctor tells you. Again I hope he is a liver specialist as general practicioners have limited knowledge. In all humbleness I must warn you that people who have drank enough to severely damage thier liver seldom can stay alcohol free the rest of thier lives on will power alone. I hope you make it, but don`t be afraid of AA , A person with severe liver damage can die from just one or two drinks... I know this from personal experience. Again take good care and God bless you and watch over you. Love and serenity Jerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 My Gosh Jerry, How are You doing ? It sounds like you've been through it all. Hows your spirit? Can I ask you one other question ? What is best to eat and drink ? Being in that last coma, was the third wake up call. I know one drink will / can kill me. Im not going to do that to my liver, That would be suicide. The thought of a drink makes me sick.. If I had severe heart trouble, It might take me a month, but I would quit smoking after 20 yrs. Im on a mission now to live. Do you need a bone marrow transplant ? And is this one of the complications you get from the " end stage " ? I guess your whole world changes after this happens to you. Ive never been around death or diseases. As it is now, my dad has an anurism in his brain, my mom has emphysema, and now me, with cirrhosis. ( My moms dad died from cirrhosis). So, My life from here on out will be learning about diseases. Thanks for always listioning. Kay Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2001 Report Share Posted January 26, 2001 Kay, excuse me if I'm being intrusive, but I really, really, really think you should talk, immediately and repeatedly, with a knowlegeable doctor and a nutritionist. Grapefruit juice isn't a balanced diet. You're dealing with your life, and, if you value it, you have to use every resource available to you. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi , It wouldn't hurt to call the Doc. As for me, I try to stick to a routine. Go to bed the same time every night. Have you tried taking a bath, the water at a temperature comfortable for you, just before bedtime? A nice bath or even shower is relaxing. Try a cup of hot milk. Even folks who are lactose intolerant can drink hot milk, because heating the milk changes the sugars that cause the intolerance problems. Do you have cable TV with the music channels? Do you have a radio or some access to soothing music? If you have a tape player or CD player you can buy tapes and CDs of soothing Nature Sounds, or soothing music. The soothing sounds and music will give your active mind something to latch onto and relax itself, so then the rest of you can relax. I hope some of this helps. (gentle) huggggs Alice from Alaska http://maryals.blogspot.com/ On Jan 18, 2006, at 8:51 PM, N2kids@... wrote: i know i havent been replying to much. Sorry all. What kinds of things can i do to relax before bed. Havent been sleeping very well at all and was even up all night monday...Tylenol PM help but only for a little while. Should i call my doc? Could the prednisone be keeping me up? thanks in advance. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 In a message dated 1/19/2006 6:39:35 AM Central Standard Time, masells@... writes: Hi , It wouldn't hurt to call the Doc. As for me, I try to stick to a routine. Go to bed the same time every night. Thank you Alice. I will try the music. hot milk? EEEWWW. i've tried it before thanks. maybe some hot cocoa instead? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Sorry that you have been trouble sleeping, . Yes, prednisone can interfere with your sleep. How much are you taking and at what time of day? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Cant sleep > > > i know i havent been replying to much. Sorry all. What kinds of things > can i > do to relax before bed. Havent been sleeping very well at all and was > even > up all night monday...Tylenol PM help but only for a little while. Should > i > call my doc? Could the prednisone be keeping me up? thanks in advance. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Call your doctor, maybe they will give you something even just temporarily so you can get back into a regular sleep cycle. It is important that you get sleep as fatigue is a part of our disease as it is. When I first started with my currant rheumy, one of the first things she did was put me an anti-depressant, and give me something to help me sleep, I use sonata when needed. She told me almost all people with this disease have problems with depression and sleep cycles. Also take predisone early in the day. in WI --------------------------------- Photos – Showcase holiday pictures in hardcover Photo Books. You design it and we’ll bind it! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi : Yes, Prednisone can definately mess with your sleep if you are taking it late in the day or at night. You need to take it first thing in the morning. It makes my mind " race " , and before I knew to take it in the morning, I would never be able to sleep, my mind just would not " be quiet " . Don't know a better way to put it. Hopefully you won't have to take it too long. I would call your doctor also about your not being able to sleep. There are sleep meds out there which can help - I am on Ambien CR and Zanaflex (I have fibro too, and it's more for that but any help sleeping helps the RA too) at night and they help for about 6-8 hours until the leg pain starts up. But what sleep I do get now is sound sleep, so I'm happy with it. Maybe your doctor can recommend something for you as well. Also, the ideas of a hot bath and soothing music are good ones, and maybe, if you have a hubby or partner, a massage would be good. Anything that will help you to relax. A nice cup of chamomile tea is supposed to be good for sleep too. Best of luck - hang in there - Kathe in CA --- N2kids@... wrote: > > > i know i havent been replying to much. Sorry all. > What kinds of things can i > do to relax before bed. Havent been sleeping very > well at all and was even > up all night monday...Tylenol PM help but only for a > little while. Should i > call my doc? Could the prednisone be keeping me up? > thanks in advance. > > > > > > [Non-text portions of this message have been > removed] > > Kathe in CA __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 19, 2006 Report Share Posted January 19, 2006 Hi, Don't how much caffein is in cocoa, but you could try. Do you like Pumpkin Spice flavors? ifso, put a pinch of nutmeg in the hot milk, or cinnamon. Truely hoping you can get a good night's sleep, Alice from Alasksa http://aliceohalice.blogspot.com/ On Jan 19, 2006, at 5:11 AM, N2kids@... wrote: In a message dated 1/19/2006 6:39:35 AM Central Standard Time, masells@... writes: Hi , It wouldn't hurt to call the Doc. As for me, I try to stick to a routine. Go to bed the same time every night. Thank you Alice. I will try the music. hot milk? EEEWWW. i've tried it before thanks. maybe some hot cocoa instead? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 In a message dated 1/19/2006 8:42:19 AM Central Standard Time, Matsumura_Clan@... writes: Yes, prednisone can interfere with your sleep. How much are you taking and at what time of day? 7.5 mg at night so i can get up without pain in the morning to get my son off to scool. Going to call the doc next week if things dont change over the weekend. HUGS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 It's probably the prednisone then, . That's why most physicians recommend taking it in the morning. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org Re: [ ] Cant sleep > > > > In a message dated 1/19/2006 8:42:19 AM Central Standard Time, > Matsumura_Clan@... writes: > > Yes, prednisone can interfere with your sleep. How much are you taking > and > at what time of day? > > > > > 7.5 mg at night so i can get up without pain in the morning to get my son > off to scool. Going to call the doc next week if things dont change over > the > weekend. HUGS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 In a message dated 1/20/2006 9:37:37 AM Central Standard Time, Matsumura_Clan@... writes: It's probably the prednisone then, . That's why most physicians recommend taking it in the morning. Thanks . I've taken it first thing in the morning, but dont feel the effects till late. Going to call the doc monday and see what they can do for me. Might be time to change or up meds. Hugs thanks again. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 I've been blocked from my email groups, so I'm probably behind. If so, forgive me. From past posts on Prednisone, I decided to take all of my 10 mg in the morning rather than dividing it 5 morning and 5 evening. That turned out to be a mistake because I had a really hard time getting out of bed in the morning. Now I'm back to my usual and doing as good as before. I probably should leave things alone. One aunt that had bad RA would set her alarm for 4 AM so she could take her anti-inflammatory. Then, when getting up to start her day, it was pretty good. I guess we all experiment to find what works for us since we're all different and have varied success from our meds. Dennis Re: [ ] Cant sleep > > > > In a message dated 1/19/2006 8:42:19 AM Central Standard Time, > Matsumura_Clan@... writes: > > Yes, prednisone can interfere with your sleep. How much are you taking > and > at what time of day? > > > > > 7.5 mg at night so i can get up without pain in the morning to get my son > off to scool. Going to call the doc next week if things dont change over > the > weekend. HUGS Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2006 Report Share Posted January 20, 2006 You can make warm milk very yummy by experimenting with some spices. Try powdered ginger, nutmeg, cinnamon. Ginger, especially, is so helpful for inflammation. A friend of mine likes to add licorice root, but that's never appealed to me personally. If you want to avoid the caffeine of cocoa, you could try carob powder--some people like it; some people don't! In Ayurvedic medicine, they often add turmeric to warm milk. Turmeric is another herb that helps lighten inflammation. Sometimes I make chamomile tea before bed, using 2 tea bags. . .in other words, I make it strong; and it helps. There's a very nice homeopathic mixture that's called " Calms Forte " that I've found helpful at times. Two other homeopathic remedies that can help are: Coffea Crudea for times when you feel anxious or particularly restless - and - Ignatia Amara for times when you're worried or sad. I've used both of these (at different times!) with good results. wishing you sweet dreams and some nice long sleep - Prakasha On Jan 19, 2006, at 10:35 PM, Alice Sells wrote: > Hi, Don't how much caffein is in cocoa, but you could try. Do you > like Pumpkin Spice flavors? ifso, put a pinch of nutmeg in the hot > milk, or cinnamon. > Truely hoping you can get a good night's sleep, > Alice from Alasksa > http://aliceohalice.blogspot.com/ > > > > On Jan 19, 2006, at 5:11 AM, N2kids@... wrote: > > In a message dated 1/19/2006 6:39:35 AM Central Standard Time, > masells@... writes: > > Hi , > It wouldn't hurt to call the Doc. As for me, I try to stick to a > routine. Go to bed the same time every night. > > > Thank you Alice. I will try the music. hot milk? EEEWWW. i've  > tried it > before thanks. maybe some hot cocoa instead? > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.