Re: Re: Autoimmune disorders and infertility( to Lynn)

[Guest guest]

My daughter was diagnosed after she was found to be allergic to the sun.. Broke

in in blisters that looked like burns all over they grew fast and oozed all

over..it happened so fast that a dermotoligist had trouble getting a biopsy. She

also lost all pigment in the areas it happened. Was told it was chicken pox many

times then doc said well she cant keep getting chicken pox duh... she was then

sent to to strong hospital childrens rheumatology here in ny state. It was

there she was diagnosed with lupus. I was told to keep her out of the sun and

hope fully she would go into remission or would just diappear when she went thru

puberty... she had alot of problems before that time with her bones and rashes

and alot of wierd things but it did seem to hide itself after puberty.. at 15

she started having problems again but now its all the joints and some the

skin... mouth sores are quite the frequent and they are nasty, the poor kid..All

my problems started earliar then my dads and my

daughter is earliar then me...so Im working on making sure she is well taken

care of before things get bad like happened to me. My kids are the most

important thing to me.. thanks debbie

---------------------------------

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[Guest guest]

Wow, how frustrating to have to wait for her diagnosis. You and she both sound

like troopers. Does lupus cause the sun reaction? I haven't seen your post

before this that referred to the infertility -- I'm a little slow to read email

today, but just two days ago my 6 yo daughter, 's Rheumatology nurse said

that Systemic JRA can cause fertility problems because of the internal

inflamation. I brought it up by asking her if doubling her Methotrexate dose

would increase her risks of infertility later in life. (I have that " I have to

read every prescription leaflet and info sheet " syndrom. It's the Mommy Control

Freak in me I guess to know all about what she's taking. She didn't deny that it

could have an effect, however she said her disease would more likely be a cause

later in life. How awful, in all my research these past four years I have never

read anywhere that RA could cause infertility. Maybe any autoimmune disease

could? I feel so bad for your daughter. I'll pray for you

both. Can she ever go into the sunshine?

(((((((BIG HUGS))))))))

Missy

lynn8953 <lynn8953@...> wrote:

>

> My daughter was diagnosed after she was found to be allergic to the sun..

Broke in in

blisters that looked like burns all over they grew fast and oozed all over..it

happened so

fast that a dermotoligist had trouble getting a biopsy. She also lost all

pigment in the

areas it happened. Was told it was chicken pox many times then doc said well she

cant

keep getting chicken pox duh... she was then sent to to strong hospital

childrens

rheumatology here in ny state. It was there she was diagnosed with lupus. I was

told to

keep her out of the sun and hope fully she would go into remission or would just

diappear

when she went thru puberty... she had alot of problems before that time with her

bones

and rashes and alot of wierd things but it did seem to hide itself after

puberty.. at 15 she

started having problems again but now its all the joints and some the skin...

mouth sores

are quite the frequent and they are nasty, the poor kid..All my problems started

earliar

then my dads and my

> daughter is earliar then me...so Im working on making sure she is well taken

care of

before things get bad like happened to me. My kids are the most important thing

to me..

thanks debbie

>

> GEE WHAT A MESS THE POOR KID IT MUST BREAK YOUR HEART BUT YOU AT LEAST

HAVE GOTTEN HER THE BEST CARE YOU CAN---LYNN

>

>

> ---------------------------------

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> Got holiday prints? See all the ways to get quality prints in your hands

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>

>