Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Hi : Sorry to hear you were in the hopsital again. Do you get pancreatis alot??? Is that from aih??? What do they do for that? Glad to hear you are home. Take care---love, Gaynel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 , Glad your home. Hope you feel better soon. Pancreatitis is no fun. I have only had it for a couple of days after 2 ERCP's but I do remember the pain vividly. Hang in there. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Take care of yourself!! With love Loes The Netherlands -----Oorspronkelijk bericht----- Van: Weston [mailto:karenw@...] Verzonden: maandag 18 augustus 2003 23:22 Aan: " Undisclosed-Recipient:; " @mx0.wanadoo.nl Onderwerp: [ ] in the hospital again Just thought I'd let you all know that I was in the hospital again. I had an attack of acute pancreatitis sometime after midnight on Wednesday night (Thursday morning). Had to have my poor hubby bring me to the ER since my mom just recently had shoulder replacement surgery. Anyway, lipase was 714, amylase was normal (as always). I was admitted around 5 a.m. on Thursday morning. I was discharged this morning, but it will take me a while to get caught up on mail. I am doing much better. I had not felt that well off and on for a couple of weeks so I felt an attack was coming. I am glad to be home. More later. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Loes, Thanks, W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 , It's good to have you back. Any news on the possibility of getting these attacks under control? Patty [ ] in the hospital again Just thought I'd let you all know that I was in the hospital again. I had an attack of acute pancreatitis sometime after midnight on Wednesday night (Thursday morning). Had to have my poor hubby bring me to the ER since my mom just recently had shoulder replacement surgery. Anyway, lipase was 714, amylase was normal (as always). I was admitted around 5 a.m. on Thursday morning. I was discharged this morning, but it will take me a while to get caught up on mail. I am doing much better. I had not felt that well off and on for a couple of weeks so I felt an attack was coming. I am glad to be home. More later. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Patty, My GI hopes that with the actigall and pancreas enzymes, the attacks will become fewer and further apart. I went just over two months without having to go to the ER for a panc attack this time and that is the longest I've gone since the panc attacks returned in July 02. The bad thing is that both prednisone and imuran can cause pancreatitis. The GI had told me before that he felt prednisone has a higher risk of causing pancreatitis than the imuran. He had said his plan was to begin tapering my prednisone down further (I'm on 10 mg daily now) when I saw him again on Aug 25th. He said he hoped to eventually stop the prednisone completely. However, when he saw me in the hospital, he told me that he was going to cut the imuran down to 50 mg daily (from 100 mg) just in case the imuran had caused the recent attack. I told him that I thought he was going to go ahead and start tapering down the prednisone and that I really wanted to get it lowered mostly because of the problems with fluid retention. He said that 10 mg of prednisone daily is really a low dose of prednisone and it shouldn't be causing any problems. He now wants to see me in a month (instead of Aug 25th) and he said he will begin lowering the prednisone then. It just occurred to me that the GI only said all of this to me but I was given no written instructions on med changes when I was discharged. Now I'm sitting here unsure as to whether I'm supposed to only be taking 50 mg of Imuran or am supposed to be taking 100 mg? I'm actually kind of ticked off because I don't like feeling unsure about something so important. I really think I am going to go ahead and keep my appointment on the 25th of this month just so I can talk to the GI and get everything straight. I am a little disappointed because I really like this GI. He actually told me that I could just follow up with my internal med doc if I wanted instead of seeing him in a month. His words were, "Ron (the internal med doc) is a pretty bright guy. The only difference between us is that I can actually look inside at things and he can't. He can really take care of you just fine." That's all well and good. I do really think my internal med doc is good, but when I talked with him about med changes prior to going under the care of the new GI, he said he really didn't know enough about AIH to feel confident about changing my meds. So, I sort of feel that once again I'm just being passed on to someone else. As I'm sitting here typing this, I think I really do need to keep my appointment with the GI on the 25th so that I can get things straight. I need a GI that will take care of my pancreas and liver problems. My internal med doc has no problem monitoring my meds and stuff but he is not a GI doc and has made it clear that he does not feel he has enough knowledge about AIH to make decisions about my meds for it. Oh, well, I'm sure it will all work out in the end. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 ....it just irritates me that my amalyse is always normal too during those attacks! Glad you are home! Debby [ ] in the hospital again Just thought I'd let you all know that I was in the hospital again. I had an attack of acute pancreatitis sometime after midnight on Wednesday night (Thursday morning). Had to have my poor hubby bring me to the ER since my mom just recently had shoulder replacement surgery. Anyway, lipase was 714, amylase was normal (as always). I was admitted around 5 a.m. on Thursday morning. I was discharged this morning, but it will take me a while to get caught up on mail. I am doing much better. I had not felt that well off and on for a couple of weeks so I felt an attack was coming. I am glad to be home. More later. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 Debby, do they check your lipase? My small, local hospital cannot do lipase in house so they never bothered checking it. I have to go to the next town (30 miles away) so that they can check my lipase. It works out for the best because my internal med doc is in the next town and so is my new GI doc. I love my family practice doc, but he readily admits he has very little knowledge about pancreatitis, AIH, or lupus. Also, the nurses at the hospital that I go to now are absolutely great. The ones in the ER at my local hospital are pretty good, but there are several on the floor that apparently got it in their head that I just wanted drugs. Well, yeah, I guess I did just want drugs, but the reason was cause I was in horrendous pain! Doctors and nurses who have even the slightest understanding of chronic (or acute) pancreatitis will tell you that it is just about the most painful thing you can ever have. I've had lots of kind doctors tell me that dealing with chronic pancreatitis is really a tough road. I just that some of the butthead doctors and nurses I've had to deal with could understand that. Oh, well, I haven't been treated nearly as badly as some! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 , It will all work out but it is frustrating. The 25th is just next week, I think you are right to keep it. I have been in that situation where you leave more confused than when you started. I think it's because our situations are so unusual for the Docs that they think out loud. I have even written down my questions and gone over it. I find the docs actually like it. I started it in the hospital when I kept forgetting to ask questions. I've never has a bad response, in fact, a couple of times when I've been real sick I've given them the list (them.. remember I go to a teaching hospital). Patty -----Original Message-----From: Weston [mailto:karenw@...] Sent: Monday, August 18, 2003 8:13 PM Subject: Re: [ ] in the hospital again Patty, My GI hopes that with the actigall and pancreas enzymes, the attacks will become fewer and further apart. I went just over two months without having to go to the ER for a panc attack this time and that is the longest I've gone since the panc attacks returned in July 02. The bad thing is that both prednisone and imuran can cause pancreatitis. The GI had told me before that he felt prednisone has a higher risk of causing pancreatitis than the imuran. He had said his plan was to begin tapering my prednisone down further (I'm on 10 mg daily now) when I saw him again on Aug 25th. He said he hoped to eventually stop the prednisone completely. However, when he saw me in the hospital, he told me that he was going to cut the imuran down to 50 mg daily (from 100 mg) just in case the imuran had caused the recent attack. I told him that I thought he was going to go ahead and start tapering down the prednisone and that I really wanted to get it lowered mostly because of the problems with fluid retention. He said that 10 mg of prednisone daily is really a low dose of prednisone and it shouldn't be causing any problems. He now wants to see me in a month (instead of Aug 25th) and he said he will begin lowering the prednisone then. It just occurred to me that the GI only said all of this to me but I was given no written instructions on med changes when I was discharged. Now I'm sitting here unsure as to whether I'm supposed to only be taking 50 mg of Imuran or am supposed to be taking 100 mg? I'm actually kind of ticked off because I don't like feeling unsure about something so important. I really think I am going to go ahead and keep my appointment on the 25th of this month just so I can talk to the GI and get everything straight. I am a little disappointed because I really like this GI. He actually told me that I could just follow up with my internal med doc if I wanted instead of seeing him in a month. His words were, "Ron (the internal med doc) is a pretty bright guy. The only difference between us is that I can actually look inside at things and he can't. He can really take care of you just fine." That's all well and good. I do really think my internal med doc is good, but when I talked with him about med changes prior to going under the care of the new GI, he said he really didn't know enough about AIH to feel confident about changing my meds. So, I sort of feel that once again I'm just being passed on to someone else. As I'm sitting here typing this, I think I really do need to keep my appointment with the GI on the 25th so that I can get things straight. I need a GI that will take care of my pancreas and liver problems. My internal med doc has no problem monitoring my meds and stuff but he is not a GI doc and has made it clear that he does not feel he has enough knowledge about AIH to make decisions about my meds for it. Oh, well, I'm sure it will all work out in the end. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2003 Report Share Posted August 18, 2003 , I am certain that the lipase was checked too, but everything comes out fine...but then, I don't know. I just know that the amylase has been checked and rechecked. I really can't say about the other one. It is so great that you like your doctors for the most part. It is so important in the total care. Keep up that good work at the longer intervals of those attacks!!! Debby Re: [ ] in the hospital again Debby, do they check your lipase? My small, local hospital cannot do lipase in house so they never bothered checking it. I have to go to the next town (30 miles away) so that they can check my lipase. It works out for the best because my internal med doc is in the next town and so is my new GI doc. I love my family practice doc, but he readily admits he has very little knowledge about pancreatitis, AIH, or lupus. Also, the nurses at the hospital that I go to now are absolutely great. The ones in the ER at my local hospital are pretty good, but there are several on the floor that apparently got it in their head that I just wanted drugs. Well, yeah, I guess I did just want drugs, but the reason was cause I was in horrendous pain! Doctors and nurses who have even the slightest understanding of chronic (or acute) pancreatitis will tell you that it is just about the most painful thing you can ever have. I've had lots of kind doctors tell me that dealing with chronic pancreatitis is really a tough road. I just that some of the butthead doctors and nurses I've had to deal with could understand that. Oh, well, I haven't been treated nearly as badly as some! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 hi karen, sorry to hear your not well and i hope your soon on the mend. i have been very ill for the last week so i am a bit sloww on mail. take care anita > > From: " Weston " <karenw@...> > Date: Mon 18/Aug/2003 21:22 GMT > <Undisclosed-Recipient:;@...> > Subject: [ ] in the hospital again > > Just thought I'd let you all know that I was in the hospital again. I had an attack of acute pancreatitis sometime after midnight on Wednesday night (Thursday morning). Had to have my poor hubby bring me to the ER since my mom just recently had shoulder replacement surgery. Anyway, lipase was 714, amylase was normal (as always). I was admitted around 5 a.m. on Thursday morning. I was discharged this morning, but it will take me a while to get caught up on mail. I am doing much better. I had not felt that well off and on for a couple of weeks so I felt an attack was coming. > > I am glad to be home. More later. > > W > __________________________________________________________________________ Join Freeserve http://www.freeserve.com/time/ Winner of the 2003 Internet Service Providers' Association awards for Best Unmetered ISP and Best Consumer Application. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Carole, Thanks. Actually, when it comes to money, I have no worries about my medical care. My health insurance has a $4000 annual maximum out of pocket. Once we have met that, we have no co-pays at all for the rest of the year. This year we met the $4000 max in June. Believe me, I say a prayer of thanksgiving for my wonderful health insurance every day! As for my pancreas, there really is nothing that can be done to prevent the attacks. The GI said that he doesn't know what is causing them but I will have them from time to time. The hope is that we can eventually get to the point where they are less frequent, which we really already have done. I know it may not sound like a lot, but to be able to go over two months without an attack severe enough to send me to the ER is wonderful. I have really been so much better since going under the care of the new GI in June. Maybe with any luck, I'll exceed the 2 month record before my next attack. It's really much harder on my family than it is on me. I just hate to have them worry about me. to me, it's really not that big a deal. At least these last hospital visits I've had wonderful nurses and have been treated with kindness and compassion. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Debby, I have had several very severe attacks when both the amylase and lipase have been normal. I'm not really sure why but it has only been since about April that my lipase has been elevated with every attack. The bad thing is that the majority of doctors will insist that the pain cannot be coming from the pancreas if the amylase and lipase are normal. Also, if they don't bother checking the lipase and just see that the amylase is normal, they'll also insist that it can't be the pancreas. Both of those thoughts are totally wrong. The s Hopkins website specifically says that with chronic pancreatitis, the pancreas enzymes often remain in the normal range even during very severe attacks. It's actually pretty logical. Once you get to the point of chronic pancreatitis, the pancreas no longer functions normally. It doesn't even produce enough panc enzymes to properly digest your food, so, of course, it's not going to go into overdrive and produce extra enzymes. However, very few doctors have an understanding of this and once they decide it can't be the pancreas, there's no point in trying to convince them otherwise. I hope that they soon determine whatever it is that is causing your pain and find a way to stop it. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Gaynel, Yeah, unfortunately, the pancreatitis attacks are all too common for me. As far as I know, they have nothing to do with the AIH. I do think the pancreatitis may be autoimmune but the GI says it's not. However, he doesn't know what caused it. It has now progressed to chronic pancreatitis, which means that my pancreas has sustained permanent damage and no longer functions as well as it should. Therefore, the attacks will most likely be a part of my life from now on. However, it could be much worse than it is. Some people are so bad that they cannot have anything to eat or drink for months on end and must be fed through a feeding tube. Having to go a day or two with nothing to eat or drink and then a few days on liquids only, seems like nothing in comparison to the feeding tube route. Believe me, I am thankful! Having both AIH and pancreatitis does complicate the picture since both prednisone and imuran can aggravate the pancreas and cause an attack of acute pancreatitis. Also, I guess all the narcotic pain med that I have to have to make it through the day probably does not help my already comprimised liver. The GI doc told me the other day that I am like a 'sticky wicket'. He said that the prednisone and imuran are helping my liver but he is afraid they may be hurting my pancreas. It makes it very tough for the doctors to decide what to do with me! When my new GI was first called in to see me back in early June, he came in my hospital room and started asking a few questions. After just a couple of questions he said, "Ron (my internal med doc) led me to believe this was just a simple case of acute pancreatitis. I thought I'd be in and out of here in five minutes and home having dinner with my kids. I can see that's not going to be the case!" and then he laughed. My husband burst out laughing and said, "You will find there is nothing simple or easy about her!" The GI laughed and said he had already figured that out! So, you can see that I really have to try and be understanding about the doctors not really knowing what to do with me, since I don't ever do things simple and normal! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 , Thanks. The good news is that once they get me on IV fluids and begin giving me IV meds for pain and nausea, the pain is normally kept down to a tolerable level. It could be much worse! W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Hi : Hope you are feeling good today. Thanks for the information. I hope they get a cure, or better medicine for your pancreatis... Our bodies are so involved...... Will you be better from this pancreatis (sp) in time???? Hope you feel better soon. Take care--- Gaynel Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2003 Report Share Posted August 19, 2003 Thank you for all of this information. You are so knowledgeable! It has been several months since I have had an attack, so hopefully, things are easing up for now! YIPEE! Personally, I am really thinking that stress is a major part of all of this, but then I just don't know. It possibly could have been from meds that I was taking too. I just don't know. WIth luck, those days are long past! Thanks again for your information! Debby Re: [ ] in the hospital again Debby, I have had several very severe attacks when both the amylase and lipase have been normal. I'm not really sure why but it has only been since about April that my lipase has been elevated with every attack. The bad thing is that the majority of doctors will insist that the pain cannot be coming from the pancreas if the amylase and lipase are normal. Also, if they don't bother checking the lipase and just see that the amylase is normal, they'll also insist that it can't be the pancreas. Both of those thoughts are totally wrong. The s Hopkins website specifically says that with chronic pancreatitis, the pancreas enzymes often remain in the normal range even during very severe attacks. It's actually pretty logical. Once you get to the point of chronic pancreatitis, the pancreas no longer functions normally. It doesn't even produce enough panc enzymes to properly digest your food, so, of course, it's not going to go into overdrive and produce extra enzymes. However, very few doctors have an understanding of this and once they decide it can't be the pancreas, there's no point in trying to convince them otherwise. I hope that they soon determine whatever it is that is causing your pain and find a way to stop it. W Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2006 Report Share Posted May 5, 2006 This time it's from atrial filibration, my heart went nuts. Fortunately, we caught it in time and it went back to sinus rythm with a little shot and some time. I've got to study now and find out how to best tell it's happening. It was only a guess and not being able to check my BP since it was going all over the place and beating crazily. Another med to spend money for and keep track of, making sure I'm taking it at the right times, etc... One sister had a triple bypass, but has nothing to do with the heart in particular. The baby sister has a bad murmer and lots of fluttering. She can opnly take one name brand med for it, the generics won't work for her. Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi Dennis. This happened to my dad when we were in Mexico. It was very scary. He had to have a pacemaker/defibrillator implanted in his chest. Hopefully your doctor will find a way to keep this from happening again. a On May 5, 2006, at 9:59 PM, betnden@... wrote: > This time it's from atrial filibration, my heart went nuts. > Fortunately, we > caught it in time and it went back to sinus rythm with a little > shot and > some time. I've got to study now and find out how to best tell it's > happening. It was only a guess and not being able to check my BP > since it > was going all over the place and beating crazily. Another med to > spend money > for and keep track of, making sure I'm taking it at the right > times, etc... > > One sister had a triple bypass, but has nothing to do with the > heart in > particular. The baby sister has a bad murmer and lots of > fluttering. She can > opnly take one name brand med for it, the generics won't work for her. > > Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 I'm sorry to hear that is back in the hospital. What is wrong with her? Please tell her we all wish her well. I hope there is a speedy recovery. Blessings, In the hospital again is back in the hospital. By the way, this is her hubby . E-mail me ebb1966msn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 27, 2006 Report Share Posted October 27, 2006 has been having a hard time. She is Bipolar. We talk quite a bit privately. She just needs to find the right med cocktail to get her stable. BUT that in itself will be quite a feat! Blessed be, Quote Link to comment Share on other sites More sharing options...
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