Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 --- <suejacks@...> wrote: He feels that the > patient should be treated, > not the lab results. Hi , You better hang on to this guy!! Not too many doctors really look at you as a whole person. Most just see a symptom or lab result, not the whole picture. The study > mentions platelet increase in > Hep c with interferon. Is this the study on people with HCV who have low platelets using Interleukin-11? Take care, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 --- <suejacks@...> wrote: He feels that the > patient should be treated, > not the lab results. Hi , You better hang on to this guy!! Not too many doctors really look at you as a whole person. Most just see a symptom or lab result, not the whole picture. The study > mentions platelet increase in > Hep c with interferon. Is this the study on people with HCV who have low platelets using Interleukin-11? Take care, Claudine __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Hi Claudine, No, it is a study with interferon. It is from British Journal of Hematology. I was sent to him because my hepatologist thought I might have ITP. He does not think so, thinks I am going through an active hep cycle, and that is the reason my platelets dropped. His opinion, which he said he will put in writing and strongly recommend, that I be treated, that until the viris is treated the platelets will not recover. He gave me a copy, and will send the report to my other docs. He took the time to explain to me, that platelets can be in an enlarged spleen and that does not mean they are no good, but that they will circulate when needed, something I had never heard before. The girls in the lab said it could be a while before I see the report, because he always orders such different tests than any of the other docs. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Hi Claudine, No, it is a study with interferon. It is from British Journal of Hematology. I was sent to him because my hepatologist thought I might have ITP. He does not think so, thinks I am going through an active hep cycle, and that is the reason my platelets dropped. His opinion, which he said he will put in writing and strongly recommend, that I be treated, that until the viris is treated the platelets will not recover. He gave me a copy, and will send the report to my other docs. He took the time to explain to me, that platelets can be in an enlarged spleen and that does not mean they are no good, but that they will circulate when needed, something I had never heard before. The girls in the lab said it could be a while before I see the report, because he always orders such different tests than any of the other docs. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Sue, they can also group together and make a wrong reading......Connie --- <suejacks@...> wrote: > Hi Claudine, > No, it is a study with interferon. It is from > British Journal of > Hematology. > I was sent to him because my hepatologist thought I > might have ITP. He does > not think so, thinks I am going through an active > hep cycle, and that is the > reason my platelets dropped. His opinion, which he > said he will put in > writing and strongly recommend, that I be treated, > that until the viris is > treated the platelets will not recover. He gave me a > copy, and will send the > report to my other docs. He took the time to > explain to me, that platelets > can be in an enlarged spleen and that does not mean > they are no good, but > that they will circulate when needed, something I > had never heard before. > The girls in the lab said it could be a while before > I see the report, > because he always orders such different tests than > any of the other docs. > Sue > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 --- <suejacks@...> wrote: His opinion, which he > said he will put in > writing and strongly recommend, that I be treated, > that until the viris is > treated the platelets will not recover Makes sense to me! Good luck! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 --- <suejacks@...> wrote: His opinion, which he > said he will put in > writing and strongly recommend, that I be treated, > that until the viris is > treated the platelets will not recover Makes sense to me! Good luck! __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 12, 2003 Report Share Posted August 12, 2003 when you mean blood in your urine, do you mean something like microscopic hematuria? basically which is red blood cells in the urine but can only be seen under the microscope? if so this can happen with taking NSAIDS or asprin, also still's itself can cause it but it's rare in both instances, but I have it. Now for the proteins they could be looking for amyloidosis which is also rare but is a complication of the still's. It can be serious so try and get all the info you can from your rheumy and hematologist on what exactly are they looking for. > My rhuemy called me today asnd said I have to go see a Hemotologist > because of the abnormal proteins in my blood and urine.. Has anybody > been through this??? Kinda has me spooked. But yet again Stills > does to. > > Dennis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 13, 2003 Report Share Posted August 13, 2003 My rhuemy called me today asnd said I have to go see a Hemotologist because of the abnormal proteins in my blood and urine.. Has anybody been through this??? Kinda has me spooked. But yet again Stills does to. Been there, done that many times over the years.....and again the last few weeks. I have not enough albumin, but too much alpha 1 protein. The albumin loss makes fluid seep from the blood to the tissues, giving me horrible edema. The alpha 1 protein means I have a disease like Stills....it's sort of like how a sed rate can tell inflamation. Lucky for me, the blood in my urine was from a kidney stone ;-) Protein and blood can also signal kidney problems. Hang in there! I love my hematologist ;-) He's one of my best docs! (wsm311@...) Peace and Carrots Farm Vermont http://www.homestead.com/peaceandcarrots/ http://www.sHikingHiatus.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 Tess, I hope the iron infusion helps you. From time to time I ha this feeling of not getting enough air (I didn't know it was a symptom) and I get in a real panic. Fortunately it doesn't happen often. I get B12 injections every month and I am still anemic. It does help when the doc is good looking LOL Hugs June ----- Original Message ----- From: Grammi B I saw a very nice hematologist (and very handsome : ) yesterday. He said what I have been experiencing, besides the great fatigue, is 'air hunger' - where you do not feel like you are ever getting enough air even when you are just sitting still. Reminds me of an asthma attack minus the wheezing. He has scheduled me for an iron infusion next week, will wait four weeks after to do more draws, then decide if I need another infusion or we will just keep an eye on things. Gentle hugs... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 11, 2006 Report Share Posted May 11, 2006 I take B12 shots and iron tablets. Still I am always quiet anemic. Betty Re: [ ] hematologist Tess, I hope the iron infusion helps you. From time to time I ha this feeling of not getting enough air (I didn't know it was a symptom) and I get in a real panic. Fortunately it doesn't happen often. I get B12 injections every month and I am still anemic. It does help when the doc is good looking LOL Hugs June ----- Original Message ----- From: Grammi B I saw a very nice hematologist (and very handsome : ) yesterday. He said what I have been experiencing, besides the great fatigue, is 'air hunger' - where you do not feel like you are ever getting enough air even when you are just sitting still. Reminds me of an asthma attack minus the wheezing. He has scheduled me for an iron infusion next week, will wait four weeks after to do more draws, then decide if I need another infusion or we will just keep an eye on things. Gentle hugs... Tess Quote Link to comment Share on other sites More sharing options...
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