Guest guest Posted January 18, 2006 Report Share Posted January 18, 2006 > > My daughter was diagnosed after she was found to be allergic to the sun.. Broke in in blisters that looked like burns all over they grew fast and oozed all over..it happened so fast that a dermotoligist had trouble getting a biopsy. She also lost all pigment in the areas it happened. Was told it was chicken pox many times then doc said well she cant keep getting chicken pox duh... she was then sent to to strong hospital childrens rheumatology here in ny state. It was there she was diagnosed with lupus. I was told to keep her out of the sun and hope fully she would go into remission or would just diappear when she went thru puberty... she had alot of problems before that time with her bones and rashes and alot of wierd things but it did seem to hide itself after puberty.. at 15 she started having problems again but now its all the joints and some the skin... mouth sores are quite the frequent and they are nasty, the poor kid..All my problems started earliar then my dads and my > daughter is earliar then me...so Im working on making sure she is well taken care of before things get bad like happened to me. My kids are the most important thing to me.. thanks debbie > > GEE WHAT A MESS THE POOR KID IT MUST BREAK YOUR HEART BUT YOU AT LEAST HAVE GOTTEN HER THE BEST CARE YOU CAN---LYNN > > > --------------------------------- > Photos > Got holiday prints? See all the ways to get quality prints in your hands ASAP. > > Quote Link to comment Share on other sites More sharing options...
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