Re: Intro and input needed

[Guest guest]

Hi Kim, I understand your frustration. I am so sorry you are going

through this. I was going through a similiar thing for about five

years now. I do believe even in my own situation they through a FMS

diagnosis, without really reviewing the history etc. I did finally

find a rheumatologist that I absolutely love (I went through two). I

guess the thing is with me I just kept fighting you are your best

advocate and no one is going to fight for a normal life like

yourself!

To me and with my own symptoms is seems like RA but I am certainly

not an expert I am only taking from my own personal experience. I

have some of the same things going on and through the years it has

been getting progressively worse. I wish you well and there are some

very knowlegable people in this group that will be able to help you

as well! I wish you luck!

--- In , " aeronurse81 " <aeronurse81@...>

wrote:

>

> Hi everyone,

> my name is Kim. I am a nurse and mom of 3 boys and live in TN. I am

> in a fight to figure out what is wrong with me. My medical history

> included a pulmonary embolus, endometriosis, hashimotos

(autoimmine)

> thyroiditis, multiple ganglion cysts and something unknown going on

> with my joints and tendons systemically. I had some rheumatoid labs

> 3 years ago which showed and abnormal ANA level, elevated CPK and D-

> Dimer but normal sed rate. My Rheumatoid Factor was 11, which is

> considered normal per my docs. I saw a rheumatologist and she did

> not give me the time of day and said I probably had fibromyalgia.

As

> a nurse, I know many medical providers throw in the FMS diagnosis

> when they think you are suffering from psychsomatic pain. However,

I

> have visible swelling and pain in my elbows and ankles, a knot on

my

> left achilles tendon the size of a quarter which is extremely

> painful and no swelling but pain in my wrists, knees and hips. I

can

> barely walk for the first few hours after waking up in the morning

> due to my hip, ankle and foot pain.My PCP is nice but seems to be

> fed up with my complaints. However, when I was diagnosed with

> Hashi's Thyroiditis, he was not going to even treat me until I

> showed him the revised normal thyroid lab levels released by the

> American Assoc. of Clinical Endocrinologists. I then went to an

Endo

> who is treating me with thyroid replacement.

>

> I HATE going to the doctor and have begun to feel like a

> hypochondriac by not only my doctor but my family. Luckily, at

least

> I am working from home as a nurse consultant so I can get by with

> working in my PJs on bad days.

>

> I am SO FRUSTRATED.

>

> Any thoughts or advice?

>

> Thank you and God bless.

> Kim

>

[Guest guest]

Sorry you have no satisfactory answers yet, Kim.

How high was your CPK? Do you have a hunch as to what caused your pulmonary

embolism? Do you have any skin abnormalities? Are your fingers in any way

affected?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Intro and input needed

> Hi everyone,

> my name is Kim. I am a nurse and mom of 3 boys and live in TN. I am

> in a fight to figure out what is wrong with me. My medical history

> included a pulmonary embolus, endometriosis, hashimotos (autoimmine)

> thyroiditis, multiple ganglion cysts and something unknown going on

> with my joints and tendons systemically. I had some rheumatoid labs

> 3 years ago which showed and abnormal ANA level, elevated CPK and D-

> Dimer but normal sed rate. My Rheumatoid Factor was 11, which is

> considered normal per my docs. I saw a rheumatologist and she did

> not give me the time of day and said I probably had fibromyalgia. As

> a nurse, I know many medical providers throw in the FMS diagnosis

> when they think you are suffering from psychsomatic pain. However, I

> have visible swelling and pain in my elbows and ankles, a knot on my

> left achilles tendon the size of a quarter which is extremely

> painful and no swelling but pain in my wrists, knees and hips. I can

> barely walk for the first few hours after waking up in the morning

> due to my hip, ankle and foot pain.My PCP is nice but seems to be

> fed up with my complaints. However, when I was diagnosed with

> Hashi's Thyroiditis, he was not going to even treat me until I

> showed him the revised normal thyroid lab levels released by the

> American Assoc. of Clinical Endocrinologists. I then went to an Endo

> who is treating me with thyroid replacement.

>

> I HATE going to the doctor and have begun to feel like a

> hypochondriac by not only my doctor but my family. Luckily, at least

> I am working from home as a nurse consultant so I can get by with

> working in my PJs on bad days.

>

> I am SO FRUSTRATED.

>

> Any thoughts or advice?

>

> Thank you and God bless.

> Kim

[Guest guest]

Kim, I think you need new docs and new labs done Three years is a long time

and things could have changed. What area of Tn. do you live in? I'm in middle

Tennessee and have a good rheumy in Nashville. It took me a couple of docs

before I found one that Iiked and felt that was competent. Hope you have some

answers soon.

<Matsumura_Clan@...> wrote: Sorry you have no

satisfactory answers yet, Kim.

How high was your CPK? Do you have a hunch as to what caused your pulmonary

embolism? Do you have any skin abnormalities? Are your fingers in any way

affected?

Not an MD

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] Intro and input needed

> Hi everyone,

> my name is Kim. I am a nurse and mom of 3 boys and live in TN. I am

> in a fight to figure out what is wrong with me. My medical history

> included a pulmonary embolus, endometriosis, hashimotos (autoimmine)

> thyroiditis, multiple ganglion cysts and something unknown going on

> with my joints and tendons systemically. I had some rheumatoid labs

> 3 years ago which showed and abnormal ANA level, elevated CPK and D-

> Dimer but normal sed rate. My Rheumatoid Factor was 11, which is

> considered normal per my docs. I saw a rheumatologist and she did

> not give me the time of day and said I probably had fibromyalgia. As

> a nurse, I know many medical providers throw in the FMS diagnosis

> when they think you are suffering from psychsomatic pain. However, I

> have visible swelling and pain in my elbows and ankles, a knot on my

> left achilles tendon the size of a quarter which is extremely

> painful and no swelling but pain in my wrists, knees and hips. I can

> barely walk for the first few hours after waking up in the morning

> due to my hip, ankle and foot pain.My PCP is nice but seems to be

> fed up with my complaints. However, when I was diagnosed with

> Hashi's Thyroiditis, he was not going to even treat me until I

> showed him the revised normal thyroid lab levels released by the

> American Assoc. of Clinical Endocrinologists. I then went to an Endo

> who is treating me with thyroid replacement.

>

> I HATE going to the doctor and have begun to feel like a

> hypochondriac by not only my doctor but my family. Luckily, at least

> I am working from home as a nurse consultant so I can get by with

> working in my PJs on bad days.

>

> I am SO FRUSTRATED.

>

> Any thoughts or advice?

>

> Thank you and God bless.

> Kim

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