Guest guest Posted February 23, 2002 Report Share Posted February 23, 2002 At 02:32 AM 2/23/2002 -0000, you wrote: >Hi, >On this list we see a lot of mention of PCA-RX spray, METAL FREE, and >NDF. My question is has anyone ever used this product, and with what >type of results? I believe that is 3 different products, although I must say I get them confused. I haven't tried any of them. Moria Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 15, 2005 Report Share Posted September 15, 2005 Sandie, I had the same problem with methotrexate. As my rheumy said, my body did not like it. When I first started taking it, my WBC count was 9.7. It kept getting lower and lower, little by little. He switched me to Arava, which only continued the decline. When I got to 2.2, he switched me to Enbrel. This was over a period of a year and a half. Enbrel works much better for me, so this was not such a bad thing, LOL. It took over two years, though, for my WBC count to come back up to normal. This was just last month. Do you know what your count was before you started the mtx? Were you on another med that was also lowering your count? RA meds do suppress the immune system, in different ways. Our bodies just react in different ways to them. I don't know of any natural remedies that can raise the WBC count. I was lucky enough that I didn't get sick a lot even though my count was low. There is also another disease, Felty's syndrome, that sometimes accompanies RA and causes a low WBC count. I was beginning to think that I had it, but I guess I don't. Hope this helps, Sue On Thursday, September 15, 2005, at 04:02 PM, slmcc93@... wrote: > Hi, > I have been on Methotrexate for 2 1/2 months now. I have to say I do > feel a > bit better and even have some days that my pain in manageable. My > doctor > started me on 6 pills of 2.5 mg a week then upped the dose to 7 pills > per week. I > was just called from the doctors office to say that my blood work just > came > back and that my liver enzymes were fine but my WBC count is low(3.7) > they tell > me not to worry but what exactly does that mean? Then nurse then said > the doc > would wait another month for more blood tests then decide if he would > either > lower my dose or totally take me off for 2 weeks then put me back on. > I am > scared about the second scenario because that would mean I would just > be on my > Plaquenil and to be honest, I dont know if that helps me at all. Can > anyone > help me out with any ifo here? also, I was thinking of trying some > natural > remedies to up my WBC. Anyone know anything about that? > > thanks in advance and hope you are all having a pain free day. > sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2005 Report Share Posted September 16, 2005 Sandie, your blood counts are monitored while you are on MTX. Since your white blood cells help fight infections, your physician doesn't want them to drop and stay too low. For now, he'll just wait until the next blood test to see if it drops further. Are you taking folic acid, too? Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] question for all > Hi, > I have been on Methotrexate for 2 1/2 months now. I have to say I do feel > a > bit better and even have some days that my pain in manageable. My doctor > started me on 6 pills of 2.5 mg a week then upped the dose to 7 pills per > week. I > was just called from the doctors office to say that my blood work just > came > back and that my liver enzymes were fine but my WBC count is low(3.7) they > tell > me not to worry but what exactly does that mean? Then nurse then said the > doc > would wait another month for more blood tests then decide if he would > either > lower my dose or totally take me off for 2 weeks then put me back on. I > am > scared about the second scenario because that would mean I would just be > on my > Plaquenil and to be honest, I dont know if that helps me at all. Can > anyone > help me out with any ifo here? also, I was thinking of trying some natural > remedies to up my WBC. Anyone know anything about that? > > thanks in advance and hope you are all having a pain free day. > sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2005 Report Share Posted September 17, 2005 , Yes I also take Folic Acid. I have my blood drawn every month so it can be monitored. I am just a bit worried for two reasons. One, is that the MTX seems to be helping me a bit. Yes, I still have pain daily but it is a bit more manageable. Second, I now have 2 children in school and am worried about getting sick. You know how 3 year olds are- germs everywhere. I am fanatical about keeping things clean and as germ free as possible but with 3 boys (9,3, and almost 2) it is really tough. I cannot afford to get sick at all. The other thing the nurse said was if my WBC count stayed low they may take me off the MTX for 2 weeks then restart it. I am terrified of having no meds at all and how my body will react. sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Hi! My son is 23 and newly-diagnosed as a result of an MRI for his neck pain, and the subsequent visit to the neurosurgeon who put together the calcium deposit above the C1 vertebrae which is causing his arms to go numb, the chronic fatigue, the pain in both hands and all fingers, both knees, and extreme pain in his neck....and now we're waiting for an appointment through his clinic to see a rheumatologist. He's currently on Indocin from the neurosurgeon until he can get into a rheumatologist. Third day taking it and he's having severe stomach pain and cramping, etc.....I'm told this will subside if he can tolerate it for several days...do you agree? Also - if you can imagine....he uses a punching bag for exercise. I'm trying to tell him that I imagine that is NOT the best thing he can do for his poor, achy hands....can anyone give me some logical ammunition to tell him? Or am I crazy and punching the bag is fine? Any advice for dealing with a difficult bi-polar, testosterone-driven 23 year old who resents his new diagnosis would be GREATLY appreciated. Thanks!!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 Hi , You certainly have your hands full. If I were you my main concern would be to make sure he remains on his meds for his Bi-Polar symptoms. RA and chronic pain can cause depression in anyone, much less someone prone to depression. He is going to have to experience the consequences of his misuse of his hands, nothing you tell him will help. I'm 44 yrs old and refuse to give in to this disease until the pain and symptoms just about cripple me. So 23 yr old will be in more denial. I can imagine it's so hard to watch him abuse his body and not say anything. As far as Indocin is concerned, I could take ibuprofen and other NSAIDS for a long time before my digestive system finally stopped tolerating them. I have had ulcers from all of the toxic meds, Vioxx especially. Now I take Celebrex 2xday because I can't tolerate anything else. TUMS and Pepcid help. both can be bought over the counter, and he may want to get tested for the h-pylori infection which indicates an ulcer. Hang in there, glad you found some support through this group. River Wolfe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Hi : Welcome to the group! I also have one of those 23 year old, testosterone driven sons, he does not have bi-polar, but he is OCD (we call him Monk) and on meds to try and work on this. If he were told what your son was, I could imagine him flipping out too. As a matter of fact, he has said that if by any chance he inherits RA or fibro from me, he definately will! Anyway, about the punching bag, no, that would not be the best thing for his hands, but I am sure that it is a great stress and pressure reliever to get his anger out. My son has a work-out bench and uses weights. He has a weight bar so he can lay on his back, protecting his spine, while he works out his arms and upper body. This can also be a great way to work out stress, and save his hands from a pummelling. Just a suggestion. He would need to have this okayed, of course by his doctor, because of his neck problems, but my son has a slight scoliosis and also has had problems with his back, and this type of exercise does not hurt him. Ask his doctor if there is anything else he can be given that will not upset his stomach so much, or are there any medications he can take with the Indocin that will reduce the affect it has on his stomach. Is he taking it on a full stomach? Has he tried taking it with milk or something to coat his stomach before the med? What type of treatment plan does the neurologist have otherwise? Is he waiting on what the rheumy will say? Did the neurologist say he felt it was fibro or RA or some other autoimmune disease? When is the appointment with the rheumy? If it is RA, then treatment with DMARDs needs to be started as soon as possible to slow down the disease process and cut down his chance of getting bony deformities. There is a lot he will be going through - anger, grief, depression, denial - pretty much everything you do when you grieve for a loved one. His life will be changing if he is dx with an autoimmune disease - but let him know that there is a lot of good meds out there, a lot in research, and more hope right now for patients than at any other time. I am glad that you are here for your son - we are here to help family too in any way we can - so let us know what is going on, or if you have any further questions. Take care - Kathe in CA --- Lutz <denisemcse1@...> wrote: > Hi! > > My son is 23 and newly-diagnosed as a result of an > MRI for his neck pain, > and the subsequent visit to the neurosurgeon who put > together the calcium > deposit above the C1 vertebrae which is causing his > arms to go numb, the > chronic fatigue, the pain in both hands and all > fingers, both knees, and > extreme pain in his neck....and now we're waiting > for an appointment through > his clinic to see a rheumatologist. > > He's currently on Indocin from the neurosurgeon > until he can get into a > rheumatologist. Third day taking it and he's having > severe stomach pain and > cramping, etc.....I'm told this will subside if he > can tolerate it for > several days...do you agree? > > Also - if you can imagine....he uses a punching bag > for exercise. I'm > trying to tell him that I imagine that is NOT the > best thing he can do for > his poor, achy hands....can anyone give me some > logical ammunition to tell > him? Or am I crazy and punching the bag is fine? > > Any advice for dealing with a difficult bi-polar, > testosterone-driven 23 > year old who resents his new diagnosis would be > GREATLY appreciated. > > Thanks!!! > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 My daughter's MRI and EEGs have all been normal. Her SPECT scan however was abnormal showing hyperfunction in deep brain areas (basal ganglia, thalamus, cingulate gyrus) and hypofunction in temporal lobes. E. Sorensen Interactive Metronome Hawaii Certified Interactive Metronome provider 808.734.6165 808.352.0116 (cell) [ ] Question for All My question is have your children who have been diagnosed with apraixa ever have an MRI done to confirm or deny the presence of apraxia? I google imaged photos of an apraxic brain and there were a few results showing that the part of the brain that controls speech looks different from that of a brain without apraxia Thanks Kim Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 Kim, My daughter did have an MRI done and it showed nothing out of the ordinary, other than a very small area in the cerebellum that affects her balance which stems from her premature birth and subsequent illness and not relevant to apraxia. From what I understand, most kids with apraxia have normal MRIs, and if anything abnormal is found, it is usually related to another condition (i.e. CP, epilepsy, etc). I googled your search and most of the images I've found were for adults. Most of the research are done on older adults who suffered strokes and are now apraxic, I believe those are the images you are looking at, not of children. Children with apraxia of speech are in a completely different population than those adults who fall victim to apraxia via strokes, injury and etc. Lori > > My question is have your children who have been diagnosed with apraixa ever have an MRI done to confirm or deny the presence of apraxia? I google imaged photos of an apraxic brain and there were a few results showing that the part of the brain that controls speech looks different from that of a brain without apraxia > Thanks Kim > > > > > Quote Link to comment Share on other sites More sharing options...
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