Re: Welcome Shine

[Guest guest]

Hi Shine,

Welcom to the group. As youre probably learning,

the people here are an amazing outlet, comfort and

resource. I am 32 and do not have kids, but feel like

I do, due to the fact that I always seem to have one

or more of my TEN neices and nephews in my care. I

was diagnosed at 26 and am on remicade and

methotrexate. I think you'll find that Remicade is a

wonder drug. It has been for me anyway. Please feel

free to ask me anything considering we are practically

the same age and I've taken it all!

Good luck and good health. AND DONT WORRY

ABOUT BEING A GOOD MOM TO YOUR BOYS. The fact that

youre concerned about RA's effect on them, already

says that you ARE! RA reacts to stress and emotional

states, so dont give yourself even more things to fret

about!!!

--- shine190 <shine190@...> wrote:

> Your Welcome, but I am glad I am not on that MTX

> anymore it gave me mouth

> ulcers, but to the sick to the stomach it never done

> that to me, but it did

> not work for me as it does others. So best of luck

> with yours maybe it will

> work for you. Let me know how you are doing.God

> Bless and painfree days.

> Rhonda

>

> [ ] New Diagnosis and Very Scared

>

> > Hello everyone, my name is Christy and I am a 34

> year old single mom

> > of 2 VERY active little boys (8) and (11). I was

> diagnosed with RA

> > last year after sudden inflammation and swelling

> of both wrists. I

> > was sent to a Rheumatologist the next week and my

> blood work has

> > been all out of whack ever since. I currently take

> Methotrexate and

> > Folic Acid and some kind of other med for the hair

> thinning and loss

> > that has been associated with the Methotrexate. I

> can't think of

> > the name of that med right now. My doctor called

> Monday and told me

> > that my Liver enzymes were elevated and for me to

> cut the MTX in

> > half for now and do more bloodwork next week. He

> had planned to

> > wait until October to begin Remicade treatments

> but he scheduled me

> > for an appointment on September 18th instead. I

> have done some

> > research on the Remicade and I know that it is

> given by IV and how

> > often, but I am curious as to whether they leave

> an access port in

> > or if they start from the beginning each time. I

> really am pretty

> > nervous about this treatment because of the risk

> of serious

> > infections. Can anyone give me some advice on this

> medication and

> > it's side effects.

> >

> > I am learning to deal with the effects of the RA

> (trying anyway).

> > My kids don't seem to understand sometimes but

> they are very

> > supportive and they help me out alot on my bad

> days. They are my

> > biggest concern with living with RA. I don't want

> to limit their

> > teenage years and the activities that go along

> with them. Sorry, I

> > just need to talk about it sometimes with those

> who understand what

> > I am going through and the messages from this

> group have been very

> > helpful so far. Thanks for listening!!

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >