Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 > > I am a 55 year young lady with pain that is sometimes unbearable and I > am not getting any satifaction from dr. I am sure many of you have > been to that point also. HELP. I have Lupus in my family. I have lost > 2 uncles and an aunt to that. Now my oldest daughter has been told she > has MS. > I was tested for Lupus and even tho I have ALL the signs they didn't > find it as Lupus in my Blood work. > My pain is so hard to discribe, but I will try. It isn't really joint > pain, but pain around that area and going down into my arms, legs, > ect. I have it in all my extrimities and I have alot of headaches. The > pain is all the time now. If I hold my arms or legs a certain way for > to long, the hurt then feel like thet go to sleep(tingle and numb)Does > anyone know how I feel and undersatnd my pain???? > Please I need someone to talk to about this. Is anyone fron this group > in TN? > Thanks > Vickey in TN. > Vickey I am here for you and I know to well what you are saying , I just get tired of tell people how much I hurt all the time. I tell my Hubby and right in the middle of telling him and changes the subject. so I know that he is tried of hearing it just as much as I am feeling of the pain that never goes away. My hand would go to sleep at night wake me us and and the pain was unbearable I was told I have carpal tunnel. My feet go to sleep if I sit to long. What are you taking for the pain? My dr. just gave me vicdine so I will see how that works. Again I am here if you need to talk. Janet IN IL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2006 Report Share Posted May 18, 2006 > > > I am here for you and I know to well what you are saying , I just get > tired of tell people how much I hurt all the time. I tell my Hubby and > right in the middle of telling him and changes the subject. so I know > that he is tried of hearing it just as much as I am feeling of the pain > that never goes away. > > My hand would go to sleep at night wake me us and and the pain was > unbearable I was told I have carpal tunnel. My feet go to sleep if I > sit to long. > > What are you taking for the pain? My dr. just gave me vicdine so I will > see how that works. > > Again I am here if you need to talk. > > Janet IN IL > > > > >thanks Janet, I am not on any meds and its driving me nuts.I went to the dr with this and was testwed for Lupus and it came back that i didnt have it, so he said it was just inflamation in the joints, gave me the Vicain also for a month and said may be I should think about changing jobs, now he wont give me anything else. I had not heard about my daughter and the MS as of the last time I went to my dr. I think I am gonna give up on him and try and find a different dr to go see. huggs Vickey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 19, 2006 Report Share Posted May 19, 2006 Vickey, if possible, please find a good rheumatologist for a second opinion. If there is nobody locally, you might consider traveling to Mayo or s Hopkins for a multidisciplinary consult. Sorry that you are experiencing so much pain. Not an MD I'll tell you where to go! Mayo Clinic in Rochester http://www.mayoclinic.org/rochester s Hopkins Medicine http://www.hopkinsmedicine.org [ ] Im at my wits end. >I am a 55 year young lady with pain that is sometimes unbearable and I > am not getting any satifaction from dr. I am sure many of you have > been to that point also. HELP. I have Lupus in my family. I have lost > 2 uncles and an aunt to that. Now my oldest daughter has been told she > has MS. > I was tested for Lupus and even tho I have ALL the signs they didn't > find it as Lupus in my Blood work. > My pain is so hard to discribe, but I will try. It isn't really joint > pain, but pain around that area and going down into my arms, legs, > ect. I have it in all my extrimities and I have alot of headaches. The > pain is all the time now. If I hold my arms or legs a certain way for > to long, the hurt then feel like thet go to sleep(tingle and numb)Does > anyone know how I feel and undersatnd my pain???? > Please I need someone to talk to about this. Is anyone fron this group > in TN? > Thanks > Vickey in TN. Quote Link to comment Share on other sites More sharing options...
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