Judi

[Guest guest]

In a message dated 1/7/00 7:40:50 AM Pacific Standard Time, judig2@...

writes:

Your boys sound normally active for DS children. My Ben (now 16) was very

active too at their age and only got more active for the next 5 years. By

about 9 he started settling down and now he's been very calm and rather

" quiet " for at least 6-7 years now. He was just so curious and full of

wonder as a little boy! He had no fears and he was quite impetuous at times,

just like my " normal " little boys! I had to keep a close " eye " on him. Of

course you've got " double " work with twins. I hope you've got some pretty

high energy levels! My , now 6, has been extremely active, yes, I'd

even say, Hyper, for about 2 1/2 years now. I'm tired all the time (I'm 42

years old) and I have a hard time keeping up with her. We must delegate

someone to her at all times as she may wander off. She climbs high and we

often find her on top of the chicken coupe or even trying to climb up on top

of the shed. She begs us to let her climb on top of the house. Of course we

tell her absolutely " no, " and let her know that is " danger!! " She is the

work of two or three kids wrapped into one! She makes lots of messes around

here. All I can say Judi, is hang in there!! I still have 2 year old

and I know it's going to come, in time. I'm just glad that my three

DS kids are spaced out in their ages and they are at different stages in

their lives. There isn't a day that goes by that I don't start out in prayer

and ask for God's help throughout the day. I'm pretty tired by evening and

always thankful that I've made it through another day without something

terrible happening.

Joyce-mother of seven(three are DS-Ben-16,-6,and 2 yr.10mo.)

[Guest guest]

LOL...rebecca sounds like my Denton! he sure doesnt

climb like that...but he goes and goes like the

energizer bunny! Course he is cutier! LOL I sure wish

I had some 12 yr old child to help me w/ him...he is a

handful and hard to socialize w/ anyone when he is w/

me! MO:)

--- Momjlf47@... wrote:

> In a message dated 1/7/00 7:40:50 AM Pacific

> Standard Time, judig2@...

> writes:

>

>

> Your boys sound normally active for DS children. My

> Ben (now 16) was very

> active too at their age and only got more active for

> the next 5 years. By

> about 9 he started settling down and now he's been

> very calm and rather

> " quiet " for at least 6-7 years now. He was just so

> curious and full of

> wonder as a little boy! He had no fears and he was

> quite impetuous at times,

> just like my " normal " little boys! I had to keep a

> close " eye " on him. Of

> course you've got " double " work with twins. I hope

> you've got some pretty

> high energy levels! My , now 6, has been

> extremely active, yes, I'd

> even say, Hyper, for about 2 1/2 years now. I'm

> tired all the time (I'm 42

> years old) and I have a hard time keeping up with

> her. We must delegate

> someone to her at all times as she may wander off.

> She climbs high and we

> often find her on top of the chicken coupe or even

> trying to climb up on top

> of the shed. She begs us to let her climb on top of

> the house. Of course we

> tell her absolutely " no, " and let her know that is

> " danger!! " She is the

> work of two or three kids wrapped into one! She

> makes lots of messes around

> here. All I can say Judi, is hang in there!! I

> still have 2 year old

> and I know it's going to come, in time.

> I'm just glad that my three

> DS kids are spaced out in their ages and they are at

> different stages in

> their lives. There isn't a day that goes by that I

> don't start out in prayer

> and ask for God's help throughout the day. I'm

> pretty tired by evening and

> always thankful that I've made it through another

> day without something

> terrible happening.

> Joyce-mother of seven(three are

> DS-Ben-16,-6,and 2 yr.10mo.)

>

=====

mom to Katy (10) and Denton (5)

both DS.

__________________________________________________

[Guest guest]

And to secodn that it wotn take a month in a communisitc country to see the

difference....havign been to Russia twice the lack of simple smiles is very

telling about what its like...forget the eco/social environment...As bad as

it can get here it will never be like it is over there...Even our slums have

better housing than soem of the housing I saw first hand.

arpyl

[Guest guest]

Maybe not...but there is still a very distinct communist influence. When

we adopted our son he was from the Komi Republic which is in northern Russia

and the judge who heard the case WAS A STAUNCH COMMUNIST nad readily admitted

it. cOMMUNISM MAY NOT BE OFFICIAL BUT IT IS TILL ALIVE IN THEORY.

aPRYL

[Guest guest]

Yes , I agree. WE have many choices. Many of us don't understand nor

know how to apply that to life. Some of us live as if we are in a communist

country. Today I know that my choices can free me or hinder me. I choose to

be alive and free.

Marilyn

[Guest guest]

Did they ever recovery your bag (minus cash

> & cc I'm sure)?

Hi Judi

No they never found my bag. The police thinks I scared the bejeebers out of

them so much they scampered miles away. If I had left them alone, my bag

may have been left in the Hotel grounds minus the good stuff.

One good thing happened though - someone found a used roll of film and

handed it into reception. I just had it developed and it's my photos from

Seaworld! YEHAWWWW!!! Weird because that was the only thing I was upset

about...HMMMMMM!!!!

Carolyn

Mum to on 9, 7, Emma (Ds) 5 and Nicki (Ds) 4

http://www.geocities.com/nz_mom/sykesfamily.html

[Guest guest]

Judi,

What can one add...only if you decide for TX...you might consider a

plan to deal with possible problems...especially emotional problems

caused by the interferon.

good luck...and take your time. Make your decision on what is best

for you.

andy

> > Hi everyone,

> >

> > Thanks for all the posts, Grace--you really are amazing!. And

> thanks also (belatedly) to Andy, Bob, and a few others for the

> informative and sometimes entertaining posts over the past few

> months. And Pete, for putting things into proper perspective when

> necessary.

> >

> > I've posted only a few times, but I've followed most of the

threads

> and I'm hoping those of you with more knowledge and experience than

> I, might steer me in the right direction.

> >

> > I've been infected with hepc for 35 years. Since my diagnosis

> almost 11 years ago, I've been closely monitored in an NIH study.

In

> January I had a biopsy which revealed mild inflammation and stage 1

> fibrosis. Until this year, I was asymptomatic and my liver enzymes

> were always normal. The viral count was also pretty stable except

> once when it went to 500,000. It's about 175,000 right now.

> >

> > For 11 years, the standard advice to me from the NIH docs was to

> watch and wait. Prior to 1993, I had never been more than an

> occasional wine- with-dinner drinker, but I stopped that as soon as

I

> got the diagnosis. Because I am a genotype 4 (I was infected by a

> blood transfusion in Central Africa), it is unclear when I can be

> included in an NIH protocol. There's a trial coming up that I can

be

> part of, but it's been held up for months by some glitch with the

> drug company. I've been waiting since May to find out when, and as

> time passes, I'm inclined not to wait any longer.

> >

> > My other option is to seek treatment privately. My viral count is

> fairly low right now and my AST/ALTs are within the normal

> range...kind of high but not alarming. But, since April/May I have

> experienced symptoms that have severly reduced my quality of life.

> I've been referred to a gastroenterology/hepatogy practice by my

> primary care physician.

> >

> > I want to ask them questions, so that I feel comfortable with

their

> approach. I already know that it would be combination treatment,

but

> I want to know how they deal with side effects, how many patients

> they have treated and what their sustained response rates are.

There

> are probably other things that would be good to know, but I don't

> know what they are.

> >

> > So friends, are there any other issues I should be address in my

> questions to to the private health care provider? I want to know

> exactly what I'm getting into and how it will be handled.

> >

> > Or...should I continue to wait for an answer from NIH? It might

be

> several months or even a couple of years until something happens. I

> might mention here that I will continue to be monitored by NIH

> regardless of whether I'm treated there or somewhere else.

> >

> > Thank you in advance for any response and support and thanks for

> being on this list. I do get good information here, along with the

> other stuff that sometimes clogs the mailbox.

> >

> > Wishing everyone good health,

> > Judi

> >

> >

[Guest guest]

You don't know how bad I wanted to go to that picnic. But it wasn't the

right time for me. My brother who is in stage 5 colon cancer is not doing very

well. I know you all had a great time even if I wasn't there......haha....

Computer has been down and I am so glad to be back. I need ya'll for support

and

encouragement.

Donna Pinto

December 9, 2003

273\202

5ft 9 1/2

Little Rock

Dr. Hargroder and Dr. Wilshire

[Guest guest]

Hey Donna, glad to see you back. There will be another get together. We;ll

be praying for your brother. Barb dudley

[Guest guest]

Thank you so much for taking the time to share your pics with me. It helped

me to feel like a part of the picnic. I won't miss the next one. Maybe the

Christmas party..........

Donna Pinto

December 9, 2003

273\200

5ft 9 1/2

Little Rock

Dr. Hargroder and Dr. Wilshire

[Guest guest]

SORRY I SPELLED YOUR NAME WRONG IN THE PREVIOUS POST

BRENDA

[Guest guest]

Nice to meet ya Judi. I am originally from RI but met a mountain man and here I am.

I love the mountains but miss the beach.

Hope you keep doing well. Have they said anything about cutting your prednisone? I finally am off mine for about a month now and so far so good.

Hopefully you will stay in remission for a long time.

Have a good thanksgiving,

the WV hillbilly

[Guest guest]

Hi Clare,

You asked about Dercum's disease. As I said, it's rare, but possibly

not as rare as it appears. Those of us with the disease think that

many people are diagnosed with fibromyalgia when they actually have

Dercum's. Many of the symptoms are the same, with the exception that

we have hundreds of very painful lipomas everywhere (they can even

grow in or on organs.) They infiltrate muscle tissue and make

movement difficult. The only ones in the world doing any research at

all on it is a group in England, who have included it in their

research on all tumors.

I take Diclofenac (Voltaren) and Ultram for pain & inflammation. I

used to take Topamax for the nerve pain, but when I was on chemo last

year (as a trial to see if it would shrink the tumors--it didn't) I

stopped taking the Topamax and never started it again.

is Hyacinth's klutzy neighbor (who only spills coffee at

Hyacinth's house!) yes, we have BBC, and like quite a few of the

programs there. I lived in England for a short while about 35 years

ago while I worked for Abbott Laboratories; I stayed with a family

who lived near the plant in Kent.

I hope the chemo is 100% effective for you, and that the time passes

quickly and without ill effects.

Blessings,

Judi

[Guest guest]

Judi, that fasting sugar of 85 sounds good to me. I wish my normal

fastings were that low, but I guess they never will be again. Anything

below 100 for fasting is considered normal. You certainly don't need

another disease to add to your collection, LOL.

Sue, the Diabetes Evangelist

On Friday, May 13, 2005, at 10:23 AM, nonny46 wrote:

> Sue,

>

> I won't ignore the possibility, but I do want to have a proper test--he

> just glanced at an OLD blood test from 2 years ago. I have not had a

> glucose test, just simple bloodwork. I was tested 2 years ago by an

> endocrinologist and the figures were normal. I think this is a case of

> him seeing an overweight, menopausal female whom he just figured needed

> to get off her butt and move more. I did get a copy of my last

> bloodwork, and my fasting sugar was 85.

>

> Thanks for the concern!

>

> Judi

[Guest guest]

Hi Marina,

Well, I don't post that much because since I don't have RA, I can't

answer the specific questions that come up about it. But I do read

everything, and everyone is on my prayer list!

I've been doing pretty good, staying on my South Beach diet (have lost

16 lb. so far) and trying to get to the pool twice a week. This past

week since it's been so hot, I've tried to finish up some craft

projects I started last winter. I've got a new doctor in Indy who

wants me to try a medication that has a ton of side effects, and have

to have some tests first to see if I can take it. But if it works, it

will be something others with Dercum's can try too.

How have things been going with you?

Judi

[Guest guest]

Hi Judi,

So sorry to hear of your husband's problem, but so glad that he did seek

medical attention when he did. I am lifting you and your family up in

prayer. Please keep us posted.

Rhue Green

5/6/04

Dr. Dasher

>From: Judi <skinnymini2b@...>

>Reply-

>

>Subject: Greenville-We need your prayers!!

>Date: Thu, 11 Aug 2005 06:52:26 -0700 (PDT)

>

>Hi everyone. Hope you all had a great get-together last Monday. As many

>of you know Tony and I were vacationing in Washington, DC. However while

>you all were gathering on Monday, Tony and I were in the ER of a major

>town University Hospital in DC. He experienced a " mild heart attack "

>and was just discharged last night to come home to Greenville where he can

>see a cardiologist in this area. He was discharged with a whole hand-full

>of scripts and we are meeting with our PCP today to discuss coordination of

>care. Of course, a " mild heart attack " is only a true statement if it is

>not happening to you. His heart cath revealed that he did not have any

>blocked arteries. (Praise the Lord) However, his heart is not beating

>correctly and electrical currents are " mis-firing " . He may have to have a

>pacemaker or an AICD (Automatic Internal Cardiac Defibrillator) or a

>procedure called an ablation. We will know more about that when he meets

>with the EP Cardiologist here in

> Greenville for his arrhythmia disorder.

>

>Please hold us up in your prayers. Although we have been through a lot

>together. This is very scary for both of us. He could have lost his life

>had he not been forced to seek medical attention on Monday. (He kept

>saying he was just having indigestion and was going to be OK) When he had

>his BP taken, it was 70/68 and his heart was racing at 250 beats per

>minute!!!!!!!!!!!!!!!!!!!!! We almost lost him!

>

>Love N ((HUGS)) Judi in Simpsonville

>

>Carol <c2pc52@...> wrote:

>Hi, everyone! The next meeting of our Greenville Mini-Gastric

>Bypass (MGB) Group is Monday, August 8th, at 6:30 p.m. at China Wok

>Buffet, 3906 Pelham Road, Greenville, SC 29615, phone: (864) 297-

>9788. We MUST get as close a count as possible for our gathering so

>please email your RSVP to Laverne McPheron at slopke1@... or

>phone her at (864) 295-0676 no later than Sunday, August 7th.

>

>We have reserved a private dining room for our meeting, but they

>will not hold it unless we can confirm reservations. Hope you can

>make it. If you need directions from your location, go to

>www.mapquest.com and follow the instructions to get driving

>directions.

>

>We have now broken the 5,000 lb. ceiling and collectively have lost

>a total of 5,039 pounds!!!

>

>Thanks for your help in responding to Laverne as soon as possible!

>See you at the meeting! Please be sure to bring guests if you'd

>like! Everyone is welcome!! Just let Laverne know how many to

>expect.

>

>

>Carol C. Perrin Cobb

>6/30/03, Dr. Rutledge/Statesville, NC

>285 lbs./174 lbs.

>Size 28/Size 14

>

>

>

>

>

>

>

[Guest guest]

((((Tess)))) right back at you.

Please mention Dercum's Disease to your doctor--you might want to go to

www.dercumshope.org and print out some information, as the location of

your lumps sure sounds like DD to me. May it not be so...

Love,

Judi

>

[Guest guest]

Hi Judi:

That is wonderful, my friend. I am so glad that you

are obtaining such immediate relief, and are able to

do things that were unthinkable just days ago. I,

too, have FM which has really been working its evil

ways on me lately. I am making note of this

medication and at my next appointment will be asking

my doctor if it would be helpful to me. Thanks for

the heads-up.

Kathe in CA

--- nonny46 <nonny46@...> wrote:

> Hi all,

>

> I just started taking a new medication, Lyrica

> (pregabalin) that I

> first heard about when I saw something posted here

> (probably from

> or a.) It is by Pfizer, and they said it

> " shows great

> promise in treating Fibromyalgia. "

>

> Since Dercum's Disease is so similar to FM, my

> doctor agreed to my

> trying it, especially after such a dismal reaction

> to the Pimozide I

> did try. I have taken 2 doses, one Thursday night

> and one last

> night, not even near the dosage I'm supposed to

> take. So far I have

> had 2 very good nights' sleep, and my pain level has

> gone from about

> 20 down to a 2 (on a scale of 1-10.) The only

> negative has been some

> dizziness, but that usually goes away after

> breakfast and coffee.

> Yesterday I worked 3 hours cleaning one Sunday

> School room, and did

> not have the grinding pain in my hips that usually

> comes from being

> on my feet. Today I did 2 loads of laundry, cut

> grass, and baked 2

> different kinds of cookies for church tomorrow, and

> it's only 2:45!

>

> I just wanted to share this with you in case any of

> you who are not

> satisfied with your FM meds might want to ask your

> doctor if you can

> try this. It is in the same general category as

> Neurontin, but I

> took Neurontin and believe me, this doesn't act at

> all the same!

>

> Hoping you're having a good weekend,

>

> Judi in Indiana--enjoying sunny and 70's

>

>

>

Kathe in CA

__________________________________________________

[Guest guest]

I love spider solitaire and play that to unwind. I like to play the Medium

level of difficulty but I also enjoy the difficult level too. I have won

the difficult 2 times but that is all.

Terri

[ ] Judi

> Oh No NOT another SPIDER addict! I'm totally addicted to spider

> solitaire. I hope you feel better

> soon.

>

> a

>

>

>

> On Sep 21, 2005, at 11:03 AM, nonny46 wrote:

>

>> Dear Beth,

>>

>> Sorry you're in a flare--but then you're not alone! I spent most of

>> last night playing Spider Solitaire on the computer. Even my tramadol

>> didn't help last night, but this morning is a bit better though I'm

>> foggy-headed. We were supposed to have our 5-year old grandson visit,

>> but when they called at 9:00 and I said give us another hour, they

>> decided it was better if he didn't visit today. I think having him

>> here would've helped, but then I wasn't given the chance to

>> decide! So

>> I will just go sit with the heating pad on and bury my nose in a good

>> book. You take care,

>>

>> Judi

>

>

>

>

[Guest guest]

Hi Judi

I know its not a good op to have done . I have a freiend who had the same op

and I know she went thru hell. Pleased you got a nice cute ortho...lol

take care

Joyce

nonny46 <nonny46@...> wrote:

Thanks, joyce!

It sure wasn't any fun, that's for sure! I'd rather have each hair

ripped out one by one...well, maybe not. I guess only time will tell

about the success of the surgery, but the otho is a good guy and I

really trust him. Besides, he's awfully cute!

Judi

[Guest guest]

Thanks, Judi, for the card. I hope your day was great.

Rhue Green

>From: Judi <skinnymini2b@...>

>Reply-

>Judy <blazer01@...>, " pleroy1210@... "

><pleroy1210@...>, " plove52@... " <plove52@...>,

> " reesehou@... " <reesehou@...>, " lynnreach@... "

><lynnreach@...>, " mags4u2@... " <mags4u2@...>, Pat Marcum

><pmarcum@...>, Mark <mrburns@...>, Mike & Meadors

><mm2000@...>, MGB <OSSG-MiniGastricBypass >, MGB

>Post Op < >, Monroe <npm@...>, Marilyn

>Morin <camp121@...>, " Dr. Mothershed " <renaissancepsych@...>,

> " dhwilcox@... " <dhwilcox@...>, " dutch@... "

><dutch@...>, " elizabeth22222@... "

><elizabeth22222@...>, " elrembert@... " <elrembert@...>,

>Kathy Goodman <ksgoodman@...>, Henry

><snoozer1@...>, " i_giv_val-u@... "

><i_giv_val-u@...>, " jamigoldwing@... "

><jamigoldwing@...>, kirk jetton <ksjetton@...>,

> " jgarrett@... " <jgarrett@...>,

> " jibehoes@... " <jibehoes@...>, " kleier7@... "

><kleier7@...>, Alisha Ackerman <marcnalisha@...>,

> " angieharmon@... " <angieharmon@...>, Karla Attamack

><kdatta@...>, " barbara@... "

><barbara@...>, Bartolomucci <abartolo@...>,

> " bccccc5751@... " <bccccc5751@...>, " beanienanna@... "

><beanienanna@...>, Bev Best <best_beverly@...>,

> " bethball01@... " <bethball01@...>,

> " bhogan@... " <bhogan@...>, " Blackstone, Hope "

><ahpb@...>, " brsflower@... " <brsflower@...>, Beth Burns

><bburns1963@...>, " c2pc52@... " <c2pc52@...>,

><elybug1@...>, S in VA <MrsTK5@...>, " clatty321@... "

><clatty321@...>, Donna Cody <signhomes@...>, Michele

><chels_70@...>, Cowe <crowe73@...>, " cw@... "

><cw@...>, " dfisher277@... " <dfisher277@...>,

> " dygit6767@... " <dygit6767@...>, " Hannah, Sue " <SHLW9941@...>,

> " jgj-ewj@... " <jgj-ewj@...>, " , Elise "

><jgj-ewj@...>, " Kennemore, " <tkennemore@...>,

> " khrt1@... " <khrt1@...>, " kim.mcclellan@... "

><kim.mcclellan@...>, " led3@... "

><led3@...>, " , from Greenville " <mlweddle1@...>,

> " loriy29680@... " <loriy29680@...>, Wade Loudermilk

><wloud@...>, " McPheron, Laverne " <slopke1@...>,

> " mcypher31@... " <mcypher31@...>, De Ila Meyer

><dr.meyer3@...>, " mf362@... " <mf362@...>,

> " michellebennett@... " <michellebennett@...>, " , Deb "

><debbiemoore@...>, " mrothrn@... " <mrothrn@...>,

> " nurseyvo@... " <nurseyvo@...>, " patrinar@... "

><patrinar@...>, " pcmudry@... "

><pcmudry@...>, Carol Perrin-Cobb <ccobb@...>,

>BONNIE PHILLIPS <bcphillips@...>, " robincrusco@... "

><robincrusco@...>, Donna <donnaruss63@...>,

> " scnurse@... " <scnurse@...>, " shanna9193@... "

><shanna9193@...>, " shirleybirch@... "

><shirleybirch@...>, " sjzman1@... " <sjzman1@...>,

> " skinnymini2b@... " <skinnymini2b@...>, " tag@... "

><tag@...>, " tbutler@... " <tbutler@...>,

> " tkak123@... " <tkak123@...>, " torchlilly@... "

><torchlilly@...>, " vanessabrdly@... " <vanessabrdly@...>,

> " zap@... " <zap@...>

>Subject: Hope you have a GREAT Thanksgiving, y'all!

>Date: Wed, 23 Nov 2005 04:18:40 -0800 (PST)

>

>

> To all my friends: Hope you have a great Thanksgiving and enjoy this

>Greeting Card!

> Click on the following link.

>http://www.americangreetings.com/view.pd?i=391798787 & m=8085 & rr=y & source=ag999

>

> Love N ((HUGS)) Judi in SC

>

>

>

>

>

>Judi from South Carolina.

>

> " If you continue to do what you always have done, you'll continue to get

>what you always have got "

>

>

>---------------------------------

> FareChase - Search multiple travel sites in one click.

>

>

[Guest guest]

HAPPY BIRTHDAY JUDI!!! ENJOY and many blessings coming at ya

[Guest guest]

I don't recall seeing any new posts from Judi and wondering how Ron is

getting along. If you read this Judi, let us know please.

Hugs

June