Re: Turns out its Fibro.... Bridget

[Guest guest]

Hi Bridget:

Welcome to the wonderful world (not) of Fibro. You

have not turned stupid - you probably are experiencing

what we call Fibro fog. It's one of the syptoms of

Fibro - difficulty with words, finding the right

words, then trying to say them and saying something

else, congnitive problems, memory problems,

forgetfulness, etc. My family, too, wonders where my

brain went lol.

I will gasp in pain when my tender points are even

touched lightly, these are the trigger points of

Fibro. The skin pain you have is caused by Fibro - is

it burning, aching pain? Is your skin sensitive to

touch? Fatigue is also a symptom. Do you have IBS,

migraines, growing pains as a child, balance problems,

sleep problems, etc. I will repost something I got on

Fibro that shows all the things that can go along. I

have just about everything lol.

No it is not cureable, but with medications it can be

liveable. There are flares just like with RA, except

that you will feel it in the muscles of your body

rather than the joints, although you will also have

joint stiffness from the Fibro, just not the heat and

swelling of RA. I take Ultracet for pain (use this for

RA too), muscle relaxants (Skelaxin and Zanaflex),

Lyrica for nerve pain, and Ambien for sleep. I also

belong to the Fibromyalgia/CFS support group through

groups, and it has helped me, you might want to

check it out.

Sorry you have Fibro, but glad you are here.

Kathe in CA

--- Bridget Hiskins <nashirafae@...> wrote:

> Went to see the RA doc today and it turns out I have

> fibro. Now what exactly does that mean? She did this

> thing where she pushed on different spots of my body

> and by doing so she actually caused the skin pain I

> have had to come back. And to think I was having a

> good day. So for those who have this if you don't

> mind my asking what does this mean. My father read

> over the pamphlet that I was given by the RA doctor

> and got a little upset when he saw the word " cure "

> written on it. He told me there is no cure for it

> and it makes him very angry that they would say such

> a thing.

>

>

>

> Is this something that can get progressively worse

> and is there something besides narcotics for the

> pain that others have found work better? I also

> spoke to my PCP and he told me that he will not keep

> me on Oxycodone because it is bad medicine. I take

> this crap, it hardly works, and now I am told it's a

> bad thing. He told me to finish off this med and

> then he will give me something different. Would it

> not be better just to take me off it now than to

> continue on something he considers bad???

>

> I am aware that the folks here are not doctors but

> as I said before I have found that the

> information/advice I get out of those who suffer is

> more helpful then what most doctors have told me.

> They do not seem to really get it if they are not

> actually experiencing it you know?

>

> I also realized today that I some how became stupid.

> Ok not stupid but my brain seems not right. I am not

> sure how else to explain it. My husband keeps asking

> me what the heck is wrong. I cannot think straight.

> I would blame the meds but I have been on them for

> over a year now. It's totally weird.

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

Kathe in CA

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