Re: Curiosity Question

[Guest guest]

I'm 52 and was diagnosed at age 26.

a

On Sep 3, 2006, at 11:43 PM, Parrish Blaszka wrote:

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

> Thanks and enjoy the Labor Day holiday.

> -Parrish

>

>

>

[Guest guest]

I will be 75 this month

Diagnosed at age 52

Hugs

June

----- Original Message -----

From: Parrish Blaszka

Hi all,

I have been learning a lot from all of your posting,

thanks! Out of curiosity, how old is everyone? Age of

diagnosis, years living w/RA?

ps, I am 30.

Thanks and enjoy the Labor Day holiday.

-Parrish

[Guest guest]

I'm 29. I was diagnosed about five months ago but I think I've had RA

for about 8 years but the last 2 have been the worse.

>

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

> Thanks and enjoy the Labor Day holiday.

> -Parrish

>

[Guest guest]

I'm 32 and was diagnosed at 31

Meredith in Canada

: Re: [ ] Curiosity Question

I'm 52 and was diagnosed at age 26.

a

On Sep 3, 2006, at 11:43 PM, Parrish Blaszka wrote:

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

> Thanks and enjoy the Labor Day holiday.

> -Parrish

>

>

>

[Guest guest]

Parrish,

I am 34 years old and diagnosed about 1 1/2 years now.

Christy

Parrish Blaszka <parrish_blaszka@...> wrote:

Hi all,

I have been learning a lot from all of your posting,

thanks! Out of curiosity, how old is everyone? Age of

diagnosis, years living w/RA?

ps, I am 30.

Thanks and enjoy the Labor Day holiday.

-Parrish

---------------------------------

Get your email and more, right on the new .com

---------------------------------

Get your email and more, right on the new .com

[Guest guest]

I'm 48 and have been diagnosed with RA/SLE when I was 26.

Joanne, IL

[ ] Curiosity Question

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

> Thanks and enjoy the Labor Day holiday.

> -Parrish

>

>

>

>

>

>

[Guest guest]

I am 54, diagnosed 2 years ago....but know that I have

had it for much longer than that...but I kept trudging

thru as best I could for probably 5-10 years with the

RA and longer with the fibro!!.........jenna

__________________________________________________

[Guest guest]

Hi, I was diagnosed with RA at 35 years old, I am 36 now. Cassy

>

> Hi all,

>

>

[Guest guest]

I'm only 29 and was diagnosed in 1990 at 46

anonymous

" It's not Rocket Surgery "

[ ] Curiosity Question

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

> Thanks and enjoy the Labor Day holiday.

> -Parrish

[Guest guest]

Hi! My age is 44, and I was dx. in October of 2005, it has been a real

nitemare, I think all my started back about six yrs. ago, but at that time I

was dx. with bursitis, but I am not sure but the pain back then was what I

have been having since Oct.,turns out I have RA,DJD, and now after seeing

the doctor a couple of days ago,he tested me for gout now,find out in a week

or so if I have that to.Just be more meds., to take and I am sick of taking

all this stuff, but the pain was unbearble.How about you? What is your dx.?

Rhonda

[ ] Curiosity Question

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

> Thanks and enjoy the Labor Day holiday.

> -Parrish

>

>

>

>

>

>

[Guest guest]

I am 41yo. I was dx'd at age 37 yo. So its been 4 yrs.

Posted by: " Parrish Blaszka " _parrish_blaszka@... _

(mailto:parrish_blaszka@...?Subject=Re: Curiosity%20Question)

_parrish_blaszka _

(parrish_blaszka)

Mon Sep 4, 2006 2:19 am (PST)

Hi all,

I have been learning a lot from all of your posting,

thanks! Out of curiosity, how old is everyone? Age of

diagnosis, years living w/RA?

ps, I am 30.

Thanks and enjoy the Labor Day holiday.

-Parrish

[Guest guest]

HI Parrish,

Im 32 and was diagnosed at 26, when my WHOLE body

flaired up to the point of being bed ridden and

needing help washing and dressing. Been on and off of

it all, or atleast it feels like it. It's under

control much of the time. Unfortunatly now not being

one of them!! Thats my own doing though, because I've

been slacking on the doctor's oreders. Seeing that we

are so close in age, feel free to ask anything.

--- shine190 <shine190@...> wrote:

> Hi! My age is 44, and I was dx. in October of 2005,

> it has been a real

> nitemare, I think all my started back about six yrs.

> ago, but at that time I

> was dx. with bursitis, but I am not sure but the

> pain back then was what I

> have been having since Oct.,turns out I have RA,DJD,

> and now after seeing

> the doctor a couple of days ago,he tested me for

> gout now,find out in a week

> or so if I have that to.Just be more meds., to take

> and I am sick of taking

> all this stuff, but the pain was unbearble.How about

> you? What is your dx.?

> Rhonda

> [ ] Curiosity Question

>

>

> > Hi all,

> >

> > I have been learning a lot from all of your

> posting,

> > thanks! Out of curiosity, how old is everyone? Age

> of

> > diagnosis, years living w/RA?

> >

> > ps, I am 30.

> >

> > Thanks and enjoy the Labor Day holiday.

> > -Parrish

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi,

I am 30 (for about the next 15 hours!). Was diagnosed

about a week ago. Earlier this summer, my wrists

really started to bother me. I work a lot on the

computer, so I thougth I had carpal tunnel. Went to my

primary, he treated me for such. Wore the splints,

iced. No difference. I also had what looked like a

ganglion cyst on the top of my left wrist. No pain,

just a lump. I went for xrays on my wrist. Totally

normal. I then went to a rheumy. At random other

points during the summer I had swelling in my right

ankle (attributed it to a long distance rollerblading

episode) and elbow swelling. Otherwise, not much else.

My most affected areas are my index & middle finger on

my right hand. Swelling and stiff. However, no

limitations for use.

All my bloodwork has come back negative. I had an mri

this summer on my wrists, which I think showed some

swelling (I honestly forget what my rheumy said).

I have not started any meds (other than omega-3,

turmeric powder & naproxen-on occassion). I have had

no changes in daily activity. Still hit the gym each

day (try to do things that don't aggraviate my

joints). Minor stiffness in the am, but nothing

compared to some other stories from folks.

I am really have a hard time coming to terms with the

fact that I might need to start meds. My first rheumy

wants to start me on something (she's letting me

decide). I have a 2nd opinion with anohter rheumy on

the 20th. I am not going to start anything until I

meet with him. I feel totally normal and cannot

imagine what benefit I would get from starting any of

the meds.

I don't have kids yet, but we plan to someday. The

risks & toxicity of some of the meds seem to outweigh

any of the benefits.

For me, the only potential benefit I can see is the

prevention of future joint damage. Is joint damage

inevitable for all with RA?

I'd like to hear from you all. Anyone with a similar

history to me? What did you decide? Am I being an

idiot by not starting with the meds?

What is everyone's long term treatment plan? Do you go

on meds for the rest of your life? Or only during

times of flare ups?

Thanks for listening!

-Parrish

--- shine190 <shine190@...> wrote:

> Hi! My age is 44, and I was dx. in October of 2005,

> it has been a real

> nitemare, I think all my started back about six yrs.

> ago, but at that time I

> was dx. with bursitis, but I am not sure but the

> pain back then was what I

> have been having since Oct.,turns out I have RA,DJD,

> and now after seeing

> the doctor a couple of days ago,he tested me for

> gout now,find out in a week

> or so if I have that to.Just be more meds., to take

> and I am sick of taking

> all this stuff, but the pain was unbearble.How about

> you? What is your dx.?

> Rhonda

> [ ] Curiosity Question

>

>

> > Hi all,

> >

> > I have been learning a lot from all of your

> posting,

> > thanks! Out of curiosity, how old is everyone? Age

> of

> > diagnosis, years living w/RA?

> >

> > ps, I am 30.

> >

> > Thanks and enjoy the Labor Day holiday.

> > -Parrish

> >

> >

> >

> >

> >

> >

[Guest guest]

How have you been treating your RA? Have you been on

meds for the last 22 years? Or have you been on & off

depending upon how you feel?

--- J <xtend2000@...> wrote:

> I'm 48 and have been diagnosed with RA/SLE when I

> was 26.

> Joanne, IL

>

> [ ] Curiosity Question

>

>

> > Hi all,

> >

> > I have been learning a lot from all of your

> posting,

> > thanks! Out of curiosity, how old is everyone? Age

> of

> > diagnosis, years living w/RA?

> >

> > ps, I am 30.

> >

> > Thanks and enjoy the Labor Day holiday.

> > -Parrish

> >

> >

> >

> >

> >

> >

[Guest guest]

Parrish,

I just turned 67 last month. I was lucky enough not to get RA until I

was in my sixties, I think five years ago.

Sue

On Sunday, September 3, 2006, at 11:43 PM, Parrish Blaszka wrote:

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

[Guest guest]

Just turned 47. DX'ed at 40, but had major symptoms years before that. Right

now in the middle of a major flare up. Rheumy adding a dx of Psoriatic

arthritis (PA), which was cause damage to my spine/cervical vertebra. Been on

Mtx since I was DX with RA, biologic caused a major infection in my hip joint.

Start Avara a month ago and prendisone 20 mg daily, side effects are doing me in

right now. The PA in my spine is causing me more pain than the RA in my neck,

shoulders, arms and hands. Right now I just want to curl up and not deal with

this any more. Too much pain.

________________________________________________________________________

Check out AOL.com today. Breaking news, video search, pictures, email and IM.

All on demand. Always Free.

[Guest guest]

I just turned 50 and have yet to develop RA. Do have my share of health

problems though. When I found out I had fibro I was 36. Able to deal

with it until last year when things got worse.

Debbie L

>

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

> ps, I am 30.

>

> Thanks and enjoy the Labor Day holiday.

> -Parrish

>

[Guest guest]

Parrish, unlike you, my RA started off with a big bang. The pain was

pretty much unbearable after a couple of months. Life with that much

pain would be hard to live. So, anyhow, I was glad to start on meds,

anything to get rid of the pain. It took a while to find the right med

for me, and that is Enbrel. I know that I will have to take something

for the rest of my life. Sometimes I can really tell when it's about

time for my injection, so I know that the disease is still there, being

kept under control by the Enbrel. I just hope that it keeps on being

effective, and that my insurance will continue to pay most of its cost.

The idea is to treat RA aggressively from the start to prevent joint

damage. What does your rheumy say?

Sue

On Monday, September 4, 2006, at 04:36 PM, Parrish Blaszka wrote:

>

> I'd like to hear from you all. Anyone with a similar

> history to me? What did you decide? Am I being an

> idiot by not starting with the meds?

>

> What is everyone's long term treatment plan? Do you go

> on meds for the rest of your life? Or only during

> times of flare ups?

[Guest guest]

Joanne, I understand your situation although I'm not at the " doughnut hole "

level yet. They trap you into taking Medicare Part D. If you don't they

will

penalize you. I have stopped taking my cholestrol med because I'm taking

Caduet for my B/P. The Caduet has Lipitor in it for cholestrol anyway.

I've stopped taking Fentanyl pain patches because they cost somewhere

near $300. Sure have suffered since. Especially today, we have a low

pressure coming through. If I had to pay $550/month I'd have to do without

food.

Joyce from Texas

Re: [ ] Curiosity Question

I've been on meds since my diagnosis, however, none seemed to work very well

until Enbrel/Humira was started a few years ago. Every now and then, I try

to eliminate some of the meds, but never seem to be able to. I'm in the

" doughnut hole " right now with Medicare Part D which means that I have NO

drug coverage right now. The last 3 months have cost about $550/month. I'm

also on meds for my blood pressure and asthma. Sorry to go off and I'm sure

everyone here is very familiar with drug costs, just getting fed up and

don't know how much longer I can afford to pay these prices. Best wishes

for a peaceful night for all.

Joanne, IL

[Guest guest]

>

> Hi all,

>

> I have been learning a lot from all of your posting,

> thanks! Out of curiosity, how old is everyone? Age of

> diagnosis, years living w/RA?

>

I'm 40 was diagnosed with sero-negative RA October of 2005--so almost

1 year now.

dordale

[Guest guest]

Must get my gimpy~butt to bed. Just wanted to say

HAPPY BIRTHDAT PARRISH!!!!!!!!!!

--- Parrish Blaszka <parrish_blaszka@...> wrote:

> Hi,

>

> I am 30 (for about the next 15 hours!). Was

> diagnosed

> about a week ago. Earlier this summer, my wrists

> really started to bother me. I work a lot on the

> computer, so I thougth I had carpal tunnel. Went to

> my

> primary, he treated me for such. Wore the splints,

> iced. No difference. I also had what looked like a

> ganglion cyst on the top of my left wrist. No pain,

> just a lump. I went for xrays on my wrist. Totally

> normal. I then went to a rheumy. At random other

> points during the summer I had swelling in my right

> ankle (attributed it to a long distance

> rollerblading

> episode) and elbow swelling. Otherwise, not much

> else.

> My most affected areas are my index & middle finger

> on

> my right hand. Swelling and stiff. However, no

> limitations for use.

>

> All my bloodwork has come back negative. I had an

> mri

> this summer on my wrists, which I think showed some

> swelling (I honestly forget what my rheumy said).

>

> I have not started any meds (other than omega-3,

> turmeric powder & naproxen-on occassion). I have had

> no changes in daily activity. Still hit the gym each

> day (try to do things that don't aggraviate my

> joints). Minor stiffness in the am, but nothing

> compared to some other stories from folks.

>

> I am really have a hard time coming to terms with

> the

> fact that I might need to start meds. My first

> rheumy

> wants to start me on something (she's letting me

> decide). I have a 2nd opinion with anohter rheumy on

> the 20th. I am not going to start anything until I

> meet with him. I feel totally normal and cannot

> imagine what benefit I would get from starting any

> of

> the meds.

>

> I don't have kids yet, but we plan to someday. The

> risks & toxicity of some of the meds seem to

> outweigh

> any of the benefits.

>

> For me, the only potential benefit I can see is the

> prevention of future joint damage. Is joint damage

> inevitable for all with RA?

>

> I'd like to hear from you all. Anyone with a similar

> history to me? What did you decide? Am I being an

> idiot by not starting with the meds?

>

> What is everyone's long term treatment plan? Do you

> go

> on meds for the rest of your life? Or only during

> times of flare ups?

>

> Thanks for listening!

> -Parrish

>

>

>

> --- shine190 <shine190@...> wrote:

>

> > Hi! My age is 44, and I was dx. in October of

> 2005,

> > it has been a real

> > nitemare, I think all my started back about six

> yrs.

> > ago, but at that time I

> > was dx. with bursitis, but I am not sure but the

> > pain back then was what I

> > have been having since Oct.,turns out I have

> RA,DJD,

> > and now after seeing

> > the doctor a couple of days ago,he tested me for

> > gout now,find out in a week

> > or so if I have that to.Just be more meds., to

> take

> > and I am sick of taking

> > all this stuff, but the pain was unbearble.How

> about

> > you? What is your dx.?

> > Rhonda

> > [ ] Curiosity Question

> >

> >

> > > Hi all,

> > >

> > > I have been learning a lot from all of your

> > posting,

> > > thanks! Out of curiosity, how old is everyone?

> Age

> > of

> > > diagnosis, years living w/RA?

> > >

> > > ps, I am 30.

> > >

> > > Thanks and enjoy the Labor Day holiday.

> > > -Parrish

> > >

> > >

> > >

> > >

> > >

> > >

[Guest guest]

Hi Parrish,

I am 40 and was diagnosed with RA when I was 38, so have had it for 2 years

officially, however, it took them a good six months or more to figure out what

was wrong with me as my health kept deteriorating. I am seronegative by the way

which I believe is more difficult to diagnosis?? Nice to meet you.

Tracie in Maine

---------------------------------

All-new - Fire up a more powerful email and get things done faster.

[Guest guest]

Thanks !

--- Hertling <mchertling@...> wrote:

> Must get my gimpy~butt to bed. Just wanted to say

> HAPPY BIRTHDAT PARRISH!!!!!!!!!!

>

> --- Parrish Blaszka <parrish_blaszka@...>

> wrote:

>

> > Hi,

> >

> > I am 30 (for about the next 15 hours!). Was

> > diagnosed

> > about a week ago. Earlier this summer, my wrists

> > really started to bother me. I work a lot on the

> > computer, so I thougth I had carpal tunnel. Went

> to

> > my

> > primary, he treated me for such. Wore the splints,

> > iced. No difference. I also had what looked like a

> > ganglion cyst on the top of my left wrist. No

> pain,

> > just a lump. I went for xrays on my wrist. Totally

> > normal. I then went to a rheumy. At random other

> > points during the summer I had swelling in my

> right

> > ankle (attributed it to a long distance

> > rollerblading

> > episode) and elbow swelling. Otherwise, not much

> > else.

> > My most affected areas are my index & middle

> finger

> > on

> > my right hand. Swelling and stiff. However, no

> > limitations for use.

> >

> > All my bloodwork has come back negative. I had an

> > mri

> > this summer on my wrists, which I think showed

> some

> > swelling (I honestly forget what my rheumy said).

> >

> > I have not started any meds (other than omega-3,

> > turmeric powder & naproxen-on occassion). I have

> had

> > no changes in daily activity. Still hit the gym

> each

> > day (try to do things that don't aggraviate my

> > joints). Minor stiffness in the am, but nothing

> > compared to some other stories from folks.

> >

> > I am really have a hard time coming to terms with

> > the

> > fact that I might need to start meds. My first

> > rheumy

> > wants to start me on something (she's letting me

> > decide). I have a 2nd opinion with anohter rheumy

> on

> > the 20th. I am not going to start anything until I

> > meet with him. I feel totally normal and cannot

> > imagine what benefit I would get from starting any

> > of

> > the meds.

> >

> > I don't have kids yet, but we plan to someday. The

> > risks & toxicity of some of the meds seem to

> > outweigh

> > any of the benefits.

> >

> > For me, the only potential benefit I can see is

> the

> > prevention of future joint damage. Is joint damage

> > inevitable for all with RA?

> >

> > I'd like to hear from you all. Anyone with a

> similar

> > history to me? What did you decide? Am I being an

> > idiot by not starting with the meds?

> >

> > What is everyone's long term treatment plan? Do

> you

> > go

> > on meds for the rest of your life? Or only during

> > times of flare ups?

> >

> > Thanks for listening!

> > -Parrish

> >

> >

> >

> > --- shine190 <shine190@...> wrote:

> >

> > > Hi! My age is 44, and I was dx. in October of

> > 2005,

> > > it has been a real

> > > nitemare, I think all my started back about six

> > yrs.

> > > ago, but at that time I

> > > was dx. with bursitis, but I am not sure but

> the

> > > pain back then was what I

> > > have been having since Oct.,turns out I have

> > RA,DJD,

> > > and now after seeing

> > > the doctor a couple of days ago,he tested me for

> > > gout now,find out in a week

> > > or so if I have that to.Just be more meds., to

> > take

> > > and I am sick of taking

> > > all this stuff, but the pain was unbearble.How

> > about

> > > you? What is your dx.?

> > > Rhonda

> > > [ ] Curiosity Question

> > >

> > >

> > > > Hi all,

> > > >

> > > > I have been learning a lot from all of your

> > > posting,

> > > > thanks! Out of curiosity, how old is everyone?

> > Age

> > > of

> > > > diagnosis, years living w/RA?

> > > >

> > > > ps, I am 30.

> > > >

> > > > Thanks and enjoy the Labor Day holiday.

> > > > -Parrish

> > > >

> > > >

> > > >

> > > >

> > > >

> > > >

[Guest guest]

I'm 59 and was diagnosed with RA April 2003 when I was 55. I recently sold my

townhouse ( 3 levels ) in . VA and moved to Florence, SC to a home all on

one level. Not having to go up and down stairs has made a large difference in my

health. I've been on Humira since I was 56, weekly for almost 1 year.

Colleen

[Guest guest]

HAPPY BIRTHDAY!!

Dennis in Eastexas

" It's not Rocket Surgery "

>> --- Parrish Blaszka <parrish_blaszka@...>

>> wrote:

>>

>> > Hi,

>> >

>> > I am 30 (for about the next 15 hours!).