Missy

[Guest guest]

Missy,

Sometimes, I must admit, that I do get the " why me " attitude. It seems as if I

never can catch a break. But I am blessed. At 28 I have two wonderful children

and a wonderful man in my life and I need to be grateful for those things and

seeing you speak of your daughter reminds me of that. What a blessed child you

have to have to suffer the way she must and still go on. She must be so strong

to go through all of this and I'm sure that even though it doesn't seem so at

times, that God is smiling down on her. I will keep you and your daughter in my

prayers. Thank you for being such a good mother and showing us how it is done.

kerri sue

MELISSA CRIGLER <nmsanders@...> wrote:

Hi . I'm new with this site also. My daughter, has JRA. She's six

now - was DX when she was two. I have researched her disease since she was DX

and I've learned more from this group in the two weeks I've been posting than I

did when I researched it for the past four years. Very informative while at the

same time supportive and NEVER judgemental (which with this disease is very

important-a lot of prejudice with slow and dangerous scooter drivers lol and

prednisone side effects and all {my 2 year old gained nearly 25 lbs in 2 months

on Pred).

By the way the docs put poor Emmie on 20 mg of prednisone a day for a week

then taper to 15 mg the next week. She's been in a lot of pain - been flaring

for about 2 weeks now. I hope she doesn't gain too much weight. Being in first

grade, kids can be mean. She's very skinny now so she's got a little leway. Last

time she was on steroids she was on them for a year and a half. She was on 40

and 67.5 mg of pred a day then. Has osteoporosis still and even grew blonde

" fuzzies " on her face from it while the hair on her head and arms fell out from

the Methotrexate (horribly ironic hugh?). It was awful, I'm so scared of what

will happen this time. She's been sitting at the table with a cookie in front of

her as a bribe waiting and stalling to take her Prednisone now. She can't

swallow pills, so she has to take the liquid. It truly is horrid smelling. If I

put it in anything when she's done with the meds she will never touch that food

product again. She won't eat applesauce now or drink

applejuice or chocolate milk either. Can just never win as a sneaky mommy.

Well, mail ya later

hugs Missy

N2kids@... wrote:

In a message dated 1/5/2006 12:18:40 PM Central Standard Time,

mtbargeman30@... writes:

Hi, guys. My name is . I was dx'ed with RA on Monday. I wonder if

anyone can give me suggestions about how to take care of myself and

fight fatigue. (I know that sounds whiny, but I really feel like

roadkill). Also, should I tell my kids now, or wait til I get my

regular meds for this? Does any one have any info or suggestions?

Any info at all is appreciated.

Hi and Welcome! I'm I'm fairly new here too and this group has

been so helpfull! Please dont hesitate to vent, whine whatever youneed to

do, we understand. here is a link to the main site that was given to me:

_http://arthritissupport.info/_ (http://arthritissupport.info/)

there is tons of info and links on this site. Have you seen a Rheumatologist

yet? Have they given you any meds? Tell your children if you feel they need

to know. Hugs take care talk soon