Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 , you're right about being short when the pain is bad. It's natural for all of us to be that way. None of us is a " Spock " and can control our manners at all times, though I try my best. She may have been having a big flare and it just hit her wrong. It happens to the best of us. Let's hope it doesn't happen again to someone who needs the support of this group. Dennis in Eastexas " It's not Rocket Surgery " Re: [ ] Re: pain or no pain > Sierra: > > Really, the only point I was trying to make is that I felt that the > person who decided to leave might have been a little less sensitive. She > said she was leaving the group because she thought Dennis was rude. His > remarks didn't seem rude to me and even if they were, my point was, under > the circumstances that most of us live with, perhaps she should have been > a little more understanding. The thing was, it just all seemed to get > blown out of proportion. > > I AM glad that you expressed that you are doing so well. Like I said > before, it gives me hope. I do have a question for you, though. What > does the dr. tell you about your future prognosis? If you are relatively > symptom free now, does your dr. think it might remain that way? > > I have only been dealing with all of this for about 18 mos. now and so my > knowledge of long term prognosis comes from the books I've read; hence, my > take on it from my earlier e-mail. The posts I've read from folks in this > group that have had RA for several years or more don't sound like they are > doing too good. But, some have pointed out that those who are doing well > don't usually join groups like this, so perhaps we are only hearing one > side of the story. > > in Texas > snowdrift52003 <snowdrift52003@...> wrote: > aThe point is, I kind of feel like some one has judged my take on > this > thing and said, excuse me, but that's not the way I >> live! Part of me says, well great for you, but what about the rest > of us???? >> >> in Texas > > Hi , > I just wanted to point out that your experience was not the same as my > experience. The words you chose in the earlier post indicated that we > are all living in torment because we have RA. That simply is not true > for me. No judgement; just an expression of diversity. > > Sierra > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2007 Report Share Posted January 15, 2007 , I am the other one who said I am doing well, and this is my seventh year with RA. It took a while to get relief, and I am just hoping that Enbrel will continue to work as well for me in the future as it does now. If it stops working, my rheumy and I will try something else. I hope that it does give you hope that you can also get relief. That's what we all should be striving for, in my opinion. But that's a good question for me to ask my rheumy, about my prognosis for the future. He keeps his thoughts entirely to himself. He's quite unlike my original one, who relocated to Atlanta. He doesn't say I'm doing well, or anything, but he does give me a very thorough examination. Last week he asked how many times I'd been sick since I saw him last, and asked if I had had the flu shot. So I do think that he is taking good care of me. I just wish he'd show a little more personality! Sue On Monday, January 15, 2007, at 09:50 PM, Pou wrote: > > I AM glad that you expressed that you are doing so well. Like I > said before, it gives me hope. I do have a question for you, though. > What does the dr. tell you about your future prognosis? If you are > relatively symptom free now, does your dr. think it might remain that > way? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Sue, Thanks for the info.! in Texas Sue <marysue@...> wrote: Actually, , I am not having any adverse side effects from Enbrel. MTX caused my white blood cell count to get too low, and Arava continued the decline, but with Enbrel the white blood cells have been recovering very, very slowly. Even with a low normal WBC count, I don't get infections often. Part of the reason for that may be that I am retired and not often around sick people too often. You don't know until you try a medication what benefits and adverse side effects you'll get, because we're all so different. And your rheumy will monitor you closely so that if you do get unacceptable side effects, he can switch you to something else. Sue On Tuesday, January 16, 2007, at 09:37 AM, Pou wrote: > Sue: > > I was concerned about side effects before I started MTX, and I DID > have bad side effects with the pills, but switching to injections made > all the difference for me. MTX seemed to help, along with Plaquenil, > but I am still a long way from being symptom free. I suspect that > when I tell my rheumy later this month what my symptoms have been > like, she'll want to start pulling out the " big guns " like Enbrel, > Remicade or Humira to try to slow down the progression of the joint > damage I already have. As concerned as I was about MTX, I am even > more concerned about the newer drugs, although I have read through > group members that many are having success. Everyone is different, so > I guess I'll have to keep trying to find the right combo for me. > After all, it's better than the alternative. I just pray that I don't > end up trying something that makes me very sick because I have a full > time job and 4 kids. I can't afford to get sick. (Who can!?!) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2007 Report Share Posted January 17, 2007 Wow! You are doing quite a bit. I wanted to start swimming because I love to swim and it's " no impact " aerobics, but can't afford a pool and the public ones in our area are outdoor pools just for the summer months. I was supposed to start walking on my lunch hour every day with a co-worker, but the arctic blast that has hit everyone has delayed that. in Texas snowdrift52003 <snowdrift52003@...> wrote: Hi , After reading the stories of people who have been helped by minocycline, I am very hopeful. Also, on the website " remedyfind " where consumers can rate the different meds they've tried for a particular condition, antibiotic therapy came out on top. I still have aches and pains, and had a flare at Christmas, but overall I am doing well--working 32 hours a week and enjoying life much more on this med than on the others I tried. I see my rheumy in March; I doubt she will give me any kind of prognosis. I got a second opinion from another rheumy in the fall and he expressed much optimism for me- - " I'm seeing very little inflammation--if I hadn't read your chart I wouldn't have thought there was anything wrong with you. " I'm working hard at recovery--swimming, diet, stress management, meditation, acupuncture, " news fasts " (avoiding news for a period of time because of its negativity, massage, etc. I'm aiming for the highest level of wellness I can achieve. Sierra > aThe point is, I kind of feel like some one has judged my take on this > thing and said, excuse me, but that's not the way I > > live! Part of me says, well great for you, but what about the rest > of us???? > > > > in Texas > > Hi , > I just wanted to point out that your experience was not the same as my > experience. The words you chose in the earlier post indicated that we > are all living in torment because we have RA. That simply is not true > for me. No judgement; just an expression of diversity. > > Sierra > > > > > > > Quote Link to comment Share on other sites More sharing options...
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