Re: Need some advice about going to Disney

[Guest guest]

I love Disney. May I suggest a mobility cart. It is approximately 40 dollars a

day. If you go to more than 1 park the receipt entitles you to a cart at any

park. You will see the park much more efficiently since your family and you

will have much shorter lines. When I try to walk the entire park my hips and

legs ache. When I use a cart, I have a wonderful time.

Enjoy.

<cook.nicole@...> wrote:

My DH and I are taking our kiddos (ages 7, 3, and 18 months) to Disney

in 3 weeks. I have an appointment with my Rheumy on the Monday before

we leave. I am currently not taking anything for my RA, but am having

a lot of pain. I have been newly diagnosed as Sero-Negative RA by a

new rheumatologist and we are still working on my treatment plan of

action. I was on a trial run of prednisone, and I HATED

it...lots of water retention, felt irritable all the time, couldn't

sleep, etc...Also it only worked for the first week or so and then my

pain came back.

I am thinking of asking my doc to give me a prescription for vicodin or

similar to help while on the trip. It's not like I'll be able to take

it easy while at Disney and I have pain really badly in my feet, knees

an hips.

WWYD? What do you think? Any advice on doing a successful week in

Disney and NOT having too much pain in the process?

Thanks!

Raniolo

[Guest guest]

The first thing I would do is get at wheelchair at Disney! There's a lot of

walking, and there's no reason to try and make it. Be comfortable. You can

put the baby, or the other kids, on your lap if need be. And take advantage

of the handicapped access to the rides, that's what it's there for - people

who can't stand in line. Disney is very accommodating, at least Disneyland

is. (I've never been to Disney World) Also, when our kids were little, we

always tried to go back to the motel for a mid-day nap. Don't know where

you're staying, but for us it was worth it to stay close enough to do that,

even if it cost a little more. Disney can be overwhelming for kids!

I find that taking time to use the pool at the hotel, or even better, the

jacuzzi, really helps keep the muscles relaxed and the pain down. Sitting in

the jacuzzi before bedtime is a surefire way to help me sleep better. Some

pain relief is a good idea, my doc has me taking extra when I travel, and

has upped my prednisone, too. I hate it, but I hate it more without it.

He's also given me some Lidoderm patches, which give really good localized

pain relief.

Also, I'm a total wreck for several days after I get home from any trip,

because I take the pain meds and then overdo it. For me it's worth it, but

I don't have any kids at home and can just collapse if I need to. I sure

wouldn't plan anything stressful for a while after I got home.

I know you're going to have a wonderful time, just take it easy and never be

too embarrassed or stubborn to take whatever help you can get. Whatever

makes it easier for you will make the time more fun for your hubby and kids,

too. And don't forget to post a report when you back!

On 12/22/06, <cook.nicole@...> wrote:

>

> My DH and I are taking our kiddos (ages 7, 3, and 18 months) to Disney

> in 3 weeks. I have an appointment with my Rheumy on the Monday before

> we leave. I am currently not taking anything for my RA, but am having

> a lot of pain. I have been newly diagnosed as Sero-Negative RA by a

> new rheumatologist and we are still working on my treatment plan of

> action. I was on a trial run of prednisone, and I HATED

> it...lots of water retention, felt irritable all the time, couldn't

> sleep, etc...Also it only worked for the first week or so and then my

> pain came back.

>

> I am thinking of asking my doc to give me a prescription for vicodin or

> similar to help while on the trip. It's not like I'll be able to take

> it easy while at Disney and I have pain really badly in my feet, knees

> an hips.

>

> WWYD? What do you think? Any advice on doing a successful week in

> Disney and NOT having too much pain in the process?

>

> Thanks!

>

>

>

>

>

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