Re: Paisley's test results finally

[Guest guest]

, that's pretty normal finding. That said, however, please know

that there are TONS of metabolic/genetic tests that can be run that

probably weren't. It's my understanding most test for the most common

types, like fragile X, Rett, a few big metabolic like PKU (even though

done at birth) and maybe some fatty chain disorders. I'm only saying

this to say if any problems persist, like seizure activity or big time

sicknesses, then you may want to ask why a muscle biopsy isn't

indicated. However, typically labs will be abnormal to warrant such a

test, so if organic acids tests, amino acids tests, lactate,

carnitine, etc, are all normal/fairly normal, there's really no need,

at least from my understanding.

HTH,

Debi

[Guest guest]

, that's pretty normal finding. That said, however, please know

that there are TONS of metabolic/genetic tests that can be run that

probably weren't. It's my understanding most test for the most common

types, like fragile X, Rett, a few big metabolic like PKU (even though

done at birth) and maybe some fatty chain disorders. I'm only saying

this to say if any problems persist, like seizure activity or big time

sicknesses, then you may want to ask why a muscle biopsy isn't

indicated. However, typically labs will be abnormal to warrant such a

test, so if organic acids tests, amino acids tests, lactate,

carnitine, etc, are all normal/fairly normal, there's really no need,

at least from my understanding.

HTH,

Debi

[Guest guest]

Debi,

I just accept it. And it's okay, because if she had any of the stuff they

were testing her for he said it was all stuff just to know she had it, not stuff

we could do anything about, or prevent..so

Debi wrote:

, that's pretty normal finding. That said, however, please know

that there are TONS of metabolic/genetic tests that can be run that

probably weren't. It's my understanding most test for the most common

types, like fragile X, Rett, a few big metabolic like PKU (even though

done at birth) and maybe some fatty chain disorders. I'm only saying

this to say if any problems persist, like seizure activity or big time

sicknesses, then you may want to ask why a muscle biopsy isn't

indicated. However, typically labs will be abnormal to warrant such a

test, so if organic acids tests, amino acids tests, lactate,

carnitine, etc, are all normal/fairly normal, there's really no need,

at least from my understanding.

HTH,

Debi

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Debi,

I just accept it. And it's okay, because if she had any of the stuff they

were testing her for he said it was all stuff just to know she had it, not stuff

we could do anything about, or prevent..so

Debi wrote:

, that's pretty normal finding. That said, however, please know

that there are TONS of metabolic/genetic tests that can be run that

probably weren't. It's my understanding most test for the most common

types, like fragile X, Rett, a few big metabolic like PKU (even though

done at birth) and maybe some fatty chain disorders. I'm only saying

this to say if any problems persist, like seizure activity or big time

sicknesses, then you may want to ask why a muscle biopsy isn't

indicated. However, typically labs will be abnormal to warrant such a

test, so if organic acids tests, amino acids tests, lactate,

carnitine, etc, are all normal/fairly normal, there's really no need,

at least from my understanding.

HTH,

Debi

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Sometimes they miss things on EEG (even extended EEG),

so if that's a concern-I admit to not being able to

remember who's kids might be having seizures, I need a

spreadsheet, but I admit it. Temporal and frontal lobe

seizures are the hardest to catch, except for one

extra deep kind that has really bizzare features that

I KNOW Id remember reading about. Some absence

seizures (I think your daughter might be having

absences? Is that right?) live in the frontal lobe,

which is of course huge.

I hope that everything *IS* ok of course, but if she

IS having seizures then there are at least definitive

treatments for that. And oh those days long EEGs are

horrendously boring. Bleeeech.

I'm really glad her amino acids and MRI are normal.

Kassiane

--- kelly dawson wrote:

> Okay, so the MRI, EEG and multiple blood tests,

> chromosome, amino acid, blahblahblah whatever else

> all came back normal..the nurse said if she has any

> more seizure like episodes to video tape them. If

> they can't be video taped she will have to be put in

> the hospital for a 24 hr eeg, and if they catch

> nothing for a 72 hr...so we will see. The other

> tests were to see if her Autism was related to

> something genetic or something, and I guess I don't

> know...the nurse relayed the stuff...not the

> doctor..I really just know they didn't pick up any

> abnormal brain activity and her brain is formed

> normally..and she has no genetic abnormality...but

> she still has autism...so..just letting everyone

> know

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

Sometimes they miss things on EEG (even extended EEG),

so if that's a concern-I admit to not being able to

remember who's kids might be having seizures, I need a

spreadsheet, but I admit it. Temporal and frontal lobe

seizures are the hardest to catch, except for one

extra deep kind that has really bizzare features that

I KNOW Id remember reading about. Some absence

seizures (I think your daughter might be having

absences? Is that right?) live in the frontal lobe,

which is of course huge.

I hope that everything *IS* ok of course, but if she

IS having seizures then there are at least definitive

treatments for that. And oh those days long EEGs are

horrendously boring. Bleeeech.

I'm really glad her amino acids and MRI are normal.

Kassiane

--- kelly dawson wrote:

> Okay, so the MRI, EEG and multiple blood tests,

> chromosome, amino acid, blahblahblah whatever else

> all came back normal..the nurse said if she has any

> more seizure like episodes to video tape them. If

> they can't be video taped she will have to be put in

> the hospital for a 24 hr eeg, and if they catch

> nothing for a 72 hr...so we will see. The other

> tests were to see if her Autism was related to

> something genetic or something, and I guess I don't

> know...the nurse relayed the stuff...not the

> doctor..I really just know they didn't pick up any

> abnormal brain activity and her brain is formed

> normally..and she has no genetic abnormality...but

> she still has autism...so..just letting everyone

> know

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

[Guest guest]

THanks..yes she was having suspected absence at home but at her preschool they

thought she was having i guess some sort of seizure, they said she was jerking

and twitching and it looked like the seizures that the kids at the school who

have a seizure disorder have..so that is what freaked me out..but I will tell

the school just to keep and eye on it..

Meanwhile, I hate that I can never sleep...

Kassi wrote:

Sometimes they miss things on EEG (even extended EEG),

so if that's a concern-I admit to not being able to

remember who's kids might be having seizures, I need a

spreadsheet, but I admit it. Temporal and frontal lobe

seizures are the hardest to catch, except for one

extra deep kind that has really bizzare features that

I KNOW Id remember reading about. Some absence

seizures (I think your daughter might be having

absences? Is that right?) live in the frontal lobe,

which is of course huge.

I hope that everything *IS* ok of course, but if she

IS having seizures then there are at least definitive

treatments for that. And oh those days long EEGs are

horrendously boring. Bleeeech.

I'm really glad her amino acids and MRI are normal.

Kassiane

--- kelly dawson wrote:

> Okay, so the MRI, EEG and multiple blood tests,

> chromosome, amino acid, blahblahblah whatever else

> all came back normal..the nurse said if she has any

> more seizure like episodes to video tape them. If

> they can't be video taped she will have to be put in

> the hospital for a 24 hr eeg, and if they catch

> nothing for a 72 hr...so we will see. The other

> tests were to see if her Autism was related to

> something genetic or something, and I guess I don't

> know...the nurse relayed the stuff...not the

> doctor..I really just know they didn't pick up any

> abnormal brain activity and her brain is formed

> normally..and she has no genetic abnormality...but

> she still has autism...so..just letting everyone

> know

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

THanks..yes she was having suspected absence at home but at her preschool they

thought she was having i guess some sort of seizure, they said she was jerking

and twitching and it looked like the seizures that the kids at the school who

have a seizure disorder have..so that is what freaked me out..but I will tell

the school just to keep and eye on it..

Meanwhile, I hate that I can never sleep...

Kassi wrote:

Sometimes they miss things on EEG (even extended EEG),

so if that's a concern-I admit to not being able to

remember who's kids might be having seizures, I need a

spreadsheet, but I admit it. Temporal and frontal lobe

seizures are the hardest to catch, except for one

extra deep kind that has really bizzare features that

I KNOW Id remember reading about. Some absence

seizures (I think your daughter might be having

absences? Is that right?) live in the frontal lobe,

which is of course huge.

I hope that everything *IS* ok of course, but if she

IS having seizures then there are at least definitive

treatments for that. And oh those days long EEGs are

horrendously boring. Bleeeech.

I'm really glad her amino acids and MRI are normal.

Kassiane

--- kelly dawson wrote:

> Okay, so the MRI, EEG and multiple blood tests,

> chromosome, amino acid, blahblahblah whatever else

> all came back normal..the nurse said if she has any

> more seizure like episodes to video tape them. If

> they can't be video taped she will have to be put in

> the hospital for a 24 hr eeg, and if they catch

> nothing for a 72 hr...so we will see. The other

> tests were to see if her Autism was related to

> something genetic or something, and I guess I don't

> know...the nurse relayed the stuff...not the

> doctor..I really just know they didn't pick up any

> abnormal brain activity and her brain is formed

> normally..and she has no genetic abnormality...but

> she still has autism...so..just letting everyone

> know

>

>

>

> ---------------------------------

> Be a better friend, newshound, and know-it-all with

> Yahoo! Mobile. Try it now.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Never miss a thing. Make Yahoo your home page.

http://www.yahoo.com/r/hs

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

You can sleep. If you're worried about seizure

activity in her sleep, you can sleep in her bed for a

bit. It'll wake you up if she is having

something...though twitching while she falls asleep

would be totally normal, EVERYONE does it.

Of course, the scariest possibility is the one the

can't give a 100% answer on. Stay rested. Your little

one will be ok.

Kassiane

--- kelly dawson wrote:

> THanks..yes she was having suspected absence at home

> but at her preschool they thought she was having i

> guess some sort of seizure, they said she was

> jerking and twitching and it looked like the

> seizures that the kids at the school who have a

> seizure disorder have..so that is what freaked me

> out..but I will tell the school just to keep and eye

> on it..

> Meanwhile, I hate that I can never sleep...

>

> Kassi wrote:

> Sometimes they miss things on EEG (even

> extended EEG),

> so if that's a concern-I admit to not being able to

> remember who's kids might be having seizures, I need

> a

> spreadsheet, but I admit it. Temporal and frontal

> lobe

> seizures are the hardest to catch, except for one

> extra deep kind that has really bizzare features

> that

> I KNOW Id remember reading about. Some absence

> seizures (I think your daughter might be having

> absences? Is that right?) live in the frontal lobe,

> which is of course huge.

>

> I hope that everything *IS* ok of course, but if she

> IS having seizures then there are at least

> definitive

> treatments for that. And oh those days long EEGs are

> horrendously boring. Bleeeech.

>

> I'm really glad her amino acids and MRI are normal.

>

> Kassiane

>

> --- kelly dawson wrote:

>

> > Okay, so the MRI, EEG and multiple blood tests,

> > chromosome, amino acid, blahblahblah whatever else

> > all came back normal..the nurse said if she has

> any

> > more seizure like episodes to video tape them. If

> > they can't be video taped she will have to be put

> in

> > the hospital for a 24 hr eeg, and if they catch

> > nothing for a 72 hr...so we will see. The other

> > tests were to see if her Autism was related to

> > something genetic or something, and I guess I

> don't

> > know...the nurse relayed the stuff...not the

> > doctor..I really just know they didn't pick up any

> > abnormal brain activity and her brain is formed

> > normally..and she has no genetic abnormality...but

> > she still has autism...so..just letting everyone

> > know

> >

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all

> with

> > Yahoo! Mobile. Try it now.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Yahoo! Search.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

[Guest guest]

You can sleep. If you're worried about seizure

activity in her sleep, you can sleep in her bed for a

bit. It'll wake you up if she is having

something...though twitching while she falls asleep

would be totally normal, EVERYONE does it.

Of course, the scariest possibility is the one the

can't give a 100% answer on. Stay rested. Your little

one will be ok.

Kassiane

--- kelly dawson wrote:

> THanks..yes she was having suspected absence at home

> but at her preschool they thought she was having i

> guess some sort of seizure, they said she was

> jerking and twitching and it looked like the

> seizures that the kids at the school who have a

> seizure disorder have..so that is what freaked me

> out..but I will tell the school just to keep and eye

> on it..

> Meanwhile, I hate that I can never sleep...

>

> Kassi wrote:

> Sometimes they miss things on EEG (even

> extended EEG),

> so if that's a concern-I admit to not being able to

> remember who's kids might be having seizures, I need

> a

> spreadsheet, but I admit it. Temporal and frontal

> lobe

> seizures are the hardest to catch, except for one

> extra deep kind that has really bizzare features

> that

> I KNOW Id remember reading about. Some absence

> seizures (I think your daughter might be having

> absences? Is that right?) live in the frontal lobe,

> which is of course huge.

>

> I hope that everything *IS* ok of course, but if she

> IS having seizures then there are at least

> definitive

> treatments for that. And oh those days long EEGs are

> horrendously boring. Bleeeech.

>

> I'm really glad her amino acids and MRI are normal.

>

> Kassiane

>

> --- kelly dawson wrote:

>

> > Okay, so the MRI, EEG and multiple blood tests,

> > chromosome, amino acid, blahblahblah whatever else

> > all came back normal..the nurse said if she has

> any

> > more seizure like episodes to video tape them. If

> > they can't be video taped she will have to be put

> in

> > the hospital for a 24 hr eeg, and if they catch

> > nothing for a 72 hr...so we will see. The other

> > tests were to see if her Autism was related to

> > something genetic or something, and I guess I

> don't

> > know...the nurse relayed the stuff...not the

> > doctor..I really just know they didn't pick up any

> > abnormal brain activity and her brain is formed

> > normally..and she has no genetic abnormality...but

> > she still has autism...so..just letting everyone

> > know

> >

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all

> with

> > Yahoo! Mobile. Try it now.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Yahoo! Search.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

[Guest guest]

This is not why I cannot sleep. I am thinking something bad is happening to

her..she is with her father for visitation till Sunday..and I just worry

Kassi wrote: You can sleep. If you're

worried about seizure

activity in her sleep, you can sleep in her bed for a

bit. It'll wake you up if she is having

something...though twitching while she falls asleep

would be totally normal, EVERYONE does it.

Of course, the scariest possibility is the one the

can't give a 100% answer on. Stay rested. Your little

one will be ok.

Kassiane

--- kelly dawson wrote:

> THanks..yes she was having suspected absence at home

> but at her preschool they thought she was having i

> guess some sort of seizure, they said she was

> jerking and twitching and it looked like the

> seizures that the kids at the school who have a

> seizure disorder have..so that is what freaked me

> out..but I will tell the school just to keep and eye

> on it..

> Meanwhile, I hate that I can never sleep...

>

> Kassi wrote:

> Sometimes they miss things on EEG (even

> extended EEG),

> so if that's a concern-I admit to not being able to

> remember who's kids might be having seizures, I need

> a

> spreadsheet, but I admit it. Temporal and frontal

> lobe

> seizures are the hardest to catch, except for one

> extra deep kind that has really bizzare features

> that

> I KNOW Id remember reading about. Some absence

> seizures (I think your daughter might be having

> absences? Is that right?) live in the frontal lobe,

> which is of course huge.

>

> I hope that everything *IS* ok of course, but if she

> IS having seizures then there are at least

> definitive

> treatments for that. And oh those days long EEGs are

> horrendously boring. Bleeeech.

>

> I'm really glad her amino acids and MRI are normal.

>

> Kassiane

>

> --- kelly dawson wrote:

>

> > Okay, so the MRI, EEG and multiple blood tests,

> > chromosome, amino acid, blahblahblah whatever else

> > all came back normal..the nurse said if she has

> any

> > more seizure like episodes to video tape them. If

> > they can't be video taped she will have to be put

> in

> > the hospital for a 24 hr eeg, and if they catch

> > nothing for a 72 hr...so we will see. The other

> > tests were to see if her Autism was related to

> > something genetic or something, and I guess I

> don't

> > know...the nurse relayed the stuff...not the

> > doctor..I really just know they didn't pick up any

> > abnormal brain activity and her brain is formed

> > normally..and she has no genetic abnormality...but

> > she still has autism...so..just letting everyone

> > know

> >

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all

> with

> > Yahoo! Mobile. Try it now.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Yahoo! Search.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

This is not why I cannot sleep. I am thinking something bad is happening to

her..she is with her father for visitation till Sunday..and I just worry

Kassi wrote: You can sleep. If you're

worried about seizure

activity in her sleep, you can sleep in her bed for a

bit. It'll wake you up if she is having

something...though twitching while she falls asleep

would be totally normal, EVERYONE does it.

Of course, the scariest possibility is the one the

can't give a 100% answer on. Stay rested. Your little

one will be ok.

Kassiane

--- kelly dawson wrote:

> THanks..yes she was having suspected absence at home

> but at her preschool they thought she was having i

> guess some sort of seizure, they said she was

> jerking and twitching and it looked like the

> seizures that the kids at the school who have a

> seizure disorder have..so that is what freaked me

> out..but I will tell the school just to keep and eye

> on it..

> Meanwhile, I hate that I can never sleep...

>

> Kassi wrote:

> Sometimes they miss things on EEG (even

> extended EEG),

> so if that's a concern-I admit to not being able to

> remember who's kids might be having seizures, I need

> a

> spreadsheet, but I admit it. Temporal and frontal

> lobe

> seizures are the hardest to catch, except for one

> extra deep kind that has really bizzare features

> that

> I KNOW Id remember reading about. Some absence

> seizures (I think your daughter might be having

> absences? Is that right?) live in the frontal lobe,

> which is of course huge.

>

> I hope that everything *IS* ok of course, but if she

> IS having seizures then there are at least

> definitive

> treatments for that. And oh those days long EEGs are

> horrendously boring. Bleeeech.

>

> I'm really glad her amino acids and MRI are normal.

>

> Kassiane

>

> --- kelly dawson wrote:

>

> > Okay, so the MRI, EEG and multiple blood tests,

> > chromosome, amino acid, blahblahblah whatever else

> > all came back normal..the nurse said if she has

> any

> > more seizure like episodes to video tape them. If

> > they can't be video taped she will have to be put

> in

> > the hospital for a 24 hr eeg, and if they catch

> > nothing for a 72 hr...so we will see. The other

> > tests were to see if her Autism was related to

> > something genetic or something, and I guess I

> don't

> > know...the nurse relayed the stuff...not the

> > doctor..I really just know they didn't pick up any

> > abnormal brain activity and her brain is formed

> > normally..and she has no genetic abnormality...but

> > she still has autism...so..just letting everyone

> > know

> >

> >

> >

> > ---------------------------------

> > Be a better friend, newshound, and know-it-all

> with

> > Yahoo! Mobile. Try it now.

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

__________________________________________________________

> Never miss a thing. Make Yahoo your home page.

> http://www.yahoo.com/r/hs

>

>

>

>

>

> ---------------------------------

> Looking for last minute shopping deals? Find them

> fast with Yahoo! Search.

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________________

Looking for last minute shopping deals?

Find them fast with Yahoo! Search.

http://tools.search.yahoo.com/newsearch/category.php?category=shopping

---------------------------------

Looking for last minute shopping deals? Find them fast with Yahoo! Search.

[Guest guest]

My missy used to have of much abnormal spiking of the temporal lobes

and she has been since to out grow of them or at least no EEG shows of

the abnormal spikings anymore and we no longer see or catch her having

of them so we now place of past history of absent seizures on her

documentations for scool and places of that.

Sondra

[Guest guest]

My missy used to have of much abnormal spiking of the temporal lobes

and she has been since to out grow of them or at least no EEG shows of

the abnormal spikings anymore and we no longer see or catch her having

of them so we now place of past history of absent seizures on her

documentations for scool and places of that.

Sondra