Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 my dd didn't get her Asperger diagnosis until late in elementary school. but she knew what was going on in the process and I've always been very open about it and very careful that she knew that it created challenges for her not that she was a broken person that needed to be fixed. we have always focused on the positive. She almost 15 now and last week she did a search on the internet about Asperger's. I knew she did because of the browser history but I waited until she was ready to talk about it and a few days later she told me she had searched and decided it was her. Again I pointed out the things in her Asperger's that I saw as assests like her ability to totally focus on things that interest her, like math, she is very gifted there and her intense interest in animals especially horses, has already created a career path for her. She was even able to hold down a summer job at a farm helping out with summer camp. Her intense feelings about rules has helped her navigate life in school and at the farm because she understands the structure. Girl Scouts has also been a great help through out the years, she is currently in her tenth year. she started as a Daisy in Kindergarten and continued all through Brownies and Juniors and is in her last year in Cadettes, next year she'll be a Senior Scout. I have been either the Leader or Co-leader through out which I believe helped in the earlier ages. As the kids get older in Scouting it is a different kind of kid that remains. Usually those who are prone to teasing others drop out for other activities. In fact we have a very unique troop now. Half our girls are on the spectrum and the other have are NT, and all are equal in the troop. It is really wonderful because my co-leader and I are really only there for facilitating and advice and the girls really run the troop. I do know that one of our girls, who is on the spectrum, did have a horrible experience in Brownies, in another troop, because the leader didn't have a good understanding of her. The organization does it's best to provide diversity training but the long and the short of it is that leaders are volunteers who come with their own expectations of how they think their troop should be and it may or may not be a happy place for our kids. Don't be afraid to search for good match. you are not locked in to one troop just because it is located at your local school. Our troop has 8 girls but they come from five different schools. Cassie Zupke wrote: Hi -- There are some good books written for children that talk about autism. I'm drawing a blank right now as to their names -- I think some are " When my autism gets too big " and " Asperger's, Huh? " . I'm sure other folks have ideas. That would be a good thing to show the leaders and ask them to share with the other girls. I find kids are far more understanding when they know a kid is having a hard time for medical reasons. The books would also be good to talk to your daughter about autism. I'm sure she notices that she's having a harder time with some things than other kids are. I told my son that he has autism and that means he has a harder time in some areas than other kids do -- then he didn't think he was just stupid. I told him the autism wasn't an excuse -- it meant he had to work harder in somethings than other kids. For instance, writing is harder for him but I still expect him to do his best every single time whether he wants to or not. I don't expect him to be as proficient as the other kids and there are some things we just opt out of (like music and assemblies) but for the things he's capable of, he's got to work hard. I also told him that autism has benefits too -- his single-mindedness means he studies very hard on things he enjoys and he has a great memory -- better than all the other kids in his class. Sometimes he gets mad because he has autism because it makes his life hard but I tell him that everyone has stuff in their lives that make them hard. -- Cassie sajustmyself wrote: > I could try. But when you get a chance to read my last reply, I > really don't feel that her leaders believe she's autistic. They seem > like the type that think of autism as Rainman only. When I did talk > to them it just like, " oh really?, I wouldn't have ever thought that > it was that " in that kind of condescending voice; again, I am > sensitive so maybe I read it wrong but... > > > > > > > > > > > > Hi everyone, > > > > > > > > > > Hannah (8) is currently enrolled in Brownies. 2 girls that > are > > > > there > > > > > are very mean to her and bully her frequently (as they do at > > > > school). > > > > > The leaders keep assuring me that they don't " pull that " > while at > > > > > Brownies, but Hannah says they do. It's hard to say if she > can > > > > > separate school time from Brownies but... > > > > > > > > > > Do y'all think that a structured group like Brownies (with > about > > > 13 > > > > > other shrieking little girls) is a good setting? She has > very > > > poor > > > > > social skills and before knowing her dx, I thought it might > be a > > > > good > > > > > thing to get her involved in something. > > > > > > > > > > Thanks. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2008 Report Share Posted January 4, 2008 my dd didn't get her Asperger diagnosis until late in elementary school. but she knew what was going on in the process and I've always been very open about it and very careful that she knew that it created challenges for her not that she was a broken person that needed to be fixed. we have always focused on the positive. She almost 15 now and last week she did a search on the internet about Asperger's. I knew she did because of the browser history but I waited until she was ready to talk about it and a few days later she told me she had searched and decided it was her. Again I pointed out the things in her Asperger's that I saw as assests like her ability to totally focus on things that interest her, like math, she is very gifted there and her intense interest in animals especially horses, has already created a career path for her. She was even able to hold down a summer job at a farm helping out with summer camp. Her intense feelings about rules has helped her navigate life in school and at the farm because she understands the structure. Girl Scouts has also been a great help through out the years, she is currently in her tenth year. she started as a Daisy in Kindergarten and continued all through Brownies and Juniors and is in her last year in Cadettes, next year she'll be a Senior Scout. I have been either the Leader or Co-leader through out which I believe helped in the earlier ages. As the kids get older in Scouting it is a different kind of kid that remains. Usually those who are prone to teasing others drop out for other activities. In fact we have a very unique troop now. Half our girls are on the spectrum and the other have are NT, and all are equal in the troop. It is really wonderful because my co-leader and I are really only there for facilitating and advice and the girls really run the troop. I do know that one of our girls, who is on the spectrum, did have a horrible experience in Brownies, in another troop, because the leader didn't have a good understanding of her. The organization does it's best to provide diversity training but the long and the short of it is that leaders are volunteers who come with their own expectations of how they think their troop should be and it may or may not be a happy place for our kids. Don't be afraid to search for good match. you are not locked in to one troop just because it is located at your local school. Our troop has 8 girls but they come from five different schools. Cassie Zupke wrote: Hi -- There are some good books written for children that talk about autism. I'm drawing a blank right now as to their names -- I think some are " When my autism gets too big " and " Asperger's, Huh? " . I'm sure other folks have ideas. That would be a good thing to show the leaders and ask them to share with the other girls. I find kids are far more understanding when they know a kid is having a hard time for medical reasons. The books would also be good to talk to your daughter about autism. I'm sure she notices that she's having a harder time with some things than other kids are. I told my son that he has autism and that means he has a harder time in some areas than other kids do -- then he didn't think he was just stupid. I told him the autism wasn't an excuse -- it meant he had to work harder in somethings than other kids. For instance, writing is harder for him but I still expect him to do his best every single time whether he wants to or not. I don't expect him to be as proficient as the other kids and there are some things we just opt out of (like music and assemblies) but for the things he's capable of, he's got to work hard. I also told him that autism has benefits too -- his single-mindedness means he studies very hard on things he enjoys and he has a great memory -- better than all the other kids in his class. Sometimes he gets mad because he has autism because it makes his life hard but I tell him that everyone has stuff in their lives that make them hard. -- Cassie sajustmyself wrote: > I could try. But when you get a chance to read my last reply, I > really don't feel that her leaders believe she's autistic. They seem > like the type that think of autism as Rainman only. When I did talk > to them it just like, " oh really?, I wouldn't have ever thought that > it was that " in that kind of condescending voice; again, I am > sensitive so maybe I read it wrong but... > > > > > > > > > > > > Hi everyone, > > > > > > > > > > Hannah (8) is currently enrolled in Brownies. 2 girls that > are > > > > there > > > > > are very mean to her and bully her frequently (as they do at > > > > school). > > > > > The leaders keep assuring me that they don't " pull that " > while at > > > > > Brownies, but Hannah says they do. It's hard to say if she > can > > > > > separate school time from Brownies but... > > > > > > > > > > Do y'all think that a structured group like Brownies (with > about > > > 13 > > > > > other shrieking little girls) is a good setting? She has > very > > > poor > > > > > social skills and before knowing her dx, I thought it might > be a > > > > good > > > > > thing to get her involved in something. > > > > > > > > > > Thanks. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 I have to agree, don't give up on Brownie cause of this troop. Beth is in her third year of girl scouts, in fact we are up early on a Saturday getting ready so she can go on a field trip. TShe has done two years of Daisy's and this is her first year of Brownies. There are 22 girls in the troop, I have to say that the leaders are what makes the troop so great, especially at this stage. As Carol said, as the girls grow older they run more of the troop, and the older the get the mean ones are usually the ones who drop out (I was a GS till 14 when our troop disovled cause the leaders both moved). I would contact the counsil and find other troops and talk to those leaders and get a feel for what might be a good fit. Beth's troop had at LEAST 5 special needs kids, and you can't tell at any meetings which ones they are. (I only know a few of them from when Beth was in a PPD class) Also Her troop is from MANY different schools in the area (some even from different cities) cause they are the only troop to meet in the evening. Hang in there! Carol Latimer wrote: my dd didn't get her Asperger diagnosis until late in elementary school. but she knew what was going on in the process and I've always been very open about it and very careful that she knew that it created challenges for her not that she was a broken person that needed to be fixed. we have always focused on the positive. She almost 15 now and last week she did a search on the internet about Asperger's. I knew she did because of the browser history but I waited until she was ready to talk about it and a few days later she told me she had searched and decided it was her. Again I pointed out the things in her Asperger's that I saw as assests like her ability to totally focus on things that interest her, like math, she is very gifted there and her intense interest in animals especially horses, has already created a career path for her. She was even able to hold down a summer job at a farm helping out with summer camp. Her intense feelings about rules has helped her navigate life in school and at the farm because she understands the structure. Girl Scouts has also been a great help through out the years, she is currently in her tenth year. she started as a Daisy in Kindergarten and continued all through Brownies and Juniors and is in her last year in Cadettes, next year she'll be a Senior Scout. I have been either the Leader or Co-leader through out which I believe helped in the earlier ages. As the kids get older in Scouting it is a different kind of kid that remains. Usually those who are prone to teasing others drop out for other activities. In fact we have a very unique troop now. Half our girls are on the spectrum and the other have are NT, and all are equal in the troop. It is really wonderful because my co-leader and I are really only there for facilitating and advice and the girls really run the troop. I do know that one of our girls, who is on the spectrum, did have a horrible experience in Brownies, in another troop, because the leader didn't have a good understanding of her. The organization does it's best to provide diversity training but the long and the short of it is that leaders are volunteers who come with their own expectations of how they think their troop should be and it may or may not be a happy place for our kids. Don't be afraid to search for good match. you are not locked in to one troop just because it is located at your local school. Our troop has 8 girls but they come from five different schools. Cassie Zupke wrote: Hi -- There are some good books written for children that talk about autism. I'm drawing a blank right now as to their names -- I think some are " When my autism gets too big " and " Asperger's, Huh? " . I'm sure other folks have ideas. That would be a good thing to show the leaders and ask them to share with the other girls. I find kids are far more understanding when they know a kid is having a hard time for medical reasons. The books would also be good to talk to your daughter about autism. I'm sure she notices that she's having a harder time with some things than other kids are. I told my son that he has autism and that means he has a harder time in some areas than other kids do -- then he didn't think he was just stupid. I told him the autism wasn't an excuse -- it meant he had to work harder in somethings than other kids. For instance, writing is harder for him but I still expect him to do his best every single time whether he wants to or not. I don't expect him to be as proficient as the other kids and there are some things we just opt out of (like music and assemblies) but for the things he's capable of, he's got to work hard. I also told him that autism has benefits too -- his single-mindedness means he studies very hard on things he enjoys and he has a great memory -- better than all the other kids in his class. Sometimes he gets mad because he has autism because it makes his life hard but I tell him that everyone has stuff in their lives that make them hard. -- Cassie sajustmyself wrote: > I could try. But when you get a chance to read my last reply, I > really don't feel that her leaders believe she's autistic. They seem > like the type that think of autism as Rainman only. When I did talk > to them it just like, " oh really?, I wouldn't have ever thought that > it was that " in that kind of condescending voice; again, I am > sensitive so maybe I read it wrong but... > > > > > > > > > > > > Hi everyone, > > > > > > > > > > Hannah (8) is currently enrolled in Brownies. 2 girls that > are > > > > there > > > > > are very mean to her and bully her frequently (as they do at > > > > school). > > > > > The leaders keep assuring me that they don't " pull that " > while at > > > > > Brownies, but Hannah says they do. It's hard to say if she > can > > > > > separate school time from Brownies but... > > > > > > > > > > Do y'all think that a structured group like Brownies (with > about > > > 13 > > > > > other shrieking little girls) is a good setting? She has > very > > > poor > > > > > social skills and before knowing her dx, I thought it might > be a > > > > good > > > > > thing to get her involved in something. > > > > > > > > > > Thanks. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2008 Report Share Posted January 5, 2008 I have to agree, don't give up on Brownie cause of this troop. Beth is in her third year of girl scouts, in fact we are up early on a Saturday getting ready so she can go on a field trip. TShe has done two years of Daisy's and this is her first year of Brownies. There are 22 girls in the troop, I have to say that the leaders are what makes the troop so great, especially at this stage. As Carol said, as the girls grow older they run more of the troop, and the older the get the mean ones are usually the ones who drop out (I was a GS till 14 when our troop disovled cause the leaders both moved). I would contact the counsil and find other troops and talk to those leaders and get a feel for what might be a good fit. Beth's troop had at LEAST 5 special needs kids, and you can't tell at any meetings which ones they are. (I only know a few of them from when Beth was in a PPD class) Also Her troop is from MANY different schools in the area (some even from different cities) cause they are the only troop to meet in the evening. Hang in there! Carol Latimer wrote: my dd didn't get her Asperger diagnosis until late in elementary school. but she knew what was going on in the process and I've always been very open about it and very careful that she knew that it created challenges for her not that she was a broken person that needed to be fixed. we have always focused on the positive. She almost 15 now and last week she did a search on the internet about Asperger's. I knew she did because of the browser history but I waited until she was ready to talk about it and a few days later she told me she had searched and decided it was her. Again I pointed out the things in her Asperger's that I saw as assests like her ability to totally focus on things that interest her, like math, she is very gifted there and her intense interest in animals especially horses, has already created a career path for her. She was even able to hold down a summer job at a farm helping out with summer camp. Her intense feelings about rules has helped her navigate life in school and at the farm because she understands the structure. Girl Scouts has also been a great help through out the years, she is currently in her tenth year. she started as a Daisy in Kindergarten and continued all through Brownies and Juniors and is in her last year in Cadettes, next year she'll be a Senior Scout. I have been either the Leader or Co-leader through out which I believe helped in the earlier ages. As the kids get older in Scouting it is a different kind of kid that remains. Usually those who are prone to teasing others drop out for other activities. In fact we have a very unique troop now. Half our girls are on the spectrum and the other have are NT, and all are equal in the troop. It is really wonderful because my co-leader and I are really only there for facilitating and advice and the girls really run the troop. I do know that one of our girls, who is on the spectrum, did have a horrible experience in Brownies, in another troop, because the leader didn't have a good understanding of her. The organization does it's best to provide diversity training but the long and the short of it is that leaders are volunteers who come with their own expectations of how they think their troop should be and it may or may not be a happy place for our kids. Don't be afraid to search for good match. you are not locked in to one troop just because it is located at your local school. Our troop has 8 girls but they come from five different schools. Cassie Zupke wrote: Hi -- There are some good books written for children that talk about autism. I'm drawing a blank right now as to their names -- I think some are " When my autism gets too big " and " Asperger's, Huh? " . I'm sure other folks have ideas. That would be a good thing to show the leaders and ask them to share with the other girls. I find kids are far more understanding when they know a kid is having a hard time for medical reasons. The books would also be good to talk to your daughter about autism. I'm sure she notices that she's having a harder time with some things than other kids are. I told my son that he has autism and that means he has a harder time in some areas than other kids do -- then he didn't think he was just stupid. I told him the autism wasn't an excuse -- it meant he had to work harder in somethings than other kids. For instance, writing is harder for him but I still expect him to do his best every single time whether he wants to or not. I don't expect him to be as proficient as the other kids and there are some things we just opt out of (like music and assemblies) but for the things he's capable of, he's got to work hard. I also told him that autism has benefits too -- his single-mindedness means he studies very hard on things he enjoys and he has a great memory -- better than all the other kids in his class. Sometimes he gets mad because he has autism because it makes his life hard but I tell him that everyone has stuff in their lives that make them hard. -- Cassie sajustmyself wrote: > I could try. But when you get a chance to read my last reply, I > really don't feel that her leaders believe she's autistic. They seem > like the type that think of autism as Rainman only. When I did talk > to them it just like, " oh really?, I wouldn't have ever thought that > it was that " in that kind of condescending voice; again, I am > sensitive so maybe I read it wrong but... > > > > > > > > > > > > Hi everyone, > > > > > > > > > > Hannah (8) is currently enrolled in Brownies. 2 girls that > are > > > > there > > > > > are very mean to her and bully her frequently (as they do at > > > > school). > > > > > The leaders keep assuring me that they don't " pull that " > while at > > > > > Brownies, but Hannah says they do. It's hard to say if she > can > > > > > separate school time from Brownies but... > > > > > > > > > > Do y'all think that a structured group like Brownies (with > about > > > 13 > > > > > other shrieking little girls) is a good setting? She has > very > > > poor > > > > > social skills and before knowing her dx, I thought it might > be a > > > > good > > > > > thing to get her involved in something. > > > > > > > > > > Thanks. > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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